FELLOWS, FUTURES, FAMILIES

Senegal, officially the Republic of Senegal, is the westernmost country in West Africa, situated along the Atlantic Ocean coast. It borders Mauritania to the northMali to the eastGuinea to the southeast and Guinea-Bissau to the southwest. Senegal nearly surrounds The Gambia, a country occupying a narrow strip of land along the banks of the Gambia River, which separates Senegal’s southern region of Casamance from the rest of the country. It also shares a maritime border with Cape Verde. The capital and largest city of Senegal is Dakar.

Healthcare in Senegal is a center topic of discourse in understanding the well-being and vitality of the Senegalese people. As of 2008, there was a need to improve Senegal’s infrastructure to promote a healthy, decent living environment for the Senegalese.

Additionally, the country needs more doctors and health personnel, particularly general practitionersgynecologistsobstetricianspediatricianspulmonologist, and cardiologists. In fact, Senegal has seven doctors per 100,000 citizens, while 32% of rural citizens have no access to medical care at all. Moreover, there is a strong need to have more of these personnel in rural areas: in 2008, Senegal had only twenty full-fledged hospitals, seven of which are in Dakar.

From approximately 1905 to the present, there have been significant shifts in Senegal’s healthcare system, the system’s structures, specific diseases that are problematic in Senegal, as well as issues affecting women and children and access to healthcare in the country. As of 2019, there were 1,347 medical facilities, including 20 major hospitals.

 Problem Statement: Neonatal Intensive Care Unit (NICU) trainees experience high intensity situations under suboptimal physiologic and psychologic conditions that can lead to burnout and/or secondary traumatic stress. The mental health of NICU fellows can have significant impact on their well-being and the quality of patient care they provide. The overall goal of this project is to improve Neonatal Fellow mental health and well-being in a level 3 NICU by using Trauma Informed care (TIC) principles to identify needs that may warrant connection to further resources.

Abstract:

Methods:

 Key stake holders were identified: the ACGME director, the fellowship program director, the associate program director, the chief fellow, the psychologist, the fellow cohort, division chief, lead NNP, and the program coordinator. We aimed to develop a wellness curriculum and standardize the frequency of sessions, duration of sessions, attendance of sessions, confidentiality, location and topics. Key drivers rooted in the 6 principles of TIC became the foundation of the topics explored during the Wellness Sessions. These six principles / primary are 1. Safety, 2. Trustworthiness and Transparency, 3. Peer Support, 4. Collaboration and Mutuality, 5, Empowerment, voice, and choice, 6. Cultural sensitivities. These promoted the following standardized topics: Crucial conversations with mentors, Performance anxiety, Debrief challenging cases, debrief death, Navigating personal relationships (motherhood, significant other, daughter/son), Work life balance, Individualizing wellness, Cognitive behavioral strategy for stress management. A force field diagram was the QI tool used to mediate conversations to gain approval for this Wellness curriculum pilot. Driving forces in support of this pilot were having a dedicated NICU psychologist, ACGME recommendation for embedded Wellness training, fellow interest, previous match history, program evaluation demonstrating a gap for wellness training and existing private fellow office space. Restraining forces included scheduling time away from board preparation didactics, patient care and research duties, 360 degree buy in, post-call protected time, literacy of NICU psychologist role, and human bias to new process. Our outcome measure is compliance with monthly meetings characterized by completed monthly sessions from November 2023 to April 2024. The process measure is compliance with attendance for fellows that desired to attend the wellness session and not encounter barriers.

Results:

In the initial 6 months implementation period from November 2023 to April 2024 there was 30% compliance with monthly meetings. PDSA cycles revealed the challenges to completing a session. These included the available protected didactic times were filled with other lectures and case conferences, preparation for In-training-exams (ITE’s), research timelines, graduating fellow interviews, schedule gaps for anticipated and unanticipated medical leaves, and fellow graduation exit procedures. Compliance for attendance of the fellows conflicted with patient care duties and lack of commitment to protected time away from the NICU. Qualitative feedback from fellows was in support of establishing the permanence of this wellness curriculum and they specifically appreciated the topics and the time to pause and reflect on their experiences. Fellows’ feedback included: “mental health sessions are equally as important as the pathophysiology lectures,” the curriculum prioritizes “resetting the mindset more positively” and “improve work-related satisfaction.” This feedback, the start of the new chief fellow term, and persistent advocacy to establish this wellness curriculum enabled this pilot to continue for an additional 6 months. The frequency of sessions has increased in collaboration with program director approving bimonthly sessions.

Conclusions:

Implementation of a fellow wellness program was met with initial resistance, but over time has proven beneficial in fellow satisfaction and performance leading to increased support from key stakeholders, increased frequency of scheduled sessions and reduction in barriers to allow for fellow attendance. Future direction is to incorporate fellow wellness curriculum into monthly didactic schedule and standardize a curriculum to be replicated.

Source: https://neonatologytoday.net/newsletters/nt-sep25.pdf

The latest statistics from the MSAS reveal a critical shortfall: there is currently only one midwife available for every 1,197 women of reproductive age.

This shortage has left numerous health centers, especially in rural areas, operating without qualified personnel capable of providing prenatal care or safely assisting with deliveries.

In some of the country’s most isolated communities, pregnant women are still forced to travel dozens of kilometers in search of professional medical assistance.

This persistent gap in healthcare access continues to put adolescent girls, expectant mothers, and newborns at risk, especially when it comes to managing high-risk pregnancies.

In response, the government has initiated a targeted recruitment drive under the broader SWEDD+ program—an initiative for Women’s Empowerment and the Demographic Dividend in West Africa.

The project aims to recruit a total of 500 midwives across 11 of Senegal’s most vulnerable regions, where the shortage is most pronounced.

The newly announced recruitment of 220 midwives marks the first wave of this effort, which is supported by key international partners including the World Bank and the United Nations Population Fund (UNFPA).

Beyond simply filling vacant roles, the goal is to ensure that skilled healthcare professionals are present and retained in the country’s most neglected areas—regions often bypassed by young professionals due to poor infrastructure and difficult living conditions.

Authorities hope this measure will significantly reduce maternal mortality, limit preventable childbirth complications, and improve access to essential services for women and adolescents.

However, health experts warn that recruitment alone will not be enough. For the initiative to succeed in the long term, newly deployed midwives will require proper housing, transportation, equipment, and incentives to remain in rural posts.

Despite these challenges, the decision signals a shift in policy direction. While the number of recruits may not fully meet the country’s needs, the move represents a concrete and long-overdue commitment to rebuilding Senegal’s maternal healthcare system from the ground up.

Source: https://dailymailafrica.com/senegal-recruitment-of-220-midwives-to-tackle-maternal-health-crisis/

The World Health Assembly has officially designated November 17 as World Prematurity Day! The recent WHO endorsement is a major step forward – calling on governments around the world to prioritize preterm birth in their national health agendas. 

“As one of the founding organizations of World Prematurity Day in 2008, we at GFCNI are deeply proud to see it officially recognized by the World Health Organization,“ says Silke Mader. “This milestone is a tribute to our tireless efforts together with parent and patient organizations, healthcare professionals, and advocates around the world. A heartfelt thank you to Doris, whose dedication made this endorsement possible. Together, we have turned a vision into a worldwide movement for preterm babies and their families.”

This is truly a huge milestone for the global movement for premature babies,” adds Doris Mollel, founder of the Doris Mollel Foundation in Tanzania, whose tirelessly advocacy, supported by the Tanzanian government, has been pivotal in bringing global attention to the needs of preterm infants. “This is just the beginning. Together, we are building a future where every child has a fighting chance, and every life matters.”

Source: https://www.gfcni.org/campaigns/world-prematurity-day

The latest statistics from the MSAS reveal a critical shortfall: there is currently only one midwife available for every 1,197 women of reproductive age.

This shortage has left numerous health centers, especially in rural areas, operating without qualified personnel capable of providing prenatal care or safely assisting with deliveries.

In some of the country’s most isolated communities, pregnant women are still forced to travel dozens of kilometers in search of professional medical assistance.

This persistent gap in healthcare access continues to put adolescent girls, expectant mothers, and newborns at risk, especially when it comes to managing high-risk pregnancies.

In response, the government has initiated a targeted recruitment drive under the broader SWEDD+ program—an initiative for Women’s Empowerment and the Demographic Dividend in West Africa.

The project aims to recruit a total of 500 midwives across 11 of Senegal’s most vulnerable regions, where the shortage is most pronounced.

The newly announced recruitment of 220 midwives marks the first wave of this effort, which is supported by key international partners including the World Bank and the United Nations Population Fund (UNFPA).

Beyond simply filling vacant roles, the goal is to ensure that skilled healthcare professionals are present and retained in the country’s most neglected areas—regions often bypassed by young professionals due to poor infrastructure and difficult living conditions.

Authorities hope this measure will significantly reduce maternal mortality, limit preventable childbirth complications, and improve access to essential services for women and adolescents.

However, health experts warn that recruitment alone will not be enough. For the initiative to succeed in the long term, newly deployed midwives will require proper housing, transportation, equipment, and incentives to remain in rural posts.

Despite these challenges, the decision signals a shift in policy direction. While the number of recruits may not fully meet the country’s needs, the move represents a concrete and long-overdue commitment to rebuilding Senegal’s maternal healthcare system from the ground up.

Source: https://dailymailafrica.com/senegal-recruitment-of-220-midwives-to-tackle-maternal-health-crisis/

Was your baby born more than 3 weeks early? Premature development differs from full-term, but there’s no need to worry! Let’s explore effective ways to understand and support your baby’s growth and milestones. Premature babies are often born with more extended (straight) positions, while full-term babies get a curled up (flexed) feeling from being in the womb longer. Babies need both flexion and extension to help their motor skill development. Try these activities to aid your preemie’s physical growth and work on their flexion. Always consult your healthcare provider for personalized advice. • Swaddling: Helps bring your baby’s arms to the middle, providing comfort and aiding in muscle development. • Side Lying: Reduces gravity’s impact, making it easier for your baby to move their arms and legs. • Bringing Arms and Legs to Midline: Encourages flexion by helping your baby bring their limbs to the center of their body. • Tummy Time: Strengthens neck, back, shoulder, and core muscles crucial for overall development.

 👪 ABOUT PATHWAYS.ORG Pathways.org is a non-profit organization that provides free, trusted resources so that every parent is fully empowered to support their child’s development. Our milestones are supported by American Academy of Pediatric findings. Our resources are developed with and approved by expert pediatric physical and occupational therapists and speech-language pathologists.

Source: file:///C:/Users/Kathy%20P/Downloads/Global_Preterm_Birth_Organizations_Map_2025.html

Join Our Global Community

If your country or region isn’t yet listed, we’d love your help expanding this network.  Share your local preemie-family organization, NICU support group, or foundation by contacting us at NeonatalWombWarriors@gmail.com Together, we can make sure every family and their communities — no matter where they are — are able to gain needed support. We are stronger together.

Having a baby in the hospital NICU is a very stressful time for all members of a family, including big brothers and sisters. Siblings often feel confused, anxious, or even left out during a NICU stay. Children look to adults for reassurance, so it’s important to guide them through the experience with honesty, love, and consistency.

This guide offers simple, practical tips for NICU sibling support that help kids feel included, valued, and secure during this challenging time.

Helping Children Cope with a NICU Stay

BE CONSISTENT

Maintaining normal routines like bedtime, meals, and school helps young children feel safe. Consistency is especially important during a time when so much else is changing.

SET ASIDE SPECIAL TIME

Even small moments of connection, like reading a bedtime story, a short walk, or a chat in the car, can go a long way. Your time and attention matter more than perfection.

ASK FAMILY AND FRIENDS FOR HELP

Don’t be afraid to lean on your support system. People want to help, but they don’t always know how. Let them know what you need. Ask friends or family to help with school drop-offs or meals. Giving others a chance to help allows you to show up more fully for your children.

SURROUND THEM WITH FAMILIAR PEOPLE

If you have family members and friends providing child care, have them come to your home as much as possible. With so many changes, having a known and trusted adult around will help younger children cope, especially if they have a difficult time being separated from mom and dad. Familiarity offers comfort when parents are spending long hours at the hospital.

ADAPT THEIR DAILY ROUTINES

Routines are an important part of helping children cope with the NICU. You may have to temporarily change up your child’s routines to align with having a baby in the NICU. If your usual family dinners are now spent at the hospital, try shifting that special time to breakfast or bedtime instead. Flexibility can help kids still feel connected.

LEAVE NOTES OF LOVE

Leave your children love notes and messages when you have to be away. You may even sign some messages from the baby: “I am so lucky to have you as my big sister!” This can help them feel connected to the baby, especially if they can’t visit them.

CELEBRATE THEI ROLE AS BIG BROTHER OR SISTER

Remind siblings how important they are. Make a list of all the things your older children can do that the new baby can’t do and share it with them. Talk about their role in the family and how they will be helping to teach the new baby about these things.

ENCOURAGE YOUR CHILDREN TO TALK ABOUT THEIR FEELINGS

Even if they don’t ask, make time to talk. Let them know that it is okay if they are feeling sad, angry, lonely or frustrated. Let them know that they can tell you if they feel like they need you to spend some time with them. Create space for your children to talk about how they’re feeling by asking simple questions like: “What was the best part of your day?” or “Is anything making you feel sad or worried today?” Let them know it’s okay to feel all their feelings, and that you’re always there to listen.

LET THEM ASK QUESTIONS

Children often have big imaginations and need help making sense of what it means that the baby is in the NICU. Giving them age-appropriate, honest answers can ease their fears. For example: “The baby is in a special place where doctors are helping them get stronger.”

What are they worried about? What do they think might happen? Let their questions guide your conversations.

Model Coping and Resilience

Kids learn by watching you. Show them that it’s okay to be sad or overwhelmed, and that those feelings don’t last forever. Let them see you ask for help, take breaks, and care for yourself.

You Are Not Alone

The NICU experience can be tough on siblings, but it can also bring families closer. The most important thing we can do for our children is to give them support, encouragement, information and most of all reassurance that they are still important members of the family. With thoughtful support and simple routines, you can help your children feel secure, seen, and loved during this time.

Source: https://handtohold.org/im-special-too-how-to-support-siblings-when-your-baby-is-in-the-nicu/

Abstract

Purpose

The purpose of this research is to evaluate how AI integration in nursing education influences educational and practice performance outcomes, and to understand the roles of technological acceptance and institutional support in this process. Issue: AI’s role in nursing education and practice is not fully understood, particularly in terms of its effects on performance and the barriers to its effective implementation.

Method

A sample of 500 participants was surveyed, and data was analyzed using Smart-PLS 4.0 to assess the direct, indirect, and moderating effects between variables like AI integration, performance outcomes, and institutional factors. Results showed significant positive relationships between AI application in practice and nursing performance, with technological acceptance acting as a strong moderator.

Findings

AI integration in nursing education positively affects nursing performance (p < 0.001). Technological acceptance significantly enhances both educational and clinical outcomes, with interaction effects between technological acceptance and AI integration improving performance (p < 0.001).

Research policy implications

Policy should focus on supporting AI adoption in nursing curricula, with investments in faculty training, technological infrastructure, and fostering technological acceptance to maximize AI’s benefits in healthcare settings.

Conclusion

AI integration is crucial for advancing nursing education and practice, with technological acceptance and institutional support playing key roles in successful AI adoption. The findings underline the importance of targeted policy initiatives to foster these elements.

Introduction

Artificial Intelligence (AI) is rapidly transforming healthcare and nursing, providing new opportunities for education and practice. The integration of AI in nursing education is reshaping the way nursing curricula are developed, while the application of AI in clinical settings is enhancing the efficiency and accuracy of patient care. Despite these advancements, the impact of AI on global nursing education and practice remains inadequately explored, with few studies addressing both its benefits and challenges. This research aims to provide a comprehensive understanding of how AI integration in nursing education influences nursing performance, both in academic and clinical settings, and how AI applications in practice improve patient outcomes and care efficiency (Iqbal et al., 2025)

The adoption of AI in nursing education and practice is growing at an unprecedented rate, offering tools that range from curriculum enhancement through AI-driven learning tools to decision support systems (DSS) in clinical settings. AI is revolutionizing nursing by providing advanced technology for clinical training, decision-making, and patient monitoring (Chowdhury et al., 2021; Rana et al., 2024). However, the integration of AI in nursing education is often challenged by factors such as curriculum development, technology access, and the need for comprehensive training. Similarly, in clinical practice, the application of AI for clinical decisions and patient monitoring is reshaping nursing roles, yet concerns remain about how these technologies affect nursing practice performance (Denecke et al., 2020; Iqbal et al., 2023, 2024). Despite these changes, few studies have explored how these technological advances impact both nursing education and clinical performance in a holistic manner.

Although AI is increasingly being implemented in nursing education and practice, there is a lack of comprehensive research examining the direct effects of AI integration on nursing education performance (NEP) and nursing practice performance (NPP). Moreover, the factors that moderate or mediate the influence of AI such as technological acceptance, institutional support, and infrastructure have not been fully investigated. Understanding how these variables interact can provide valuable insights into the effectiveness and challenges of AI implementation in nursing.

These main three main research questions are:

1. How does AI integration in nursing education (curriculum design, technology access, and clinical training) influence nursing education performance, including academic performance, skill development, and clinical competency?

2. In what ways do AI applications in nursing practice (clinical training, decision support, and patient monitoring) affect nursing practice performance, particularly patient outcomes, satisfaction, and clinical accuracy?

3. How do factors such as technological acceptance and institutional support mediate and moderate the effects of AI integration and application in nursing education and practice?

These main three main research objectives are:

1.To examine the impact of AI integration in nursing education on nursing education performance (NEP).

2. To assess how AI applications in nursing practice affect nursing practice performance (NPP).

3. To analyze the role of technological acceptance and institutional support in moderating and mediating the relationship between AI integration and performance outcomes in nursing education and practice.

This study will provide crucial insights into how AI integration in nursing education and practice affects various performance outcomes, offering actionable recommendations for educators, healthcare policymakers, and technology developers. By exploring the moderating and mediating effects of technological acceptance and institutional support, the research will help identify strategies to overcome barriers to effective AI adoption in nursing. The findings will also contribute to the development of a conceptual framework for evaluating AI’s role in nursing education and practice, promoting more effective and sustainable implementation of AI in these fields.

This study will be conducted using Smart-PLS 4.0 to analyze the relationships between AI integration in nursing education and practice and its impact on nursing performance outcomes. The research will include an examination of the independent variables (AI integration in education and practice) and their effects on the dependent variables (nursing education and practice performance). Additionally, the moderating effects of technological acceptance and the mediating role of institutional support will be explored. This will lead to a set of practical recommendations for the integration of AI into nursing curricula and clinical environments.

Section snippets/Literature review

Artificial Intelligence (AI) has emerged as a transformative force in both nursing education and clinical practice. The integration of AI into nursing education, through innovations in curriculum design, clinical training, and simulation, is reshaping how nurses are trained and prepared for modern healthcare challenges. Similarly, AI applications in nursing practice, such as decision support systems (DSS) and AI-enhanced patient monitoring, are changing the way nurses deliver care, improving

Research methodology

This study will employ a quantitative research methodology to examine the impact of Artificial Intelligence (AI) integration on global nursing education and practice. The research will use Smart-PLS 4.0, a software tool for structural equation modeling (SEM), to analyze the relationships between the variables outlined in the study framework. SEM is chosen due to its capability to handle complex models involving multiple independent, dependent, mediating, and moderating variables (Hair et al.,)

Result analysis and discussion

The path coefficients in Table 1 reveal strong, significant relationships between AI integration and nursing performance outcomes. The T-values consistently exceed the threshold of 1.96, confirming the statistical significance of the direct paths. In Table 2, total indirect effects show meaningful mediating influences, with T-values above 1.96 for most variables, indicating significant indirect relationships. Confidence intervals in Table 3 further validate these findings, with narrow ranges

Conclusion

This study has demonstrated the significant impact of AI integration in both nursing education and practice. The results show that AI Application in Nursing Practice (AIANP) and AI Integration in Nursing Education (AIINE) have substantial positive effects on Nursing Education Performance (NEP) and Nursing Practice Performance (NPP). Key findings include the strong relationship between AIANP and Institutional Support (IS), as well as the enhancement of Technological Acceptance (TA) through AI.

Source: https://www.sciencedirect.com/science/article/abs/pii/S1355184125001000

The unpredictable hours of residency make romantic relationships tough—but not impossible. Here’s how to date and maintain a love life during residency.

The long and unpredictable hours of residency make starting and maintaining a romantic relationship tough. But it’s not impossible.

Here’s how to date and make the most of your love life during residency.

First, let’s address the elephant in the room. If you’re going into residency single and haven’t spent much time dating or figuring out what you need from a partner, taking on this challenge during residency will be difficult. Building a deep, romantic relationship requires time, which is something you have very little of in residency.

Even the act of finding a relationship requires a significant time investment. You’ll need to put yourself out there socially, such as going to events or joining community groups, work on your own personal development, and zero in on what you’re actually looking for from a partner.

If this sounds like you as a resident, do not despair. It is possible to find and build a relationship during residency, but you need to understand both what your priorities are and how many hours you have to find and keep that special someone. If finding a relationship in this stage of your life is important to you, you’ll need to intentionally carve out and block time for it, much like when you are studying for boards.

Don’t allow your years of residency to fly by without being intentional about every aspect of your life—this includes your professional development, personal wellness, hobbies and interests, and love life.

If starting a family and settling down is a top priority for you at this stage, you need to act like it. This will mean you have less time for other things, such as research you wanted to pursue, personal hobbies, or binging Netflix shows alone.

Alternatively, you may decide a serious relationship is less important to you at this time, which is perfectly okay too. Don’t fall into the trap of doing what those around you are doing just because it seems like the logical next step. Jumping into a serious relationship or beginning to start a family because you think you should, and not because you want to, is a recipe for disaster.

With that in mind, if dating is a priority for you, it’s time to get serious about identifying your needs.

Identify Your Needs

One of the biggest questions to ask yourself is whether or not you want to be with someone in medicine, as there are pros and cons to both choices.

A partner in a medical field, such as another resident or someone pursuing another healthcare career, will share an understanding of the time-consuming nature and challenges of residency. They are more likely to be comfortable with your limited and unpredictable hours because they experience the same thing. You’ll also have plenty to talk about in the realm of medicine, but this can be both positive and negative.

Your shared interests may keep the conversation going, but you run the risk of talking about medicine all the time. A partner outside of healthcare can offer new topics of conversation, and you can learn new things from each other. Additionally, a non-resident partner can more easily work around your rigid schedule.

If both of you are pursuing a career in healthcare, you may have similarly unpredictable schedules. If you each only have one small sliver of free time, it’s likely they won’t align, making it difficult to carve out time together.

However, your career path is only one small element of determining your own needs.

Are you looking for someone who wants to have children? Are you eager to start that process right away, or do you want to wait a few years? Do you want someone who shares your passion for fitness and wellness? Is preferring Star Trek over Star Wars a deal breaker for you?

By the time you’re in residency, you likely have a better understanding of yourself and what you hope your future will look like. Determine what you’re looking for in a partner to save yourself time during the dating process, as you don’t have any time to waste. However, ensure you’re not too rigid in your quest for love. The more you idealize your perfect partner, the harder your search will be.

After all, no one is perfect, and every relationship involves compromise.

Finding a Partner

After spending time identifying your preferences, it’s time to go out and find that special someone, which is easier said than done, especially for residents.

Unlike treatment algorithms, there are no x + y + z instructions to find a partner. It takes time, patience, and a whole lot of trial and error. Put yourself out there and continue meeting new people. Choose events, groups, and activities that align with your interests so you find someone who shares your values.

For example, if fitness is a top priority for you, join a gym or athletic community group you’re interested in, such as a running club, kickboxing class, or yoga in the park. If religion is an important aspect of your life, make time to go to church or temple events, and get more involved in religious community initiatives. If you’re passionate about books and storytelling, join local library events and begin participating in a book club.

Dating apps can also help you streamline the dating process. If used effectively, they can aid residents who have very little free time. Be sure to choose dating apps that align with your needs. If you’re looking for a serious relationship with someone who wants to start a family, don’t waste your time on an app known for its hookup culture.

If you’re looking for someone who is also in medicine, there are dating apps specifically for healthcare workers, such as ForeverX and DowntoDate.

Use dating apps to your advantage, but understand their limitations. If your residency is in a small town, you will have fewer options. The pros and cons of dating apps and how to optimize online dating are discussed in video on my Kevin Jubbal, M.D. channel.

Maintaining a Healthy Relationship

Starting a relationship is just one part of the equation. As a resident, you’ll have to put in more effort than usual to help maintain it. Here’s how to keep a healthy relationship strong.

1 | Be Clear About What to Expect

The first and most important tip is to be upfront with your partner about what to expect over the next few years. This will be easier if you’re dating a fellow resident or someone in the medical field, but either way, it’s vital that both of you have clear expectations.

Your free time will be very limited. Your schedule may be so hectic at times that all you can do after a long day is go home and sleep. Your free time will also be unpredictable, as you may be on call, which can and likely will result in cancelled plans, sometimes at the last minute. Preparing your partner for these situations from the outset will prevent conflict.

When approaching commitments, use percentages. With what percent confidence can you commit to an event? Is there a 90 percent chance you can make it, a 70 percent chance, or 30? Knowing this upfront will result in fewer misunderstandings and hurt feelings.

If hurt feelings do occur, be sure to allow your partner to vent. Constantly canceling plans will be frustrating for them at the very least, and if they aren’t working in healthcare, your schedule and priorities during this time will be difficult to understand.

Being in medicine in some ways is as close to being in the military as you can get, with an arguably even more unpredictable day to day schedule at times.

Be clear right from the start that you will be under a tremendous amount of stress. This is in no way carte blanche for you to be rude or self-obsessed; however, they should know there will be times when you come home after having been chewed out by an attending or after having lost a patient. You may not always be able to put on a happy face and forget about your day the moment you walk through the door.

2 | Develop Open and Honest Communication

Next, communication is the foundation of any strong relationship, and it’s what will save you during residency. Explain when your shifts are, when you’re on call, and share your exact schedule, but strive to go beyond that. You need to share what’s going on in your inner life as well, including your feelings, concerns, and current energy levels.

Be honest. Don’t put on a brave face. They need to know how to support you through your dark days, which means you need to give them the full and honest picture of the job from the start.

If a patient dies, it’s important to share how it affected you. Don’t act as though your partner can’t help you or pretend you don’t need help when they can see that you do. If you deny your feelings, you’re more likely to crack under the immense pressure you’re under. Plus, you’re taking away your partner’s agency. Of course, they can’t help you with everything, but when they can, let them. If you have the right partner, they’ll be happy to offer you support.

However, remember that communication is a two-way street. Your partner isn’t there just so you can talk at them about how rewarding or challenging it is to be a doctor. They need to know they can vent to you when they are stressed, no matter their career path. Being a teacher, accountant, waiter, or business owner comes with its own stresses. They must be able to talk about their day too.

While the relationship does largely rely on your schedule, it’s not all about you.

3 | Don’t Allow Medicine to Rule Your Life

Next, while it’s important to be honest about your work and how it makes you feel, it shouldn’t be the only thing you talk about, and it shouldn’t rule your lives.

It is essential to take time to decompress before you see your partner and to put a time limit on hospital or clinic talk.

Dr. Joshua Goldman has found success using his drive home to transition his mindset. He has two children, so he uses his commute to move from serious plastic surgeon to playful dad. Dr. Goldman shares how he balances his family and work life in an episode of Day in the Life.

Even though it may not feel like it at times, you are more than just a doctor. Developing a healthy life outside of medicine will aid both your relationship and your career. You’ll be able to go into work fresh and ready to start again, rather than carrying it with you 24/7.

Work with your partner on finding a balance in your conversations. This is especially important if both of you are in residency. It’s great that it’s a passion you both share, but you are more than just residents. What are your hobbies and values outside of medicine? If you have to, make a rule that when on dates or when sharing a meal, you don’t talk about medicine. This will allow you to get to know each other on a deeper level and grow your connection beyond your shared careers.

4 | Intentionally Block Time for Your Relationship

The fourth tip is to intentionally make time for your relationship and your partner. Even with your busy schedule, make specific plans, put them in your calendar, and do your best to commit to them. You may only have a few extra hours each week to dedicate to your partner, but know that any time spent together is better than nothing.

Neglecting time as a couple will erode any relationship. If you’re not careful, those few hours of free time will get eaten up by something else, and before you know it, four weeks will have passed by without the two of you spending any quality time together.

You need to block time for your relationship and ensure being together occurs in some form or another. When your schedule is tight, get creative about blending other commitments. How can you turn tasks like grocery shopping, cooking, or even cleaning the house into a date?

Completing these seemingly boring tasks together will make them more enjoyable while giving you more opportunities to see each other. That said, don’t allow your only time together to be over laundry and dishes, as this is a surefire way to lose that romantic spark.

On days when you only have a few moments to spare, taking the time for a small gesture like bringing home food or flowers or just texting them a kind message can brighten your partner’s day.

Don’t only focus on what you want out of a relationship. What does your partner prefer? You might care about gifts and small gestures while what’s most important to your partner is hearing words of affirmation.

This is commonly referred to as your love language. The five love languages are physical touch, acts of service, quality time, words of affirmation, and gifts.

If you don’t know your preferred love languages, there are plenty of online quizzes you can take. While by no means scientific, they can provide insight into your own needs and preferences as well as your partner’s. If your love languages align, awesome! If they do not, don’t be discouraged. Taking the time to learn more about each other’s preferences will help you both get what you need from the relationship.

This again falls back on effective communication. Neither of you are mind readers. Make every effort to ensure both of your needs are met.

Romantic relationships during residency can be tough—but they’re rewarding too. Residency is tremendously challenging, and having someone you can lean on during this time is extremely valuable.

Source: https://medschoolinsiders.com/medical-student/dating-and-relationships-in-residency/

Abstract

Background: 

Neonatal nurses have a major role in helping parents engage with their infant. A high level of parent participation, called Parent-Partnered Care, integrates parents as full partners in the delivery of hospital care to their infants. One parent-partnered intervention that improves infant, parent, and parent-infant outcomes is H-HOPE (Hospital to Home: Optimizing the Preterm Infant Environment). H-HOPE has 2 components: Massage+ and Parents+.

Purpose: 

The purpose of this article is to present an evidence-based guide showing how to deliver Parents+ and the implications for nursing practice.

Methods: 

The nursing approach to Parents+ includes participatory guidance and social support, which fosters a partnership with parents. The guidelines for using participatory guidance include a detailed description of each teaching/learning session along with implications for nursing practice.

Results: 

Parents’ experienced many benefits from participating in the Parents+ sessions. They reported feeling more confident in the care of their infant and more satisfied with learning and delivering Massage+. Additionally, parents also reported less fears handling their infants, increased feelings of bonding/attachment, and a sensitivity/responsiveness to their infant’s behavioral cues.

Implications for practice: 

Parents+ presents an opportunity for nurses to help parents engage with their infants and increase their confidence and competence. Parents’ desire a neonatal intensive care unit culture that embraces a comprehensive collaborative approach with healthcare professionals that is individualized to their infant’s health and well-being.

Neonatal nurses have a major role in helping parents engage with their infant and provide direct care. The inclusion of parents as full partners in the care of their infant in the neonatal intensive care unit (NICU) has greatly expanded to include routine caregiving, developmentally supportive care, and engagement with the neonatal team regarding infant healthcare decisions. A high level of parent participation in the care of their infants, called Parent-Partnered Care, is defined as “approaches that center or integrate parents as full partners in the delivery of hospital care to their ill or small newborns.”

One parent-partnered intervention that improves infant, parent, and parent-infant relationship outcomes is H-HOPE (Hospital to Home: Optimizing the Preterm Infant Environment). H-HOPE is a parent-focused intervention that fits within the Parent-Partnered Model of Care where members of the healthcare team partner with parents in care delivery . H-HOPE includes both an infant-focused intervention, Massage+ (formerly termed the ATVV, Auditory, Tactile, Visual, and Vestibular Intervention), and a parent-focused intervention, Parents+. A large body of research documents that Massage+ significantly increases infant alertness, clarity of the infant’s cues, oral feeding and growth, and fosters the development of infant social communication and the parent-infant relationship in hospital. Additionally, Massage+ has been associated with reduced acute care visits and improved parent-infant interaction at 6-weeks corrected age. Massage+ is designed to be provided by parents while Parents+ provides guidance and support from nurses so parents can confidently provide Massage+ with sensitivity to their infant’s cues.

H-HOPE: one model of parent-partnered care.

As an early behavioral intervention for preterm infants and their parents, H-HOPE is designed to be integrated within a culture that supports parents as partners in care. H-HOPE incorporates 3 key elements of Parent-Partnered Care: presence, participation, and engagement. The physical presence of parents is necessary to provide them the opportunity to participate in caregiving activities like Massage+. Parents may participate in care activities with the support of nurses or independently depending upon their confidence and experience. Parents+ requires collaboration between the nurse and parent to teach parents how to understand their infant’s behavior and deliver Massage+. Engagement occurs when a parent is emotionally involved in their infant’s health and healthcare through their actions. Engagement is not fixed, rather it exists along a continuum. Over time, the delivery of H-HOPE by parents increases parents’ confidence in their caregiving and engagement with the healthcare team.

A comprehensive toolkit, including instructions and videos showing the step-by-step process of Massage+ is available to support nurses and parents in the delivery of Massage+ on Pathways.org (https://pathways.org/massage-tool-kit-H-hope) at no cost. Pathways.org also has detailed information and developmental resources for nurses to use during the Parents+ sessions. After completion of Parents+, the website is available for parents.12 These materials and videos are especially helpful for parents to review content at any time. However, detailed guidelines for the nurse to deliver Parents+ is not currently available in the literature. Therefore, the purpose of this article is to present an evidence-based guide showing how to deliver Parents+ and the implications for nursing practice.

PARENTS+ CONCEPTUAL BASIS

Parents+ consists of teaching/learning sessions that help parents understand infant behaviors and cues, shows them the steps of Massage+, and provides experiences that build parent confidence in providing Massage+ guided by their infant’s cues. The conceptual basis supporting Parents+ includes participatory guidance,principles of adult learning and experiential learning.

  • Participatory guidance occurs when a skilled clinician guides the process of learning how to perform a complex task, with the mutual goal of moving the learner from novice to expert. This approach changes the relationship from “instructor-student” to a collaboration. When using this approach, nurses foster bidirectional communication with parents.
  • Adult learning involves respecting and integrating what the parent brings to the sessions, such as their own experience in caring for an infant. It is their “history” related to the context of their lives, including their preterm infant, family, socioeconomics, cultural factors, and other responsibilities.
  • Experiential learning provides opportunities that foster integration of the new experience into the learner’s everyday skills. This learning approach provides hands on practice (Massage+) and supports parents as they gain confidence and competence while interacting with their infants. Experiential learning is also a component of Bandura’s well-known social learning theory widely used as an effective model for behavior change programs.

The learning strategies derived from these concepts promote parent participation and engagement (Parent-Partnered Care), build trust between nurses and parents, and increase parents’ confidence and competence with infant care. The integration of these strategies fosters growing parent competency. One advantage of Parents+ is its strong conceptual approach that assists nurses in conducting parent education that is both planned and effective, allowing nurses to provide consist of support across shifts and nursing assignments. This common understanding of how to conduct parent education is much needed; as noted in a recent scoping review that described the inability of health professionals to articulate the systematic teaching strategies they used.

DESCRIPTION OF THE PARENTS+ SESSIONS

Parents+ consists of 3 to 4 sessions: 2 in-hospital and 1 to 2 post-discharge. The focus of each session is the parents’ engagement with their infant, as they learn to understand their infant’s behavioral cues and how to build the parent-infant relationship. Parents learn about cues both through the nurse teaching about behavioral cues as well as the nurse asking about what cues the parents have seen in their infant and pointing out cues the infant may exhibit during the Parents+ session (Table 1). Through this repeated process, parents learn to read, interpret and respond to engagement and disengagement cues. For example, when their infant is overstimulated and exhibits a potent disengagement cue, the parent learns how to modify his/her behavior to reduce overstimulation (see Session 1 for definitions of engagement and disengagement behaviors below).

TABLE 1. – Parents+ Content: Example Session Questions and Talking Points

Open session with parent concernsLet’s start by discussing how you’re doing. How are things going for you? Do you have any questions about your baby?
Infant behavioral statesHave you noticed how your infant wakes up? What state is your infant in right now?
Engagement & disengagement cuesThese pictures show some ways infants show they are ready to interact with you or want to continue. Which ones have you noticed that your infant does?
Orally directed behaviorsHere are some things infants do to show they are getting ready to eat. What does your infant do when s/he is ready to eat?
Hunger & satiation cuesHere are some things infants do to show they are getting ready to eat or that they are full. What behaviors does your infant have when they are getting ready to eat and when they are full?
Massage+Massage+ is an activity that stimulates all your infants’ senses and is enjoyable for both of you Massage+ helps infants become alert and ready to feed, so they eat and sleep better. Do you notice any benefits for your infant when doing Massage+? Infants may like some parts and not others. Do the parts your infant likes. Remember to pause if they need a break. How does your infant respond to Massage+?
Back to sleepDo you know the best position to put your infant in for sleeping?
Signs & symptoms of illnessBefore you go home, we’d like to review what you might see in your baby that would need immediate attention.
How to calm a fussy babyDoes your infant ever get fussy? What do you do? Let’s talk about different things that you can do to calm the infant when s/he is fussy.
Feeding is more than eatingFeeding is an important time to relate to your infant Whether breast or bottle feeding, your infant needs to be close to you and have your full attention while feeding. This is a time for you and your infant to relax and enjoy each other
Tummy timeTummy time is important for your infant’s development and achievement of milestones Let’s review ways you can get tummy time in each day
Developmental milestonesInfants do not develop the same way, but knowing what developmental milestones to be on the lookout for can help you monitor their progress. Let’s review some 0-3 month milestones. Have you seen any of these in your infant yet?
Close session with parent check-inDo you have any further questions or concerns about what we’ve discussed, or anything else?

Infant behaviors and Massage+ are introduced at the first session and reviewed and practiced in subsequent sessions. While teaching Massage+, the nurse talks about infant behaviors and caregiving, adding new content to each Parents+ session. Content of Parents+ can be divided into multiple smaller sessions to accommodate both parent and nurse time constraints. When this occurs, documentation of parent education in the electronic health record (ideally into the existing parent education documentation) serves as a communication tool between nurses to ensure completion of a Parents+ session, picking up where necessary. If an infant is discharged earlier than expected, missing content can be delivered during the post-discharge visits.

Each Parents+ session follows the same plan:

  • Address (re-address) parent concerns
  • Review any previous content
  • Introduce new content
  • Complete each session by returning to the parent’s continuing concerns and any questions about their infant.

The focus on parent needs at the beginning and end of each session is in response to the high stress, anxiety and fear many parents report during their time in the NICU. Nearly all parents’ have emotional needs related to caring for their vulnerable infants and are often hesitant about even touching their infant. The psychological distress of having a preterm infant, exacerbated by the stress of the NICU environment, along with the context of parent’s lives outside the hospital, affect their ability to fully participate in caregiving of their infant and engage with the healthcare team regarding their infant and family’s needs. For parents to fully engage during this stressful time, their needs must be addressed in conjunction with the infant’s needs. However, parents are rarely given an opportunity to discuss their own feelings and needs. Parents+ helps mitigate parents’ distress by acknowledging their needs and concerns and asking what they want to learn about their baby to support their learning and engagement.21 While some concerns are too complex to be resolved or may require referrals, simply acknowledging parent concerns helps parents feel heard and builds trust. Detailed guides for each session are available on Pathways.org.

Session 1

The first Parents+ session can be initiated when the parents are physically and emotionally ready, even if the infant is not old enough to receive Massage+ (Massage+ begins when the infant reaches 31-32 weeks postmenstrual age and is physiologically stable). Infants born between 33 and 35 weeks may also begin Massage+ once they are physiologically stable. This first session includes substantial content about preterm infant behaviors and cues that are highly relevant for all parent caregiving and engagement with the infant. Sharing information about preterm infant behavior and cues prior to the infant’s readiness for Massage+ allows parents’ time to become comfortable learning to read, interpret, and respond to their infant’s cues.

During Session 1, 4 content areas related to preterm infant behaviors are discussed. Nurses use active listening to understand parents’ concerns and tailor content to support learning. The session begins with a description of infant behavioral states and engagement and disengagement cues to help parents understand the many behaviors that infants use to express themselves. These cues also include orally directed behaviors (pre-feeding behaviors) and those that indicate hunger and satiation. When working with parents, using the term pre-feeding behaviors is easier for parents to understand. Later in this session, parents learn the steps of Massage+ and practice Massage+ on their infant with guidance. Cues are further reinforced when parents learn to read, interpret, and respond to the infant’s behavior while giving Massage+ to their infant.

  • Infant Behavioral States: Behavioral states include quiet sleep, active sleep, drowsiness, active alert, quiet alert, and crying. Identifying the infant’s behavioral state indicates readiness or lack of readiness to engage. During the active alert state, the infant’s eyes are open and the infant looks around; arms and legs may be moving, indicating readiness to feed. This state is most optimal for oral feeding, regardless of whether feeding is provided by bottle or breast feeding. During the quiet alert state, the infant’s eyes are open, the infant is calm and ready for social interaction with the parent.
  • Engagement and Disengagement Cues: These cues are important indicators of the infant’s readiness to interact or needing a break. Both engagement and disengagement cues can be potent (eg, easy to understand such as looking at the parent, or cry) or subtle (eg, difficult cue for the parent to read and interpret such as hands open or grimace). Preterm infants often show more subtle engagement cues such as brow raising, facial brightening, feeding posture, and hands open with fingers slightly flexed. As they mature, the frequency of potent cues increases. Potent disengagement cues include a cry face and halt hand, turning head away, and spitting up. Subtle disengagement cues include fast breathing, gaze aversion, and yawning.
  • Orally Directed Behaviors (Pre-Feeding): Orally directed behaviors indicate the infant’s readiness to feed. These include mouthing, rooting, tonguing, hand-to-mouth, hand swipes at mouth, empty sucking, sucking on hand, and sucking on tongue.7,30
  • Hunger and Satiation Cues: Hunger cues include arms and fingers bent, facial grimace or crying, mouthing and sucking movements. Satiation cues include arms relaxed or by the infant’s side, relaxed fingers, infant has a neutral face (no expression), or infant is asleep.26,27,31 These cues provide additional indicators of the infant’s hunger or feeling full. This is important for parents who often want to feed their preterm infant the entire oral feeding even though they are exhibiting satiation cues.

Session 2

Session 2 begins 1 to 2 weeks before discharge. Planning for Session 2 well before discharge allows additional time to address parents’ questions and concerns and to support the parent-infant relationship before heading home. This session also offers additional opportunities to integrate new information with previous learning.

Session 2 content includes signs and symptoms of illness and back to sleep. This information is often already incorporated into discharge education. However, the participatory guidance approach of H-HOPE (Parents+) acts as a reinforcement of the importance of active listening to address parents’ questions with bi-directional communication and incorporating the context of the parents’ needs and concerns as they transition to home. As discussed above, this may include referrals or additional resources to support parent self-care.

Sessions 3 and 4

One or two virtual sessions occur within 2 weeks after parents are discharged home with their infant. Parent feedback from our previous research indicated that this is also a stressful time for parents and they appreciated the additional support and educational content. The purpose of these post-discharge sessions is to offer support to parents, answer questions related to Massage+ and infant behavioral cues that were taught during the first session, as well as infant care. New topics include calming a fussy baby, feeding is more than eating, tummy time, and developmental milestones. Parents are also encouraged to use the Pathways.org App for continuing information about developmental milestones that can be easily downloaded onto their phones.

Depending on the parents’ schedules at home, these 2 sessions can be combined into 1 session. However, the rationale for providing 2 post-discharge virtual sessions was developed as a result of previous research with parents’ who found these visits valuable for their transition to home.

DISCUSSION

The purpose of this article was to present an evidence-based guide showing how to deliver Parents+ and the implications for nursing practice. While parents appreciated Massage+ in previous research studies, they reported high anxiety while handling their infants and not clearly understanding their infant’s behavior. Parent feedback led to the development of Parents+ which offers parent support and guidance to improve outcomes for infants, parents, and the parent-infant relationship. Massage+ is designed to be provided by parents while Parents+ provides guidance and support from nurses so parents can confidently provide Massage+ with sensitivity to their infant’s cues.

Parents+ is a model for collaboration between parents and nurses enabling the delivery of Parent-Partnered Care, and has benefits for parents, infants and nurses, as discussed below. The first Parents+ session was intentionally designed to guide parents in learning and practicing the steps of Massage+ on their infant. When Massage+ is provided by parents, they can see their infant’s positive behavioral responses and growing developmental capacities. The process of providing Massage+, a multimodal dyadic intervention, helps parents’ experience handling their infant and responding appropriately to infant cues; skills that readily transfer to virtually all other caregiving.

Thus, the experience of providing Massage+ begins to build the parent-infant relationship. In both qualitative and quantitative assessments, parents reported feeling more confident in the care of their infant and more satisfied with learning and delivering Massage+. In other intervention and engagement studies, parents reported improved mental health, increased confidence and competence while caring for their infant. Parents also reported less fears handling their infants, feelings of bonding/attachment, and parental sensitive-responsiveness to their infant’s behavioral cues.1Significantly, this response has been proposed as the foundation for the development of the parent-infant relationship.

Benefits for Parents+.

Overall, the benefits of H-HOPE (Massage+ and Parents+) for infants have been well documented in the literature. Infants of different post-menstrual ages (31-36 weeks) responded with improved alertness, increased orally directed behaviors, faster progression from gavage to oral feeding, improved growth, and fewer illness visits after hospital discharge.2,4,6-8 In addition, other investigators reported an improvement in neurodevelopmental outcomes following interventions focused on the parent-infant relationship. Interventions that also include the transition into the home as with Parents+ Sessions 3 and 4 are ideal because this offers additional support for parents and infants post-discharge.

Importantly, Parents+ also benefits staff, providing a practical guide that both novice and expert nurses can use to more effectively help parents engage with their infants. Conducting Parents+ using a participatory guidance approach further develops interactive and teaching skills for nurses. Essentially, the participatory guidance approach can be used for any instruction with parents. These skills foster a culture for parent participation, using bidirectional communication and demonstrating how parents can collaborate with the nurse as a partner. Showing respect and understanding of the parent perspective is particularly salient, as nurses play an important role in making parents feel comfortable and welcome in the NICU environment, as well as increasing their confidence in providing care for their preterm infants.

IMPLICATIONS FOR CLINICAL PRACTICE

Increasingly, the nurse’s opportunity to provide parent support and guidance is challenged by a continually, complex clinical environment, staffing shortages and family stressors. Parents+ presents an opportunity for nurses to help parents engage with their infants and increase their confidence and competence. Physical therapists, occupational therapists, and speech language pathologists trained to administer H-HOPE are well equipped to provide the intervention and can partner with nurses’ to provide these services. However, in most NICUs, the primary responsibility will likely reside with nurses, as they are the only clinicians in the NICU who are at the bedside 24/7. Moreover, evidence-based parent focused developmental approaches to preterm infant care have been shown to affect neurodevelopmental outcomes for infants, driving the need to become a standard of care in the NICU.45 The Vermont Oxford Network issued a statement, “All care is brain care,” to emphasize the importance of developmentally based care for the preterm infant.As NICUs move forward with advancing this type of care, a unit culture that incorporates a developmental and behavioral approach to caregiving by nurses is critical and necessary to achieve optimal outcomes. To support a unit culture of developmental care, staff education and training, from orientation through skill review sessions, is imperative.

The parent perspective can be found in the literature, via feedback from parent advisory groups, and local and national parent support networks (eg, https://nicuparentnetwork.orghttps://www.marchofdimes.org/our-work/nicu-family-supporthttps://handtohold.orghttps://www.projectnicu.com). Parents desire a NICU culture that embraces a comprehensive collaborative approach with healthcare professionals that is individualized to their infant’s health and well-being. The goal for all parents is to achieve optimal outcomes for their infant.44 However, this may require more than changing the NICU culture. There are many factors besides NICU culture and socioeconomics that are barriers and challenges for parents. These include insufficient knowledge about how to care for the infant and understanding realistic expectations for growth and development, as well as access to resources to support the parent’s and infant’s needs.

A successful practice change that incorporates the parent perspective also depends upon experienced leadership; operational and clinical leaders who set consistent expectations for implementing and sustaining evidence-based standards of care. In addition, assessment of staffing needs is critical to incorporate a practice change into nursing workflow. Parents need nurses who have the time to help them learn a behavioral intervention like H-HOPE and provide essential developmental care. NICUs where parent education and engagement are highly valued, and a cornerstone of nursing practice, will likely be more willing to accept H-HOPE. It is imperative for NICUs today to focus on meeting the needs of parents’ and infants, address the challenges, and implement evidence-based practices. In addition to assessing staffing needs, each institution must consider other logistical factors, such as reimbursement for services and who conducts the post-discharge sessions. While nursing time inpatient is not reimbursable, outpatient often is, which may cover the 2 post-discharge Parents+ visits. These post-discharge visits could be completed by a discharge nurse or developmental specialist, depending on the resources of each institution.

CONCLUSION

Parents+ is an innovative behavioral intervention with benefits for parents, infants and staff. Parents+ incorporates a model of Parent-Partnered Care, which helps mitigate parent’s distress by addressing parents’ needs and concerns to support their learning and engagement with their infant. The Parents+ sessions are designed to provide education and support during the NICU stay and post-discharge. Understanding the evidence that supports developmental and behavioral care is key to recognizing the rationale for incorporating Parents+ into the standard of care by staff. Incorporating a culture of developmental and behavioral care for parents and their infants is imperative to address their needs, improve outcomes, and advance nursing practice in the NICU.

 Summary of Recommendations for Practice and Research

What we know:Parents+ is a behavioral intervention that incorporates Massage+ to help parents learn their infant’s cues and contributes to optimal neurodevelopmental outcomes. Parents+ is an evidence-based approach to behavioral care in the NICU. Nurses are essential for providing Parents+.
What needs to be studied:Further research is recommended to identify effective strategies incorporating H-HOPE into neonatal nurses’ workflow. Research is critical to describe how NICUs embrace developmental care as the standard of care. Data are needed to document parent and infant outcomes from the delivery of Parent-Partnered Care.
What can we do today that would guide caregivers in the practice setting considering the use of this evidence for guiding practice?Provide leadership support for a developmental and behavioral approach to NICU care. Educate nurses on the principles of Parent-Partnered Care. Engage parents to understand the behavioral cues of their infant as a component of their caregiving.

Source: https://journals.lww.com/advancesinneonatalcare/fulltext/2025/10000/parents___an_early_behavioral_intervention_as_a.4.aspx?context=featuredarticles&collectionid=3

Club cell secretory protein (CC16) is a pneumoprotein that has anti-inflammatory and antimicrobial properties and whose levels are reduced in preterm infants.

Objective

We sought to investigate the role of circulating CC16 in the association of preterm birth (<37 weeks) with lung function and asthma from childhood into young adult life in longitudinal and mediation analyses.

Methods

Using the BAMSE (Swedish abbreviation for Barn/Children, Allergy, Milieu, Stockholm, Epidemiology) birth cohort (2,557 participants and 10,631 longitudinal observations), we assessed plasma CC16 (ages 8 and 24 years), spirometry (ages 8, 16, 24, and 26 years), and asthma (ages 8, 12, 16, 24, and 26 years). Longitudinal associations between preterm birth, CC16, percent predicted values of FEV1/forced vital capacity (ppFEV1/FVC), and asthma were examined in longitudinal multivariable mixed models. CC16 (ages 8-24 years) was tested as a mediator for the relationship of preterm birth to pre- and postbronchodilator ppFEV1/FVC and asthma in adulthood (ages 24-26 years).

Results

Preterm birth was associated with reduced plasma CC16 (−1.15 ng/mL; 95% CI, −1.22 to −1.08; P < .0001), lower ppFEV1/FVC (−1.9%; 95% CI, −3.1 to −0.8; P = .001), and higher risk for asthma (1.83; 95% CI, 1.28 to 2.62; P = .001) across ages 8 to 26 years. CC16 deficits were related to decreased ppFEV1/FVC (P < .0001) and increased risk for asthma (P = .007) in adulthood. Multivariable mediation analyses suggested that CC16 mediated 16% and 9% of the effects of preterm birth on ppFEV1/FVC and asthma in adult life, respectively.

Conclusions

Low CC16 is a potential mediator of the effects of prematurity on lung function deficits and asthma in young adulthood. Future studies should address whether CC16 can be used as a predictive biomarker and, possibly, a therapeutic target in individuals born preterm.

Section snippets

Participants

BAMSE is an observational population-based birth cohort study that enrolled 4089 children born in Stockholm between 1994 and 1996.35 The study design and enrollment process are detailed in this article’s Online Repository at www.jacionline.org. Perinatal data were obtained from the Swedish medical birth register.36 Plasma CC16 levels were measured at ages 8 and 24 years. Spirometry was conducted at ages 8, 16, 24, and 26 years. Asthma questionnaires were answered by parents at ages 8, 12, and

Results

Overall, 2,557 BAMSE participants were included in this study, contributing to a total of 10,603 longitudinal observations for asthma (526 for preterm participants) and 6,109 for lung function (324 for preterm participants). Compared with the 1,532 excluded participants because of missing CC16 and/or phenotypic data, those included were more likely to be females and have older, nonsmoking mothers and higher-educated parents with a history of asthma (Table I). There were no significant

Discussion

In this study—using a large, long-term, population-based birth cohort—we demonstrated that low circulating CC16 levels may mediate part of the effects of preterm birth on lung function and asthma in young adult life, supporting a protective role of CC16 in obstructive lung diseases of individuals born prematurely. These findings highlight the potential of CC16 for risk stratification and, possibly, novel therapeutic strategies for preterm individuals at risk for obstructive lung disease.

The role of CC16 in the associations of preterm birth with lung function and asthma in adult life – ScienceDirect

Empowering Voices: Honoring the Educators Who Shape Our Journeys

As we begin Neonatal and Preemie Awareness Month, we celebrate not just our survival stories, but the growth and purpose that follow. For those of us who began life in the fragile space of an incubator, this month is a reminder of how far we’ve come—and of the people who continue to help us become who we are meant to be. This November, our theme is “Educators as Warriors of Empowerment”—because teachers, mentors, and guides are often the ones who help transform early struggle into lifelong strength.

Many of us know that being a preemie can mean growing up with a different pace, a different rhythm, or a different way of learning. It’s our teachers who see that difference and choose to nurture it rather than correct it. They are the ones who remind us that resilience isn’t about perfection, it’s about discovery. Whether it’s the preschool teacher who cheered every word we learned to speak, or the university professor who saw our curiosity, these educators become part of our extended story of becoming.

This month, we celebrate their quiet strength—the patience to listen, the creativity to adapt, and the belief that every child’s journey matters. They empower us to see ourselves not as “born early,” but as born with perspective—the ability to find meaning in milestones others take for granted. Through education, we learn to define our own possibilities, rewrite old narratives, and embrace the uniqueness that began long before we could even open our eyes.

To every educator who has walked beside a preemie—thank you for being part of our collective story of empowerment. And to every survivor reading this: remember, your journey didn’t stop at survival. It continues through the lessons you share, the knowledge you seek, and the lives you touch. This month, let’s honor the teachers who reminded us that we are not defined by our start in life, but by how brightly we choose to grow.

NW Warriors – Call to Action!

The Dominican Republic is a North American country located on the island of Hispaniola in the Greater Antilles of the Caribbean Sea in the North Atlantic Ocean. It shares a maritime border with Puerto Rico to the east and a land border with Haiti to the west, occupying the eastern five-eighths of Hispaniola which, along with Saint Martin, is one of only two islands in the Caribbean shared by two sovereign states. In the Antilles, the country is the second-largest nation by area after Cuba at 48,671 square kilometers (18,792 sq mi) and second-largest by population after Haiti with approximately 11.4 million people in 2024, of whom 3.6 million reside in the metropolitan area of Santo Domingo, the capital city.

There are three tiers of healthcare in the country:

  • Subsidized regime, which is financed by the government for unemployed, poor, disabled and indigent people.
  • Contributive regime, which is financed by workers and employers
  • Contributive subsidized regime, which is financed by independent workers, technical workers, and self-employed people, but subsidized by the state[16]

Even those for whom care is supposedly provided may have to pay for medical supplies. However, considerable progress in health and overall development was experienced in the country. For instance, there is a substantial increase in health coverage in the nation that is the health insurance coverage from 23% in 2011 to 65% in 2015 (Centers for Disease Control and Prevention n.p). Significantly, updating the list of beneficiaries was the major challenge since the list based on disease prioritization and financial sustainability. Therefore, the first fitness elements, such as migration, poverty education, and gender-based, should be considered in the strategy of hindrance suites.

Government expenditure on healthcare is about $180 per person per year, slightly more than half the average for the Latin American and Caribbean region.

Essentially, there are steps considered by healthcare in the Republic. Firstly, the sponsored organization that caters to the poor, unemployed, and disabled people. Also, the active personnel contained a contributive establishment. Though the low-classes are dependents, the majority of the population is independent on matters of health, according to the Dominican Republic (World Health Organization n.p). Therefore, government expenditure per person is slightly higher in the Dominican Republic compared to other states.

Source:https://en.wikipedia.org/wiki/Health_in_the_Dominican_Republic

Europe needs new ideas and solutions to address the disparities in the care of preterm and ill babies. The European Standards of Care for Newborn Health project presents such a solution by providing European reference standards for this health care area.

With its transdisciplinary focus and international composition of the working groups, the project sets new benchmarks for the care of preterm and newborn babies and can serve as a role model for countries in Europe and worldwide. About 220 experts from more than 30 countries accepted to dedicate their free time to work on this ambitious project over several years. At the time of the launch of the standards, 108 healthcare societies and associations as well as 50 parent organisations have accepted EFCNI’s invitation to officially support the newly developed standards.

Through its multi-stakeholder approach, the perspective of parents, healthcare professionals, and relevant third parties were equally considered, aiming at identifying current best practice. Industry partners were involved in the project by supporting it financially. Their representatives could join the Chair Committee meetings in an observing role and they were welcome to share their knowledge and expertise without exerting influence. Initiated by patient (parent) representatives for patients, it is a true patient-centred project and, for the first time, patients were involved in absolutely every step in the development of the standards. All project participants work together in an open and respectful partnership to pave the way for change and set newborn health on the international and national agendas.

On a political level, addressing European Standards of Care for Newborn Health will stimulate a new debate that can help questioning existing structures, identify gaps and deficiencies, and advance national healthcare systems. To read the standards and to learn more about their development, please visit our project website European Standards of Care for Newborn Health.

On the project website, you also find further information like a project report, an information brochure or social media graphics.

The European Standards of Care for Newborn Health now available in Italian – Gli Standard Assistenziali Europei per la Salute del Neonato sono disponibili in italiano

The Italian Society of Neonatology (SIN) and Vivere ONLUS, the Italian National Coordination of Parents’ Associations, took the initiative to translate the standards into Italian, with Italy becoming the first European country to make this important document available in their national language. The first two sets of standards can be downloaded from our project page.

Call to Action for Newborn Health in Europe

The UN Convention on the Rights of the Child has been ratified by 196 countries and proclaims that “the child, by reason of his physical and mental immaturity, needs special safeguards and care, including appropriate legal protection, before as well as after birth”.  Article 6 affirms every child has the right to life, survival, and development. Furthermore, children have a right to be cared for by their parents and should not be separated from them, as far as possible (Articles 7 and 9). However, upholding the Rights of the Child in reality remains a major challenge.

The European Standards of Care for Newborn Health help support these rights from the beginning of life by serving as a reference for the development and implementation of binding standards and guidelines on a national and international level. European and national policy makers, hospital administrators, insurers, professional and patient associations, and industry should work together to bring the standards into practice and to ensure quality, equity, and dignity for the smallest.

Download the Call to Action Brochures: The Call to Action is available in about 20 languages and can be downloaded here.

News provided by March of Dimes Inc.   Mar 18, 2025

ARLINGTON, Va., March 18, 2025 /PRNewswire/ — March of Dimes, the leading organization committed to improving the health of moms and babies, has been named the United Food and Commercial Workers International Union’s (UFCW) Labor Partner Charity of Choice for 2025. As UFCW’s designated national charity partner, March of Dimes and UFCW will work together to support and advocate for healthy pregnancies, strong families, and improved maternal and infant health outcomes in the US.

“For more than 85 years, March of Dimes has stood alongside labor unions to champion the health and well-being of working families,” said Cindy Rahman, President and CEO of March of Dimes. “Our partnership with UFCW builds on this proud legacy, strengthening our ability to advocate for policies, provide essential resources, and drive meaningful change to improve maternal and infant health outcomes. We will work together to ensure that every family—no matter where they live or work—has access to the care and support they need for a strong, healthy start.”

The US remains the most dangerous high-income nation for childbirth, earning a D+ for a third consecutive year in March of Dimes’ latest Report Card, which measures the state of maternal and infant health in the US. Through this partnership, UFCW and its more than 1.2 million members will have opportunities to engage in fundraising efforts, volunteer initiatives, and awareness campaigns aimed at addressing this growing crisis.

“The UFCW Charity Foundation is committed to supporting organizations that make a real difference in the lives of working families,” said UFCW International President Marc Perrone. “March of Dimes has led the fight to improve maternal and infant health for decades, and we are proud to stand with them in this important work. By joining forces, we have the opportunity to help even more families access the care and resources they need for healthy pregnancies and strong futures.”

Partnering with labor unions to protect the health of working families is a cornerstone of March of Dimes’ mission. We’re honored to have strong and long-standing national and local partners like UFCW through our Labor of Love movement, which raises critical funds to pioneer research, advocate for change, and pave the way for greater equity to give all families the best possible start.

Before being named UFCW’s Charity of Choice, UFCW members have actively supported March of Dimes, raising over $3 million through golf outings, sporting clay events, auctions, and March for Babies teams. They have also uplifted the voices of their own members, like Daniel Scott of UFCW Local 1996, whose twins spent time in the neonatal intensive care unit (NICU) after a challenging pregnancy. For families like the Scotts, March of Dimes’ work is more than a cause—it’s a lifeline, ensuring that babies born too soon or facing complications receive the critical care they need.

For more information on how to get involved, visit https://www.marchofdimes.org/get-involved/partner/labor-union

About March of Dimes
March of Dimes leads the fight for the health of all moms and babies. We support research, education, and advocacy, and provide programs and services so that every family can get the best possible start. Since 1938, we’ve built a successful legacy to support every pregnant person and every family. Visit marchofdimes.org or nacersano.org for more information. Follow us on social at @marchofdimes.  SOURCE March of Dimes Inc.

Source: https://www.prnewswire.com/news-releases/march-of-dimes-named-2025-labor-partner-charity-of-choice-for-united-food-and-commercial-workers-international-union-302404305.html

Andrew Bush    Anne Greenough    Alvar Agustí 

To the Editor:

Premature birth has consequences across the course of life, including reduced life-expectancy, and the most prematurely born have the worst outcomes [12]. Survivors of prematurity have increased respiratory morbidity and mortality, airflow obstruction, asthma-like symptoms and COPD, and cardiovascular disease [14]. A history of prematurity is often not sought in adult clinics [5]. We hypothesised that the long-term consequences of prematurity are insufficiently appreciated, likely with detriment to patient care.

We used an online survey developed by a panel of neonatologists, paediatricians, allergologists and pulmonologists. The survey included 21 items addressing four main topics: 1) awareness level among respiratory care providers regarding the long-term respiratory risks of premature birth; 2) communication of neonatal information between different medical specialties; 3) healthcare journey of preterm babies to paediatricians and other respiratory care providers; 4) the knowledge gaps and potential solutions. The survey was customised to each specialty: seven items were for neonatologists only; three for paediatricians; one each for allergologists and respiratory consultants; five for paediatricians, allergologists, and respiratory consultants; and four for all specialties.

We invited 14 651 neonatologists, paediatricians, allergologists and respiratory consultants from Australia, France, Germany, Italy, Spain, the UK, and the USA to participate, excluding physicians with less than 2 years’ experience; 1002 (7%) responded. A web link was emailed from listings extracted from Chiesi Farmaceutici S.p.A and from proprietary databases of external healthcare providers. All had previously consented to email contact. Two email reminders were sent and incomplete surveys were rejected.

Sample size was opportunistic in the absence of data enabling a power calculation. The survey results were analysed using Microsoft Excel and Microsoft Power BI. All items involved categorical answers, and absolute and relative frequencies were calculated. All frequencies were treated descriptively. No geographical comparisons were performed due to sample size limitations. The questionnaire is available on request from the corresponding author.

Results are summarised in figure 1. Of the 1002 respondents, 91% had been in practice for more than 5 years, and 62% were practising in an outpatient facility. In terms of specialities, 282 (28%) were neonatologists, 183 (18%) paediatricians, 290 (30%) allergologists, and 247 (24%) were respiratory consultants. Figure 1a shows that neonatologists regarded the presence of respiratory symptoms as being most important in the decision to refer. By contrast, for paediatricians, birth weight was the most important factor, irrespective of respiratory symptoms (figure 1b). All specialists highlighted that the most important gap was lack of clear recommendations for follow-up (figure 1c) and the need for continuing medical education programmes (figure 1d). Most (96%) respondents considered prematurity and bronchopulmonary dysplasia (BPD) risk factors for lung diseases in adulthood. Nevertheless, 74% of respondents perceived only moderate to very low awareness among colleagues. Adult pulmonologists perceived the lowest level (85%) of awareness among the specialties surveyed.

FIGURE 1

Reasons for neonatologists (a) and paediatricians (b) to refer preterm-born patients to a respiratory specialist. The gaps and potential solutions to improve the long-term respiratory care of preterm-born individuals are shown in (c) and (d). The bars show the percentage of participants who selected each option. NICU: neonatal intensive care unit; BPD: bronchopulmonary dysplasia.

Most (77%) paediatricians “always” took a perinatal history, compared with allergologists (34%) and pulmonologists (21%). Irrespective of specialty, the proportion who always took this history increased with increasing years of clinical experience. Most (95%) neonatologists shared information on gestational age, birth weight, need for supplemental oxygen and respiratory support, BPD diagnosis and other lung sequelae of prematurity (>80%), and this was consistently reviewed by paediatricians (83%). This information was mainly through medical records (57%) and by oral communication (52%). Allergologists and respiratory consultants used feedback from other physicians (58% and 37%, respectively) and electronic medical records (43% and 26%, respectively) to gather neonatal information. They reviewed less neonatal information, although BPD diagnosis and lung sequelae were reviewed by 72% and 65% of allergologists and respiratory consultants, respectively.

Most neonatologists (99%) shared information with parents and caregivers, and more than 70% of paediatricians and allergologists received information from the caregivers. Only 59% of adult pulmonologists acknowledged receiving information from parents and caregivers.

Most neonatologists (70%) followed up preterm babies for two years, but 27% for only 1–2 years. Most (>75%) of all those surveyed, believed that premature babies should be followed up lifelong.

Most (>80%) allergologists modified clinical management, at least partially, if they were aware that the patient was born preterm. Only 60% of adult pulmonologists adapted management pathways in preterm survivors.

Most (>60%) respondents considered that preterm-born individuals and their parents and caregivers should be empowered to ensure they receive the best respiratory care. Other suggested initiatives were measuring lung function during follow-up from 5 years of age, streamlining access to the perinatal medical history and the development of a portable record with neonatal information. Going forward, the use of a lifelong electronic patient record, accessible to all who are involved in patient care, would likely greatly facilitate communication between specialist groups.

In summary, there is inadequate awareness of the importance of preterm birth for management across the life course; communication between specialist teams is inadequate; and there is lack of clear guidance as to how to follow-up preterm born survivors.

The European Respiratory Society [6], and the American Thoracic Society [7] have published guidelines with conditional recommendations on low strength evidence. However, the former only covered the follow-up of BPD survivors [6], and the latter were limited to the follow-up of preterm-born children and adolescents with respiratory symptoms [7]. These guidelines are limited, not least because we now know that the risk of compromised lung health later in adulthood exists even for early term born infants [489]. However very few paediatricians actually referred extremely preterm or low birth weight babies to a respiratory specialist. An international consensus on how to structure respiratory follow-up remains an unmet need [110].

Most allergologists (80%) and adult pulmonologists (60%) modified diagnostic pathways and treatment approaches, at least partly, when they were aware the patient was born premature. Lack of appreciation of the implications of prematurity across the life course may lead to wrong treatment being prescribed. For example, school-age wheeze and variable airflow obstruction is common in preterm survivors [11]. Some may respond to treatment with inhaled corticosteroids (ICS) [12] but in others there is no evidence of type 2 inflammation so they should not be treated with ICS [13]. They may have dysanaptic airway growth [14], which is known to be associated with poor outcomes in term-born children [15]. More work is needed to determine disease pathology in preterm survivors and to stimulate new research. Trials to stimulate lung development at birth and control airway inflammation in extremely premature babies are underway with stem cell-based therapies, insulin-like growth factor 1 and intratracheal surfactant/budesonide.

Proposed mitigation strategies to improve the current situation include better continuing medical education. Another is empowering patients and caregivers by supplying accurate information which they can ensure is available to subsequent caregivers, including during transition to adult services.

The main strength of the survey is that it includes >1000 physicians from different specialties and countries. There are some limitations. The overall response rate was relatively low, although similar to the British Thoracic Society survey [5], and there is a risk of selection bias. General practitioners were not invited, and this was a mistake given their role in follow-up care.

In conclusion, we need to increase awareness of the long-term implications of prematurity to ensure optimal follow-up for these babies, and design studies to obtain an evidence base for the development of improved guidelines.

Source:https://publications.ersnet.org/content/erjor/11/1/00643-2024

Juan Luis Guerra 4.40 – El Farolito (Live) (Video Oficial)

Juan Luis Guerra

3 years ago #JuanLuisGuerra #ElFarolito #EntreMaryPalmeras

Juan Luis Guerra 4.40 – El Farolito (Live)

Houda M. Abdelrahman; Suzanne M. Jenkins; Michael P. Feloney.

Last Update: November 12, 2023.

When the hymen, a thin membrane of stratified squamous epithelium circumscribing the vaginal introitus, does not spontaneously rupture during neonatal development, it is referred to as an imperforate hymen. An imperforate hymen is a rare cause of primary amenorrhea and can present with obstructive symptoms of the female genital and urinary tracts during the perinatal, pediatric, or adolescent years. Timely diagnosis and prompt treatment are critical. Specific pediatric and gynecologic knowledge and skills are necessary to provide comprehensive, patient-centered care. In addition to the anatomical and physiological aspects of imperforate hymen, its clinical presentation, and potential complications, the psychological impact on affected individuals must be understood. Best practices will ultimately improve patients’ quality of life and reproductive health outcomes. This activity reviews the evaluation and treatment of imperforate hymen and highlights the role of the interprofessional team in improving care for patients with this condition.

Continue for training and assessment!

Source: https://www.ncbi.nlm.nih.gov/books/NBK560576/

Jun 17, 2023

Spilling the Tea is an educational series for new preemie moms and dads brought to you by TEACUP Preemie Program®. These brief but in-depth videos will explore aspects of prematurity including emotional and mental effects, the NICU environment, breastfeeding & pumping, reclaiming attachment & bonding, and others. Preemie parents share their experiences through intimate video journals, and experts in infant development and prematurity offer guidance and information. Episode 3: Dads in the NICU, takes you through the emotional rollercoaster experienced by Beau, Chris, and Steve, three preemie dads who have been there. Get ready to be moved and inspired by their stories of resilience, love, and the extraordinary bond they formed with their little miracles.

Mitigating the iatrogenic psychological effects of medical care in the Neonatal Intensive Care Unit (NICU) and beyond is a moral and ethical imperative for quality healthcare delivery. Research has long established the lifelong effects of early childhood adversity, toxic stress, and the critical role of pediatric clinicians in addressing these challenges, and most recently, the American Academy of Pediatrics (AAP) published a clinical report and policy recommendations for the adoption of a trauma-informed paradigm across all child health services.  Provenzi and Montirosso  confirm that preterm birth is an early adverse experience characterized by exposure to toxic stress and reduced access to the buffering effects of maternal care. Understanding the concepts of infant medical stress and its association with alterations in brain growth and development highlights the biological relevance of a trauma-informed developmental approach to care in the NICU and beyond.

Early life adversity, often mediated through relationships with caregivers, is associated with attachment disturbances, posttraumatic stress disorder (PTSD), and developmental trauma disorder (DTD) in survivors . Experiences of maternal separation and cumulative toxic stress within the NICU have profound implications for infants, families, and the healthcare team . Adversity during infancy is associated with significantly poorer health outcomes, risky health behaviors, and socioeconomic challenges . Parents, too, experience significant emotional and psychological distress, which can persist for decades, further reinforcing the need for trauma-informed approaches to care).

During sensitive and critical periods of development, the experiences associated with critical illness and hospitalization take on new meaning as they direct and disrupt biological processes in the wake of toxic stress. These biological processes, mediated by epigenetic mechanisms, have lifelong implications for an individual’s physiologic and psychological health and wellbeing . Maternal separation is the most significant trauma experienced by all newborn mammals, and preterm and critically ill newborns are no exception . Separation of mother and infant at just two days of age for 1 hour has been linked to a 176% increase in autonomic reactivity and an 86% reduction in quiet sleep . The experience of maternal separation in the NICU becomes the foundation for cumulative toxic stress exposures, ranging from inappropriate sensory stimuli to hazardous hospital routines that do not honor the personhood of the infant. These early stressors compound, leading to long-term health and developmental challenges.

 Separation also has profound implications on the parent, leading to depression, anxiety, feelings of helplessness, loss of control, and posttraumatic stress, which may last for decades. These feelings can impact parenting behaviors and the capacity to partner with clinicians in caring for their infant. Understanding the interplay of physical and emotional health, economic and social resources, medical systems, and structural inequities is critical for co-creating compassionate, collaborative, and supportive relationships with infants, families, and clinicians in the NICU.

 Trauma-Informed Care:

A trauma-informed approach realizes the pervasiveness of trauma in everyday life, recognizes its signs and symptoms in patients, families, colleagues, and self, and responds to trauma by integrating knowledge and evidence-based best practices that mitigate and prevent trauma into policies, procedures, and language; and resists re-traumatization by ensuring consistency and compassion in service delivery. The core principles of trauma-informed care—safety, trust and transparency, healthy relationships and interactions, empowerment, voice and choice, equity, anti-bias efforts, and cultural/gender affirmation—guide all interactions in the NICU.

Parenting is central to a trauma-informed approach, as caregivers play a fundamental role in mitigating the stress and trauma of early hospitalization. The research underscores the powerful buffering effect of parental presence, engagement, and nurturing care in reducing toxic stress responses and promoting infant resilience . When parents feel supported and empowered in their caregiving role, they experience lower stress levels, increased confidence, and enhanced bonding with their infant. This benefits the family’s emotional well-being during the NICU stay and has lasting implications for child development and attachment security.

The short-term outcomes of a trauma-informed parenting approach include improved neurodevelopmental stability, reduced incidences of apnea and bradycardia, and better weight gain trajectories for preterm infants. Additionally, trauma-informed care has been linked to greater autonomic stability, reduced stress hormone levels, and improved sleep patterns, all contributing to enhanced physiological regulation and early developmental progress . These immediate benefits lay the groundwork for stronger immune function and better feeding outcomes, helping infants build the resilience needed for longterm health and well-being . Parents who are actively involved in their infant’s care through practices such as skin-to-skin contact and responsive caregiving exhibit lower levels of anxiety and depression, leading to a healthier emotional environment for both the child and the family unit .

Long-term, trauma-informed parenting interventions significantly impact developmental trajectories, reducing the risk of cognitive delays, emotional dysregulation, and behavioral challenges in childhood . Secure attachment formed during these early interventions fosters resilience, social-emotional well-being, and stronger parent-child relationships well into adolescence and adulthood. Studies have also linked early trauma-informed care to improved educational outcomes and a reduced risk of mental health disorders later in life .

Providing parents with the knowledge, tools, and emotional support necessary to engage confidently in trauma-informed caregiving is critical in shaping the health and well-being of NICU graduates . By prioritizing the parent-infant dyad and leveraging evidence-based interventions, trauma-informed care offers a transformative model that extends far beyond the NICU walls, laying the foundation for lifelong resilience and well-being. When parents are given the resources to understand their infant’s cues, respond sensitively, and participate actively in care, they develop a sense of mastery and confidence that translates into more substantial, more secure attachments. This engagement benefits the infant’s immediate well-being and fosters a more compassionate, informed approach to parenting that can positively influence future generations.

 Clinical Application of Trauma Informed Care:

Parent-driven interventions in the NICU center include parents as active participants in their baby’s care, fostering attachment and reducing trauma. One such intervention is The Zaky HUG®, a therapeutic device designed to extend the parent’s presence by mimicking their hands’ touch, warmth, and scent (Fig. 1). Created by a Ph.D. engineer and former NICU and kangaroo mother, this tool emerged from a deeply personal experience of neonatal hospitalization and has since been developed to support sleep, neuroprotection, attachment, developmental care, pain management, and parental involvement. This device helps create a comfortable, warm, and predictable environment, allowing infants to rest and sleep more peacefully. It is designed to provide the benefits of multiple tools, including positioning, nesting, soothing, and attachment.

Initially motivated by the need to provide connection, continuous comfort, and reduce the association of touch with pain and her own infant’s stress, the creator of this hand-mimetic device applied principles of ergonomics and safety engineering to design a device that fosters secure attachment, supports positioning, predictable experience for the infant, family, and clinicians.

Protected sleep is critical for neurodevelopment and overall well-being. Sleep is a primary driver of brain maturation, memory consolidation, and emotional regulation in preterm and critically ill infants. Interruptions to sleep can disrupt these critical processes, leading to increased stress responses, metabolic instability, and impaired neurodevelopmental outcomes. Ensuring a supportive sleep environment requires balancing between providing necessary medical interventions and minimizing disruptions to natural sleep cycles. Frequent repositioning, environmental disruptions, and inconsistent containment can negatively impact an infant’s sleep-wake cycles. Research by Russell et al. has shown that because these nurturing devices are versatile and work for positioning, nesting, attachment, soothing, and sleep support, they reduce the need for frequent repositioning, offering a stable, soothing environment that promotes restful sleep both during kangaroo care and while in the incubator or crib. These devices help infants transition between sleep states more smoothly, reducing startle reflexes and excessive wakefulness by providing gentle, consistent containment and proprioceptive support.

Additionally, they assist in creating a cocoon-like space that mimics the security of the womb, further enhancing sleep continuity and quality. Further, consensus guidelines advocate for supporting parents in providing frequent, safe, and prolonged skin-to-skin care, reinforcing the role of these interventions in achieving sleep protection . Research has also highlighted that skin-toskin contact improves sleep patterns, stabilizes respiratory rates, and reduces cortisol levels, mitigating the physiological impacts of stress. When infants experience uninterrupted, restorative sleep, they exhibit improved feeding behaviors, enhanced weight gain, and greater autonomic stability, all crucial for their long-term development.

The Pain and Stress Prevention and Management measure prioritizes proactive pain mitigation strategies. By minimizing stress and discomfort, infants can better participate in essential activities of daily living, such as feeding and movement, which further support their growth and development. The integration of non-pharmacologic interventions such as kangaroo care, proprioceptive input, and containment through trauma-informed devices significantly enhances an infant’s ability to self-regulate and cope with stress . Parents play a vital role in this process, providing direct comfort before, during, and after procedures. Studies show that utilizing familiar, comforting sensory stimuli, such as parental scent-infused devices, can effectively minimize procedural stress and discomfort, reinforcing the protective role of parental presence in the NICU.

Activities of Daily Living, including posture, nourishment, and hygiene, are essential to infant development. Establishing predictable and supportive care routines in these areas helps to create a sense of security and stability for infants, reducing stress and promoting optimal development. Ensuring infants receive proper postural support can facilitate musculoskeletal alignment, improve digestion, and reduce discomfort caused by medical interventions. Additionally, consistent caregiving routines help infants develop circadian rhythms, supporting sleep-wake cycles and overall well-being. Kangaroo care safety devices support proper postural alignment, promoting successful breastfeeding and early oral feeding behaviors. One pair of hand mimetic devices further enhances postural stability, allowing for individualized positioning without restricting movement, facilitating optimal comfort and developmental support. These devices can also provide gentle containment, mimicking the boundaries of the womb, which is particularly beneficial for preterm infants adapting to extrauterine life. Furthermore, integrating nurturing devices in caregiving practices encourages parental involvement in routine care activities, reinforcing their role and confidence in caring for their baby even in a high-tech NICU environment.

Finally, Compassionate Collaborative Relationships focus on emotional well-being, self-efficacy, and communication. Clinicians play a vital role in supporting these trauma-informed measures, ensuring that both parents and staff are equipped with the knowledge and tools to facilitate optimal trauma-informed developmental care. These trauma-informed interventions support neurodevelopment and empower parents, reinforcing their role as primary caregivers. By enabling continuous sensory presence and minimizing separation, these devices help establish a sense of predictability, safety, and emotional security for infants and their families. The research underscores the long-term benefits of these interventions, showing reductions in parental stress and anxiety while fostering stronger attachment and advocacy skills.

By integrating trauma-informed devices and caregiving practices, neonatal teams can transform the NICU experience, bridging the gap between medical excellence and human connection. As neonatal care continues to evolve, integrating trauma-informed interventions into everyday practice is not just beneficial—it is imperative for fostering lifelong resilience in the most vulnerable patients. Prioritizing the five core measures for trauma-informed developmental care ensures that every infant and family receives care that is not only evidence-based but also deeply compassionate and developmentally appropriate.

Summary: Recognizing the trauma experienced by babies and families in the NICU is the first step toward transforming and humanizing neonatal care. This recognition must be followed by meaningful action—integrating trauma-informed practices, supporting parental involvement, and embracing innovative, evidence-based products and solutions that prioritize the holistic well-being of infants and their families. Trauma-informed interventions, particularly those that integrate parental involvement and ergonomic design, provide a compassionate, evidence-based approach to mitigating the effects of early life adversity. By centering the voices of parents and clinicians while utilizing trauma-informed tools designed to enhance neurodevelopment and emotional security, we can reshape the NICU experience and the transition to home after discharge into one that fosters healing rather than deepens distress. By leveraging these nurturing strategies, clinicians can enhance infant and family well-being, improve healthcare outcomes and satisfaction, reduce the cost of care, and foster a culture of healing and resilience in the NICU.

This shift requires dedication from institutions, practitioners, and advocates who believe in the profound impact of early experiences. Investing in trauma-informed developmental care is not just a clinical imperative—it is a moral and ethical responsibility that holds the power to transform lives. The NICU should not only be a place of survival but also one of healing, connection, and love. Every baby, every family, and every clinician deserves an environment that nurtures the body and the soul, where science and compassion intersect to create the best possible start for our most vulnerable patients. Through thoughtful, evidence-based approaches, we can transform neonatal care into a support, compassion, and empowerment model for every infant and family. Now is the time to act—to advocate, to innovate, and to implement trauma-informed care that acknowledges the human experience behind every NICU admission. The smallest among us deserve the best care, and it is our collective responsibility to ensure that their earliest moments are filled with safety, love, and hope.

Source: https://neonatologytoday.net/newsletters/nt-mar25.pdf

@HumankindVideos

CanadianPreemies  Jun 25, 2021

The birth of a premature infant has a profound effect on the family and may require a large portion of parental time, attention, finances, and psychological support. During all this time, the sibling may feel confused and left out of the loop and may resent the amount of time the parents are away with the new infant in the NICU. If the preemie is found to have a disability, these issues are compounded as the parents may be grieving and require further time away to attend several appointments. In this session, Dr. Saigal will discuss strategies to support siblings of premature babies. Dr. Saroj Saigal is a neonatologist and a Professor Emerita at McMaster University, Canada. She is internationally recognized for her long-term studies to adulthood which focuses on the quality of life and consequences of having been born extremely prematurely. She has also participated as a collaborator in several multi-center randomized perinatal clinical trials. Dr. Saigal co-founded Adult Born Preterm International Collaboration (APIC) and invited collaborators from around the world who were doing studies on premature infants in adulthood to participate in data sharing. She is the recipient of many awards from the Canadian Pediatric Society and the American Academy of Pediatrics. She was awarded the 2018 Virginia Apgar Award of the American Pediatric Society for distinguished contributions to perinatal medicine. She was also recognized by her alma mater with the McMaster Faculty of Health Sciences Community of Distinction Award, 2018.


What if a single event could sway health, exercise capacity, learning style, social interactions, and even personal identities–yet individuals had no memory of the event? Adults born preterm are an under-recognized and vulnerable population. Multiple studies of individuals born prematurely, including our 35-year longitudinal study, have found important health concerns that adult healthcare providers should consider in their assessments. Concerns include increased rates of cardiovascular disease, metabolic syndrome, depression, anxiety and attention problems, lower educational attainment and frequency of romantic relationships. A Nordic study of over six million individuals found a linear relationship between gestational age and protection against early adult mortality, with preterm individuals showing 1⋅4 times increased likelihood of early mortality as full-term peers.

At the same time, surviving premature birth has become increasingly common. For the last several decades, nearly one in nine U.S. babies is born early, and now more than 95% survive. Global prevalence and survival data indicate more than 15 million preterm birth survivors annually reach adulthood. This suggests a new population of individuals with emerging healthcare needs for adult health providers.

Birth history should be part of every patients’ medical record.5 Due to the varied risks and prevalence of premature birth, all healthcare practitioners should be aware of the potential for long-term effects. With one in ten 30-year-old patients born preterm, clinical specialists who treat long-term complications of prematurity (i.e., neurology, psychiatry, cardiology) may have more preterm-born patients. Recognizing preterm birth as a cumulative, lifelong risk factor is the first step.

As clinicians and researchers, we have observed the medical community, like society at-large, tends to view prematurity as a health event localized to infancy-something kids outgrow. Ironically, some pediatric providers report limited training and understanding of health complications for children born preterm, and little evidence exists regarding adult practitioners’ knowledge to care for these adults. Preliminary adult primary care guidelines were recently created to screen and manage prematurity-related health complications.

Health risks from prematurity are also risks to equality and justice. Women who bear social risk factors are more likely to give birth early. This includes Black women, those living in socio-economically depressed areas, and women with two or more Adverse Childhood Experiences. The many arms of racism and caste-based inequalities can complicate and worsen the health of people already at risk from preterm birth.

Attention also needs to be drawn to the prematurity research community. To date, research has focused on younger age groups and predominantly White populations. Future research needs to seek out ethnically diverse populations and comprehensively examine potential lifecourse complications of early birth. This is especially important when considering how socioeconomic factors may influence the allostatic load of individuals.

For many born preterm, prematurity is not just a health concern, it’s a matter of who they are. Their perception of health over time, or health related quality of life (HRQL), is a critical outcome. To date, this evidence varies with age, degree of prematurity and reporter; clinicians and parents tend to rate HRQL more negatively than survivors. Preterm-born individuals may not have event memories but, early birth repercussions can reverberate through family narratives and unique life experiences. Some identify as typically developed individuals who happen to have been born early, others as functional and well-adapted “preemies”, and others see prematurity as having colored their lives in negative ways. As prematurity researchers, we aim to uncover and bring awareness to the health outcomes and risks from early birth. A critical need exists for more evidence about adult health following preterm birth and yet, how do we protect individuals with statistically increased risk without unnecessarily pathologizing them?

In clinical practice and research settings, we can take the opportunity to listen to people who were too young as patients to speak for themselves but have riveting and complex stories about preterm birth’s effects. We are aware of just one other published qualitative study about the experiences of adults born preterm. Because most adult healthcare providers have yet to acknowledge and factor this experience into patient care, individuals born preterm are finding alternative avenues to be seen. Adults born preterm report seeking online community and support, connecting globally with people over shared early life experiences, while simultaneously making their needs and identities known.

As a research team, we strive to avoid labels for people born early but have nonetheless found that they are, in often subtle ways, a special group. They beat the odds as infants. Their birth and subsequent survival affected their families and communities in unprecedented ways. As clinicians and researchers, we can attend to the health risks of those born premature while acknowledging and celebrating their unique strengths and perspectives, often resulting from their early life experiences.

Source:https://pmc.ncbi.nlm.nih.gov/articles/PMC9186090/

Kevin Kafaja, MS III

As a third-year medical student, I had rotated through cardiac, neuro, and general ICUs. Each one buzzed with alarms and urgency, charged with adrenaline. But the NICU was different. It didn’t scream. It whispered.

My mother is a pediatrician, and I spent much of my childhood in the corners of her clinic—listening in on patient visits and soaking in the soft rhythm of care. I thought I understood Peds. But the NICU was something else entirely. It was intimate. Intentional. There were hours of serenity—gentle beeping monitors, quiet footsteps—but the stillness could break in an instant. A desaturation alarm. A sudden change. A Code White echoed overhead, and then the team would move—fast, focused, all hands in motion.

That’s where I met her—in the corner of the NICU, they lovingly called Toybox Inn 11, home to some of the tiniest, most vulnerable patients. Her crib was tucked neatly within that space, surrounded by soft blankets, daily goal charts, and quiet victories.

She was born on January 9th at just 31 weeks and 1 day, weighing 940 grams. Her mother’s pregnancy had been complicated— monochorionic diamniotic twins, Twin Anemia-Polycythemia Sequence (TAPS), and maternal hyperthyroidism managed with antithyroid medication. She was delivered via C-section under emergent conditions, including ruptured membranes and maternal fever. She required a partial exchange transfusion and respiratory support on 100% FiO₂ shortly after birth.

When I met her on March 5th—Day of Life 55—she had already fought through respiratory distress syndrome, anemia of prematurity, hyperbilirubinemia, and bradycardic spells. She was breathing room air, feeding fully by mouth, and steadily gaining strength. She was growing stronger, one quiet breath at a time.

In my mind, I called her The Little Engine. I loved toy cars growing up—tiny vehicles that raced like giants. She reminded me of that: small but full of force. Her strength wasn’t loud. It was steady. Unshakable.

At first, I was cautious. How do you care for someone so small? But the NICU team showed me—how to cradle her safely, how to monitor her saturation, how to read her tone and anticipate spells. She’d had a few brief episodes—one during a feed, another while asleep—but none in the final 72 hours before discharge.

The Toybox wasn’t just a clinical space. It was a nursery in progress. A pink blanket draped above her crib. A chart titled “My Day” tracked goals and daily wins. Books sat at her bedside— Goodnight Moon and When I Grow Up I Want to Be…, the latter filled with colorful flaps. I’d read it while keeping watch, wondering who she might become and what her future might hold.

Around her were all the quiet markers of care: diapers, wipes, a milk warmer, and an infant stethoscope. Her corner of Toybox Inn 11 was filled with love and progress, written in the smallest details.

Every Wednesday, during interdisciplinary rounds, we reviewed her journey: apnea monitoring, growth tracking, iron and Epoetin for anemia, and feed progression—35 mL of fortified formula every 3 hours. Her hemoglobin held at 9.9, and her reticulocyte count was strong at 5.4. She crossed the 2000-gram milestone. Each marker is a step closer to going home.

Her mother was a constant presence—gentle and calm. Watching her feed and hold her daughter reminded me that medicine begins not with machines but with presence.

She stayed in the NICU for 2 months and 8 days, and on March 18th, she went home—discharged at 40 weeks and 6 days corrected age, weighing 2170 grams. Her final measurements were length 43 cm, head circumference 34 cm, and abdominal girth 27 cm. She left wrapped in pink, lying in her open crib, breathing independently on room air.

Her discharge plan included a high-calorie formula, follow-up with her pediatrician for weight and EPO management, appointments at the High-Risk Infant Clinic, and a referral to the Regional Center within 1–2 months. I was there the day she left. I watched her resting peacefully in her open crib, bundled and ready to go. Her parents arrived later after I had already stepped away. But when I heard she had gone home—to reunite with her twin brother—it felt like a quiet victory. One we all shared.

In The Toybox, I learned that strength doesn’t always shout. Sometimes, it weighs just over two kilograms, sleeps under a pink blanket, and softly breathes while growing stronger every day.

She was my patient. But more than that, she was my teacher. And in that quiet corner of the NICU, I learned that even the smallest hearts can leave the most lasting marks.

Source:https://neonatologytoday.net/newsletters/nt-mar25.pdf

Highlights

– Adults born preterm report experiences of social exclusion such as being bullied

– They report high sensitivity, reduced stress resilience and tire more easily

– Many report that family, peer and mental health support has helped them most

– Prematurity should be recognized as lifelong condition by health professionals

– Many express gratitude for their life and lead a good life

Abstract

Background

Adults born preterm face greater social, cognitive, mental and physical challenges in adulthood than their full term born peers according to longitudinal studies. In contrast, little is known about the lived experiences of adults born preterm.

Objective

The study investigates the lived experiences of adults born preterm across the life course and their views on health care support.

Methods

A qualitative study of 21 participants completing semi structured interviews analyzed through content analysis.

Results

Over half of adults born preterm report trauma and feeling of otherness since early childhood, high sensitivity to the environment, higher introversion/shyness and social or performance related anxiety. Over half reported that their parents were traumatized by the preterm birth and tried to compensate by overprotective parenting that, however, stifled them becoming independent. Over half experienced bullying victimization and many have continuing mental health problems. Overload by demands in school or work is a consistent theme that makes it hard to have the energy to socialize. Many received physical therapy in childhood and most had psychotherapy in adulthood. Many feel that health professionals trivialize the long-term effects of prematurity and most find support from their parents or peer network.

Conclusions

Prematurity has significantly shaped the life of adults born preterm. Greater awareness and recognition of the unique needs of this group are essential to provide adequate support. Existing services fail to address these needs highlighting an urgent demand for enhanced social and psychological services for educational and workplace settings.

Source: https://www.sciencedirect.com/science/article/pii/S0378378225000581

Magdalena Sroka, Content Writer   30.08.2024

Neonatology startups aim to take care of newborns, especially premature babies. These highly vulnerable beings require exceptional care, as even the smallest changes can significantly impact their health and development. Sometimes, even the experience and knowledge of doctors aren’t enough to save the little one. Therefore, in a world where technology plays an increasingly vital role, neonatology startups become invaluable support for medical care. By combining advanced technology with specialized knowledge, it is possible to provide newborns, particularly those born prematurely, with the best care and a chance for a healthy start in life.

Necessity is the mother of invention. When designing medical devices for newborns, it is crucial to remember that they will serve the most fragile patients. This often requires an unconventional and comprehensive approach to problem-solving. In this article, we present 10 neonatology startups, whose innovative ideas have the potential to transform this field of medicine.

Neonatology Startups Which Can Shape The Future

  1. AMNION LIFE
    Amnion Life is working on an advanced incubator called AmnioBed, designed to replicate the conditions inside the womb. The goal is to support the development of premature infants by regulating temperature, protecting the skin, and managing fluids. The device is intended to provide warmth, humidity, and protection to newborns in a way that prevents hypothermia and water loss.
  • PRAPELA
    Founded in 2018, Prapela is a startup developing a device that uses vibrations to improve breathing patterns and sleep in newborns. This is aimed at helping stabilize breathing and oxygenation, particularly in infants suffering from apnea, intermittent hypoxemia, and neonatal opioid withdrawal syndrome (NOWS).
  • PEDIAFEED
    PediaFeed’s mission is to improve the feeling process for newborns who struggle with it. The company is developing a special type of tube for neonatology and pediatric patients, which minimizes the risk of tube displacement. It is also designed to be easy to insert and remove both in hospitals and at home, while causing minimal discomfort to the baby. Without proper nutrition it is hard to provide a healthy development.
  • PREGANBIT PRO
    This startup has developed a telemedical device for monitoring fetal well-being through cardiotocography (CTG). The portable device enables remote diagnostics and allows regular monitoring of the health of both mother and baby, including fetal heart rate and uterine contractions. Thanks to this technology, women can perform tests at home between medical visits, with results being transmitted and analyzed by doctors. Pregnabit Pro aims to enhance early detection of potential risks, increase pregnancy safety, and provide peace of mind to expectant mothers.
  • ZOUNDREAM
    Zoundream utilizes artificial intelligence and sound recognition to develop technology that can identify and interpret different types of newborn’s cries. The technology not only focuses on distinguishing the baby’s needs (hunger, tiredness) but is also capable of alerting parents to potential pathologies or developmental disorders. Zoundream’s goal is to provide a tool that enables faster responses to an infant’s needs while offering better support for parents.
  • VENTORA
    Ventora aims to create a device that allows precise real-time monitoring of airway pressure in newborns. The company is working on a solution that improves the process of mechanical ventilation while minimizing the risk of complications associated with traditional ventilation. Additionally, Ventora’s device is designed to assist in selecting the best therapy for the youngest patients.
  • OTONEXUS
    OtoNexus is a startup developing a diagnostic device (in the form of an otoscope) to detect middle ear infections and distinguish their origins in children and infants. The technology behind it is based on ultrasound, which enables quick and precise diagnosis, helping doctors make informed treatment decisions. Moreover, this approach could reduce the number of misdiagnosed and unnecessary antibiotic treatments.
  • BAMBI MEDICAL
    Bambi Medical has developed a wireless system for monitoring the vital signs of newborns, such as breathing, pulse, and temperature. Their solution replaces traditional invasive methods that rely on wires and cables. This provides greater comfort and freedom of movement for preterm infants, and is also gentler on the skin. The device sends data to the NICU monitor and alarm system, collected via a silicone strap placed on the baby’s chest, and alerts when apnea occurs.
  • PREEMIE SENSOR
    Preemie Sensor is working on an advanced device to analyze breast milk for nutrient content, specifically measuring fat, protein, and caloric value. The sensor is paired with software, allowing for the monitoring and optimization of nutrient intake by babies. Ensuring proper nutrition reduces the likelihood of complications associated with prematurity.
  1. OWLET BABY CARE
    Owlet Baby Care is a startup specializing in the creation of smart devices for supervising the vital signs of infants, such as heart rate and blood oxygen levels. The data is collected via socks worn on the baby’s foot and then displayed in a mobile app. This technology provides continuous monitoring, giving parents peace of mind and a chance to feel less stressed and anxious.

Summary

The solutions developed by these neonatology startups not only make it easier to monitor and manage the health of the youngest patients, but also enhance the safety and comfort of both children and their parents. Although not all devices are available on the market yet. Some are awaiting certification, yet they offer hope for saving more premature babies. Thanks to these innovations, the future of neonatal care is becoming increasingly promising, bringing relief and peace of mind to families around the world. Good job startupers! 🫶

If you’re interested in supporting or helping shape the future of neonatal care, don’t hesitate and get in touch with us!

Source:https://consonance.tech/blog/top-10-neonatology-startups-medical-devices/

New evidence from a world-leading Victorian study following premature babies into adulthood shows that babies born before 28 weeks’ gestation are doing surprisingly well as young adults in their twenties.

In a paper published in PEDIATRICS, new data released from the Victorian Infant Collaborative Study (VICS) 1991-92 cohort reveals insights from the 25-year point of the long-term study.

The study, co-led by the Royal Women’s Hospital and Murdoch Children’s Research Institute (MCRI), shows that extremely prematurely born adults are just as likely to have completed secondary school, be in paid work, and be in a romantic relationship, compared to their peers born at full term.

Dr Lauren Pigdon, Research Officer at MCRI, analysed the new data from the unique Australian geographic cohort who were recruited at birth and followed for 25 years.

“A strength of this study is that it represents the earliest survivors of the post-surfactant era to navigate the transition into adulthood and fills a gap in knowledge,” Dr Pigdon said.

The introduction of exogenous surfactant in the early 1990s was a game changer in treating respiratory distress syndrome in newborn intensive care. Since then, there has been a dramatic rise in survival of infants born extremely preterm (younger than 28 weeks’ gestation) or with extremely low birthweight (less than 1000g).

With increased survival rates of even the tiniest babies, concerns arose that these tiny babies might have increased chances of health and developmental problems as children and adults. And that this may in turn have an impact on their transition into adult life. But is this true?

“Our data paints a positive and encouraging picture,” Dr Pigdon said. “There were minimal group differences in self-reported general interpersonal relationships, satisfaction with different aspects of life, and current smoking behaviour.”

However, Professor Jeanie Cheong, Consultant Neonatologist at the Women’s and Co-Group Leader of the Victorian Infant Brain Studies group at MCRI, said there were some differences between the groups.

“More adults born extremely preterm had their main income source from government financial assistance and more had not yet moved out of the parental home compared with their peers born full term,” Professor Cheong said.

“Data from the past 25 years has allowed us to look at how, over time, care has improved for Victoria’s youngest and most vulnerable patients,” Professor Cheong said.

“While survival rates have gone up, we now also know that these babies have the chance to become fully functional members of our society.

“Findings from our study are relevant when counselling families after their baby is born, to put into perspective what the long-term outcomes may mean for their child.”

Meet Duane:

Duane has certainly grown up since he was born extremely premature at 26 weeks’ gestation in March 1992. He weighed only 886 grams at birth.

“I was so tiny that my father’s wedding ring could fit all the way up my arm to my shoulder,” Duane remembers.

After a happy and normal childhood, Duane completed high school and became a competitive slalom skier, trying out for the Australian National Team. While he is an experienced downhill racer avoiding major obstacles, Duane faced a few health issues and injuries in his early 20s.

Duane is now a professional skiing and snowboard instructor. He follows the snow seasons and enjoys living and working abroad. He spent a long time in Austria, where he completed a sports diploma in Innsbruck, and now speaks German fluently.

Currently, Duane is keen for his torn ACL in the knee to heal. Then he plans to hit the slopes again and has offers to work in the USA, Japan and Europe.

Source:https://www.thewomens.org.au/news/prem-babies-become-capable-adults-when-grown-up-new-study-confirms

British Association of General Paediatrics

Bushra Rafique1, Hamid Idriss2, Rajesh Bagtharia3, Premilla Kollipara3, Geeta Subramanian3

Abstract

Objectives: Imperforate hymen (IH) is one of the most common obstructive congenital anomalies of the female genital tract. In this condition the hymen occludes the vaginal opening obstructing effluent discharge. Early diagnosis is possible, as new-born vaginal secretions stimulated by maternal oestrogen cause hymenal bulge, which is an abnormal finding.

The aim of this abstract is to highlight potentially missed opportunities for a neonatal diagnosis of IH. Delayed presentations are associated with significant morbidity such as chronic and severe abdominal pain, acute urinary retention, obstructive uropathy and endometriosis.

A full physical examination of the new-born within 72 hours after delivery is the required standard of the New-born and Infant Physical Examination Screening Programme (NIPE) and National Institute of clinical Excellence (NICE) quality standard 37, statement 7. This includes anogenital examination looking at patency of orifices at birth and at 6 weeks check.

Methods: We conducted a survey, using Survey Monkey portal with the objective to review current clinical practice in postnatal examination. The link was distributed via WhatsApp and email to paediatric trainees, general practice trainees and clinical fellows at our trust and London wide.

Responses were collected over 12 weeks. Following questions were asked looking for a yes or no response.

– Do you perform a genital examination in NIPE?

– Are you aware that NIPE recommends complete examination of the genitals to check for normal

  appearance and patency?

– Do you examine for hymenal opening in female babies by separating labia?

– Are you aware of the findings in imperforate hymen?

– Are you aware of the consequences of delayed diagnosis of imperforate hymen?

– Have you ever picked up an imperforate hymen in neonatal examination?

Results: Out of 220 doctors, 132 responded to the survey questions which resulted in a 60% response rate.87.8% performed a genital examination as a part of NIPE.78.7% were aware that normal patency and appearance of the genitals must be checked. Only 25.7% were examining hymenal opening by separating the labia majora and 35.6% were aware of the findings of IH. 7 out of 132 doctors had made a diagnosis in the neonatal examination. 60% were aware of consequences of a delayed diagnosis.

Conclusion: Our survey highlights insufficiencies in female new-born genital examination. There is a need for increased awareness amongst clinicians about this condition, as there exists a window of opportunity to make an early diagnosis and minimise suffering and morbidity.

Source: https://adc.bmj.com/content/108/Suppl_2/A103.2

Preemie Power: Global Voices, Lasting Impact

🌍 WARRIORS: A Global Conversation for Preemie Survivors

Premature birth doesn’t end at discharge—it echoes throughout life. As survivors, we are not defined by our early start—we are defined by our strength, our resilience, and the legacy we choose to build. From the NICU to adulthood, our stories carry both scars and strength. And now, more than ever, the world needs our voices.

The NW Warriors community reflects a growing global collective—of preemie survivors, families, clinicians, researchers, and advocates—who recognize that prematurity is not a condition left behind in infancy. It is a thread woven into identity, healthcare, and social equity across the lifespan. Whether you were born early, raised a NICU warrior, or cared for one—you are part of a movement greater than any diagnosis.


💥 Why the Warrior Movement Matters

Prematurity is not just a medical event—it’s a lifelong journey. Survivors grow into athletes, educators, scientists, artists, and caregivers. Some carry physical or emotional complications. Others carry memories of separation, struggle, or stigma. All carry a story of endurance.

This is a historic moment. For the first time, the world is witnessing a full generation of NICU survivors reaching adulthood in global numbers. Their experiences bring urgency to overlooked conversations—on trauma-informed care, long-term health, and identity. Their insights are reshaping how neonatal care is defined, not just in the early days, but across the life course.

We are not just patients.
We are architects of change.
We are storytellers.
We are warriors.


🌐 A Growing Global Dialogue

Across countries and cultures, NICU survivors and neonatal communities are coming together. We are asking new questions:

  • What does it mean to be born too soon—and grow into your power?
  • How can we center survivor experiences in clinical and policy conversations?
  • What role does memory, trauma, or advocacy play in healing?
  • How do we recognize preterm birth not just as a medical statistic, but as a lived reality that shapes lives and futures?

There is no single answer. But there is space for all of us here. Some find their power through writing, art, research, or mentorship. Others speak through quiet acts of presence and parenting. Some fight for structural change. Others simply want to be heard, held, and understood.

What unites us is this:
We were born into adversity—and we rise with intention.


🛡️ Rewriting the Narrative

As adults born preterm, or as families and clinicians who lived that journey, we are no longer hidden in hospital charts or lost in long-term data. We are here—visible, vocal, and unafraid to lead.

This movement doesn’t require permission. It begins in honest conversations, in shared memory, in reclaiming our stories from silence. It grows as we listen to each other, uplift survivor narratives, and demand that care systems honor the full trajectory of human life.

We are not asking for pity. We are offering power.
We are not defined by fragility. We are evidence of strength.
We are not waiting. We are rising.


Join the Conversation

Wherever you are—in policy, in practice, in healing, in hope—this conversation is yours. The warrior journey is not just about what we survived. It’s about what we build next.

#NWWarriors #PreemieStrong #GlobalNICU #BornToLead #EchoesOfPrematurity

With love, Kathryn

Building Community: Mohamed Anowar´s Youth Environment

The World Around

MEET THE YOUNG CLIMATE PRIZE COHORT! After Mohammed Anowar fled Myanmar with his family to a refugee camp in Bangladesh, he saw hundred of trees being cut down and decided to start a climate hub. The Community Climate Action Initiative aims to tackle pressing climate challenges such as heatwaves, landslides, and flooding through a multifaceted approach. The project includes a Tree Planting Campaign designed to combat deforestation and mitigate heat impacts by increasing local green cover. Complementing this, Climate Awareness Sessions are held to educate community members in the Kutupalong refugee camp about climate change and effective resilience strategies. Additionally, Youth Leadership Training is provided to equip young leaders with the skills needed to advocate for climate action and promote sustainable practices. The initiative is expected to yield a range of positive outcomes, including an improved local environment, heightened climate awareness, and a cadre of empowered youth spearheading climate resilience efforts in the community.

I Am We, A Book of Community

Renee Walters

Let’s Thrive, Compendiums, Navigation

Kuwait, officially the State of Kuwait, is a country in West Asia and the geopolitical region known as the Middle East. It is situated in the northern edge of the Arabian Peninsula at the tip of the Persian Gulf, bordering Iraq to the north and Saudi Arabia to the south. With a coastline of approximately 500 km (311 mi), Kuwait also shares a maritime border with Iran, across the Persian Gulf. Most of the country’s population reside in the urban agglomeration of Kuwait City, the capital and largest city. As of 2024, Kuwait has a population of 4.82 million, of which 1.53 million are Kuwaiti citizens while the remaining 3.29 million are foreign nationals from over 100 countries. Kuwait has the third largest foreign-born population in the world.

Like most other Arab states of the Persian Gulf, Kuwait is an emirate; the emir is the head of state and the ruling Al Sabah family dominates the country’s political system. Kuwait’s official state religion is Islam, specifically the Maliki school of Sunni Islam. Kuwait is a high-income economy, backed by the world’s sixth largest oil reserves.

Kuwait has a state-funded healthcare system, which provides treatment without charge to holders of a Kuwaiti passport. A public insurance scheme exists to provide healthcare to non-citizens. Private healthcare providers also run medical facilities in the country, available to members of their insurance schemes. As part of Kuwait Vision 2035, many new hospitals have opened.

Source: https://en.wikipedia.org/wiki/Kuwait

Published 15April 2024

Reem Al-SabahAbdullah Al-TaiarAli H. ZiyabSaeed Akhtar & Majeda S. Hammoud

Abstract

Background

Pregnant and postpartum women are at high risk of depression due to hormonal and biological changes. Antenatal depression is understudied compared to postpartum depression and its predictors remain highly controversial.

Aim

To estimate the prevalence of depressive symptoms during pregnancy and investigate factors associated with this condition including vitamin D, folate and Vitamin B12 among participants in the Kuwait Birth Study.

Methods

Data collection occurred as part of the Kuwait Birth Cohort Study in which pregnant women were recruited in the second and third trimester during antenatal care visits. Data on antenatal depression were collected using the Edinburgh Postnatal Depression Scale (EPDS), considering a score of ≥ 13 as an indicator of depression. Logistic regression was used to investigate factors associated with depressive symptoms in pregnant women.

Results

Of 1108 participants in the Kuwait Birth Cohort study, 1070(96.6%) completed the EPDS. The prevalence of depressive symptoms was 21.03%(95%CI:18.62–23.59%) and 17.85%(95%CI:15.60-20.28%) as indicated by an EPDS ≥ 13 and EPDS ≥ 14 respectively. In the multivariable analysis, passive smoking at home, experiencing stressful life events during pregnancy, and a lower level of vitamin B12 were identified as predisposing factors. Conversely, having desire for the pregnancy and consumption of fruits and vegetables were inversely associated with depressive symptoms.

Conclusion

Approximately, one fifth of pregnant women had depressive symptoms indicating the need to implement screening program for depression in pregnant women, a measure not systematically implemented in Kuwait. Specifically, screening efforts should focus on pregnant women with unintended pregnancies, exposure to passive smoking at home, and recent stressful live events.

Source: https://link.springer.com/article/10.1007/s44197-024-00223-7

18 July 2024

 | Technical document

Overview

Access to appropriate, affordable, effective, and safe health technologies is paramount, especially in low-resource settings, where burden of  non-communicable diseases adds on to the infectious diseases.   

NCDs account for a staggering 74% of global deaths, with 86% of premature fatalities occurring in resource-constrained regions. Cardiovascular diseases, cancers, chronic respiratory conditions, and diabetes collectively contribute to over 80% of these premature NCD-related deaths. Addressing this challenge requires targeted interventions and innovative solutions tailored to LMICs.

The 2024 Compendium of Innovative Health Technologies for low-resource settings includes commercially available solutions and prototypes. This 7th edition showcases 21 technologies, each with a full assessment. It also includes updates for technologies previously featured in previous compendia editions. Assessments include clinical aspects, relation to WHO technical specifications, regulatory compliance, criteria on health technology assessment and health technology management, local production viability, and intellectual property considerations.

Beyond presenting these innovations, the Compendium serves as a catalyst for increased interaction among stakeholders—ministries of health, procurement officers, donors, developers, biomedical engineers, clinicians, and users. By providing evidence-based assessments and relevant information, it aims to drive use of innovative health technology and expand global access, particularly for low-resource settings for populations in need.

WHO Team

Access to Assistive Technology and Medical Devices (ATM), Access to Medicines and Health Products (MHP), Health Product Policy and Standards (HPS), Medical Devices and Diagnostics (MDD)

Editors World Health Organization ISBN: 978-92-4-009521-2

Source:https://www.who.int/publications/i/item/9789240095212

Humood – Kun Anta | حمود الخضر – كن أنت | Official Music Video

Humood Othman AlKhudher, commonly known as Humood Alkhudher, is a Kuwaiti singer and music producer.

* English Translation https://youtu.be/9JPaGW21Rzg

Benjamin Hopkins, DO, Andrew Hopper, MD

Welcome back to another installment. My name is Benjamin Hopkins, and I am currently a post-grad year one pediatric resident at the University of California, San Francisco–Fresno. When ‘I grow up,’ I want to be a Neonatologist. Look at previous months’ journals for my earlier articles and follow along with this column as I navigate my way to becoming a neonatologist.

 I am just over halfway done with my residency intern year. I have recently completed a rotation through inpatient wards, getting to see a variety of ages and patient presentations, along with consults to other specialties helping care for pediatric patients. I have been privileged to work closely with my fellow residents and supervising attendings who tailor their care for each patient they see.

This month, I had the privilege to talk with Dr. Andy Hopper, Chair of the LLU School of Medicine Promotions Committee and professor of pediatrics and neonatologist at Loma Linda University. We discussed the characteristics of an outstanding neonatologist, how he became a neonatologist, what a resident should prioritize, and some of his current interests and research.

What qualities are most essential to excel as a neonatologist?

 First, you’ve got to like working with babies and the excitement of thinking about and caring for a young patient who has their entire life in front of them. Your interaction with them will allow them to achieve health so they can have that life in front of them. That’s always the prime directive for me when I’m looking to look after a baby. Can we get these kids through whatever problem they’re having so they can go home and live their best life? You have to have a passion for the patient population that you’re going to serve.

That goes for any specialty, but especially for the specialties that are critical care, where it takes more of an emotional burden from time to time and with the care and investment you have towards that patient population when there is, you know, loss or things don’t go the way we want them to and just making sure like we have support and things like that for those areas.

You’re also the doctor to the parents. Most parents, when they landed in the NICU, never planned for this to be the outcome. They’re immediately thrown into this rather harsh environment of bells, whistles, monitors, and people doing things that they’re not sure what they’re doing for their child, but it’s pretty scary. As the neonatologist, this is one of the areas that you have to work with them, and you’re educating them. We’re also trying to give them peace, and you’ll help them get through this. It is a team effort in our specialty, but the physician and the parents have to collaborate to make it work.

We have two daughters, and when I was a pediatric resident, my first daughter was born at 33 weeks. I don’t think we were particularly freaking out about that, but she was preterm. Then, my younger daughter was born when I was in my neonatology fellowship at Stanford. She was 27 weeks, and back in 1982, the year she was born, 28 weeks was considered the limit of viability; they’re different now, and the numbers have come down dramatically. However, I remember my faculty members saying that if she is not too aggressive, we may not want to go all out to resuscitate her because they were thinking the worst. Fortunately, she came out, and she was vigorous. Four hours out, she reached up and pulled her ET tube out; the rest is history.

Another beneficial quality in intensive care is when you’re looking at things to map out what you think will happen in the next 12 to 24 hours; what’s the worst-case scenario, and am I ready to deal with that? When they don’t happen, you’re thrilled, but when they do happen, you’re not caught off guard. I was the director of the ECMO program at Loma Linda for 10 years, and it was always determining who we would put on ECMO and when to do it. That’s where you have to sit down and map out what would be the things that would make me push towards putting this kid on ECMO. It’s an approach that uses differential and critical thinking so that you can be proactive rather than reactive. It’s not a good idea to be catching up with a kid in a code where you thought four hours ago we should have picked up on this, and we could have prevented this.

An excellent bedside nurse will make your night much better because you trust their assessment; I’ve had nurses call me and say, “I was here yesterday. I can’t put my finger on it today, but something’s not right with this kid.” That’s all I need to hear because then I will look carefully to say, what’s different? Is it a heart rate change since the kid has early onset sepsis, or is this a baby with a cardiac lesion that’s ductal dependent, and maybe the duct is closing? Very few things are crash-and-burn type things, but you need to be ready to recognize when those things are happening to connect on that.

When I was in training, we had fewer options; now, there are five or six different kinds of mechanical ventilation, and you use them for various reasons. When I was in training, you either mechanically ventilated them with a pressure-limited time cycle ventilator or didn’t. Those were the times when faculty were home at night, and you were there on the front lines. Part of that, I’m not saying it was always a good thing, but you were the person who had to make those decisions at 2 a.m.; there wasn’t anybody else around.

I remember, as a first-year fellow at Stanford, when I would call the attending and say, “I’ve got this sick kid with meconium aspiration and pulmonary hypertension; these are the things I’m doing. This is what I’m thinking about.” I remember the attending said, “Wow, that kid sounds sick. Good luck. I’ll see you tomorrow.” Then you think, “You know what, this is on me.” They don’t do that anymore, and I’m not saying that was a good role model of the time; it was just different in those days.

What caused you to pursue a career in neonatology?

I can tell you precisely what happened when I was doing my pediatric rotation as a third-year medical student, and I was assigned to a NICU. I went to the University of Texas in San Antonio, and we were down at a county hospital. The intern became ill and was off. The senior resident and attending said, “Okay, you’re a third year medical student; you’re now the intern.” I got promoted very quickly, which was scary, but it was also exciting to be given that responsibility. I had a lot of guidance; that wasn’t something I just did, but I enjoyed the mix of doing procedures, putting in lines, being able to intubate, and putting in chest tubes. Plus, you’re the doctor, the whole doctor, not just the orthopedist or the hematologist. You’re the doctor, covering everything for this unique population. I wouldn’t do well in a clinic setting because I like the adrenaline rush of helping a kid when you don’t know which way things are going. I like the excitement of inpatient medicine and the ability to be that detective to figure out the most likely thing that’s going on. I did my neonatal training at Stanford, but then I was in a quandary about whether I wanted to do PICU. I had the option of going to CHOP, but the way they did their PICU training was they had you go through anesthesia training and then, on top of that, to PICU. After three years of residency and neonatology, my family asked if I was serious about another five or six years. I then ended up going to UCSF to do an additional year there in the old hospital in Parnassus, where we had a Peds ICU on  the sixth floor, and we had cardiac and post-cardiac recovery.

As the PICU fellow, the cardiac surgeon would come in, do an extensive surgery, and it’s five o’clock, and he’s telling you about all the horrible things that could happen after the surgery, and then, his parting words are, “don’t let this kid die.” That was before we had good monitoring or many medications. We had isoproterenol and epinephrine, and it was a juggling act, where you were at the bedside all night trying to keep this kid in bounds so that the following day, you could sign out to the next person; the whole mindset was to keep him alive till 8.05. There was much fear back then; it’s much better now, but it was through fear and intimidation for some of those encounters.

What do you now know that you wish you knew before going into neonatology?

That’s a good question; if I replayed my career, I was focused on clinical stuff. When I was a fellow at Stanford, we had a rotation where you were on service for an entire month, morning and night, seven days a week; you would rely on your colleagues to support you. I would have liked to have had an opportunity to focus on research and academics for a year after the clinical training. If I could replay what I did again now, I would have taken that extra year in pulmonology or neurology because those are the things I’m passionate about. You learn on the job; at the time, I didn’t think I could put my family through that. It’s not always apparent that that’s something I could have done. But if I could replay that, I would have tried to do an extra year or two. Many people now have MD/PhD degrees, which is fine. I didn’t need a PhD, but an additional year of training in working with people would have been a way to solidify a more substantial research career for me.

What are you currently working on? I’m working part-time now and fill in when people need help. We have a fellowship program, and I have three fellows I mentor and help with their SOC projects required for fellowship. I miss bedside teaching, but I give lectures and didactics for fellows. We have a couple of new faculty members that I’m also trying to work with, and I am trying to educate our nurses because you need to have excellent nurses. That’s what makes a unit good: good nurses and RTs. It was much different then, but one of the reasons you could survive a crazy month of fellowship was because you had RTs that were on to help you, and they were very professional in what they were doing. Fostering teamwork and education is something I still enjoy.

I am still particularly energized when I go to a good research meeting. It excites you; I’m jealous of guys like you who are beginning their careers because I can only imagine what new neonatology will be like in 10 years. You’ll also have all kinds of genetic capabilities to make diagnoses and genetic-based treatments. Neonatology is a relatively new field with new treatments. My career has been almost 40 years, and when I started, we didn’t have surfactants or artificial surfactants. We barely had TPN, which was adult TPN watered down for babies. We didn’t have nitric oxide treatment or neonatal ECMO. All these things resulted from people doing research and wanting to improve the outcome of kids.

Even in a unit like Kaiser, the way that they do their research may be less of a bench-top approach, but they do some incredible QI work that helps develop protocols. We have a small baby unit with extremely preterm kids, and everything is driven by protocol. However, the idea is that you’re constantly refining and evaluating those protocols to see if they’re the best. You’re analyzing, making changes, and evaluating the changes to see if that makes things better. It is a good way to do medicine in general, and neonatology thrives on that approach.

What would you encourage a future neonatologist to prioritize and be involved in? I

t’s a little different now; people come into the fellowship, and they have been doing neonatal electives, and that is to their advantage is to have a little bit of familiarity with neonatology so you’re not going to freak out. We have a massive unit with high acuity, which can be overwhelming for somebody with no neonatal background before the pediatric residency program. I’m not saying it’s right or not, but residents in pediatrics used to have six months of neonatology. Now that’s been watered down by the ACGME, you only have three months. You’re coming into a fellowship with a significantly different background than we did before. You’ll learn to be an outstanding neonatologist.

What you want to do now is take advantage of some ancillary subspecialties like cardiology. I would also consider doing a PICU elective because many of these babies will graduate and go to the PICU. We have babies in our unit in Loma Linda that are seven or eight months old. They’re no longer neonates, so having that experience is beneficial. Neurology is another area where there’s so much of it in neonatology that a good neurology background, teaming up with a neonatal neurologist who cares about those babies, can show you how to do an appropriate, careful physical and neurologic exam. Take advantage of that stuff because you don’t get a chance to do that later on.

Having been in this field for this long, I have a couple of things I did that I have enjoyed: working at Loma Linda and the friendships of my colleagues—I value what they do. They’re good people, and our group is collegial. It’s stressful, so the ability to work with people who care for you makes a big difference. You may not be close buddies with them all, but they respect you, and you respect them. An example is if you were sick and you couldn’t do your call, I can tell you my experience has been if I call in and say, “Hey, you know, I’m sick this evening. Can anybody take my call?” Usually, within 10 minutes, somebody says, “Yeah, I’ll do your call.” That kind of support makes a big difference; people have your back, which is nice; generally, it’s a great specialty.

Developmental Care

The majority of babies born prematurely do well and develop normally, however, the risk of developmental problems is considerably higher than in the rest of the  population and the risk increases proportionately with the degree of prematurity.  About half of the infants born preterm (before 28 weeks) will require some form of specialist help when they start school: for those born between 28 and 32 weeks this figure decreases to 30%. The range of problems is wide and they often overlap or present in clusters so that a child may have a complex developmental profile.

Problems include:

  • Altered pain perception
  • Anxiety and Depression
  • Attachment disorders
  • Attention deficit disorder
  • Autism
  • Behavioural problems
  • Cerebral Palsy
  • Cognitive deficits
  • Co-ordination disorders
  • Executive Functions
  • Feeding problems
  • Hearing loss
  • Hyperactivity (related to attention deficit)
  • Language delay
  • Memory
  • Perceptual motor problems
  • Sensory Processing
  • Social isolation
  • Specific learning deficits (e.g maths)
  • Timidity/withdrawal
  • Visual deficits

Developmental care improves the potential of infants who are disadvantaged by premature birth or adverse perinatal events by supplementing and humanizing high tech medical care.

In many units the focus of developmental care is Family Centered Care (FCC). In FCC units the importance of the family as the most significant influence on the infant’s well being and development is underlined and parents and healthcare professionals work in partnership, with open communication. FCC places the infant firmly in the context of the family, acknowledging that the family is the most constant influence on an infant’s development. Adjusting to parenting in the NICU following a traumatic birth experience or pre-term delivery can be difficult. Assisting mothers and fathers adapt to their parenting roles in the NICU is part of developmental care. FCC is sensitive to the nature of personal, social and cultural influences upon each family.

Another view of developmental care focuses on the NICU environment, particularly in adapting the physical environment to provide appropriate sensory stimulation, to protect the baby from stress and to promote sleep. The immature central nervous system of the neonate is in a critical period of rapid growth and increasing specialization, all designed to take place in quite a different settling e.g. the mothers womb. The NICU is not the optimal sensory environment for preterm and newborn development. The infants’ behavioural cues are the best guide to whether or not the environment (sensory, temporal and social) is conducive to the current development needs of the infant and the environment needs to be organized in such a way to meet the infant’s developmental expectations.

Individualised developmental care is care that is responsive to the ever changing needs of the infant. Behavioural cues help us understand the infant’s competency, strengths, sensitivity, vulnerability and developmental goals. The leading mode of individualized developmental care is the NIDCAP- Newborn Individualised Developmental Care and Assessment Programme. Many of the NICUs in Ireland have NIDCAP trained professionals. To learn more about NIDCAP visit www.nidcap.org.

MEETING THE NEEDS OF THE NEONATE

Physiological stability is important for brain development. The way that the NICU environment, light and noise, the timing of events, handling and positioning can have a positive or negative effect on heart beat, respiratory pattern, oxygenation, intracranial pressure, temperature and oxygen consumption.

Minimising the pain and stress of the neonate because of the long term impact on behaviour and sensory processing is an important aspect of developmental care. Many benign routine aspects of neonatal care such as nappy change and bathing can be stressful for the premature infant and developmental care ensures that such procedures are adapted to minimize distress to the infant.

Protecting Sleep. REM or active sleep is associated with brain development whilst quiet sleep is associated with growth. Sleep protection relies on the caregiver’s ability to distinguish different states of arousal.

Enhanced nutrition. Developmental care can support nutrition by helping the infant to conserve energy and to digest food in addition to providing effective support for breast feeding.

Appropriate sensory experience.  Certain kinds of stimulation are required to trigger normal development whilst inappropriate stimulation that is out of phase with developmental brain expectation can result in some systems failing to develop. By observing the infants behaviour the caregiver can learn which sensory stimulations are appropriate.

Parenting and attachment. Parenting style has a significant impact on development and learning how their infant communicates is an integral component of developmental care for families. The high tech environment of the NICU can have an adverse impact upon attachment. Developmental care facilitates this attachment process and allows the parent/infant relationship to develop, supports the parents as they get to know their infant and grows their confidence as primary caregivers.

Protecting postural development. Development care can protect infants from the acquired postural deformities that can result from long periods of lying flat on a bed (e.g flat head syndrome), retracted shoulders (e.g.arms held in the W position), legs abducted and externally rotated (e.g. frog leg position), and torticollis. Adequate positioning support combined with frequent position changes can counteract these deformities which can otherwise delay the acquisition of skills such as sitting and walking, self comforting, feeding and fine motor co-ordination. 

EXAMPLES OF DEFENSIVE/AVOIDANCE BEHAVIOUR IN THE NEONATE

Agitation Arching Bracing position of legs Colour changes Coughing Crying Diffuse states Eye floating Finger splay Fussing Glazed look

Grimmacing Hiccoughs High guard hands Jerky movement Limp or stiff posture Looking away Mouth hanging open Pauses in breathing Positioning Salute Sighing

Sneezing Staring Sudden movement Straining Squirming Tongue thrusting Tremulousness Twitching Whimpering Yawning

EXAMPLES OF COPING/APPROACH BEHAVIOUR IN THE NEONATE

Easily consoled Frowning Grasping Healthy Colour Holding on Hands to mouth

Hands clasped together
Moving hand to face
One foot clasping the other
Orientation to voice or sound
Perky attentive expression
Relaxed open face

Responsive smiling Restful sleep Smooth movements Soft flexed position Settles self Snuggling when held

SENSORY DEVELOPMENT

The senses mature in the following order:

  • Touch
  • Vestibular (response to movement in space)
  • Chemosensory (taste and smell)
  • Hearing
  • Vision

TOUCH

Different kinds of touch activate different sensory receptors in the skin. Light, feathery touching can be arousing and preterm infants may react irritably. Gentle deep pressure touch is more soothing for the infant. Infants may seek comfort through tactile self-regulatory strategies such as grasping and bracing. Boundaries (nesting) , wrapping and cradling the feet, head or body with still hands have an organizing input.

VESTIBULAR

The vestibular apparatus located in the inner ear responds to movement through space and the effects of gravity. Vestibular input is thought to promote maturation of the other systems.
The movement experienced by infants in the NICU is often sudden and unpredictable and their fragile vestibular systems can become easily overloaded. It is important that infants are prepared for position changes by providing adequate support and moving slowly and gently.

TASTE AND SMELL

The infant is exposed to many noxious smells in the NICU. Staff should minimize unpleasant olfactory experiences e.g alcohol wipes, plaster removers, strong perfume, strong hand creams etc, deliver medications separately from milk, and facilitate positive olfactory experiences by encouraging close contact with parents.
Taste may be affected by intrusive oral experience e.g. prolonged use of endotracheal tube and this may contribute to later feeding difficulties.

HEARING

Protecting sleep is an important factor in auditory development and the sound environment of the NICU should be monitored to reduce background noise (e.g bins, phones, placing objects on the incubator). Background noise should be kept very quiet, average max. 45 decibels per hour as noise makes it difficult for the infant to hear and respond to the human voice. Parents should be encouraged to speak softly with their infant.

VISION

REM sleep is essential for development of the visual system. As the eyelids of the neonate are thin and let considerable light through, the ambient lighting of the NICU should be adapted e.g placing incubator covers over the isolettes. Pupil contraction reflex is only effective from 32 weeks and the infant is unable to regulate light entering the eye before then.

INTEROCEPTION

Interoception is a sense that allows us to notice internal body signals like a growling stomach, racing heart, tense muscles or full bladder. Our brain uses these body signals as clues to our emotions. Research shows that the ability to clearly notice body signals is linked to the ability to identify and manage the following emotions and more:

Hunger Tiredness Focus Fullness/Thirst Need for Bathroom Calm Pain Anger Boredom Illness Anxiety Sadness Body Temperature Distraction

ATTENTION AND INTERACTION

  • Up to 32 weeks   Infants are easily overloaded by sensory experience.

The snuggle is real: Banners in the hospital hallway remind the families of premature babies of the importance of kangaroo care.

Helen Adams    May 17, 2024

Maggie Gambon hadn’t had a baby shower yet or even bought maternity clothes. The lawyer-turned-marketer was still pretty far away from her due date. But her son Eli was arriving anyway – born March 8. “He weighed 1 pound, 11 ounces,” his mom said.

She’d known she was at risk for premature birth. Gambon had preeclampsia, “a life-threatening hypertensive disorder,” according to the Preeclampsia Foundation. It can lead to “a rapid rise in blood pressure that can lead to seizure, stroke, multiple organ failure and even death of the mother and/or baby,” the foundation’s website says.

“My OB at East Cooper sent me over here to MUSC for observation because of the preeclampsia. And then, while I was here for observation, pulmonary edema set in.” Pulmonary edema, which means too much fluid in the lungs, is life-threatening. That was a signal that her baby had to be born.

“They did an emergency C-section,” Gambon said of her cesarean section, a procedure that may have saved both her life and her baby’s.

 Nurse Kara St Laurent, left, and respiratory therapist Rebecca Barbrey help Maggie Gambon settle in to snuggle with Eli. She’ll stay there for two or three hours at a time.

Eli was rushed to the neonatal intensive care unit at the MUSC Shawn Jenkins Children’s Hospital, where he’s had round-the-clock care ever since. His tiny body still needs time to grow before he’ll be big and healthy enough to go home to Summerville with his mom and dad.

Gambon or her husband visit every day. And they’ve learned something special that MUSC Children’s Health doctors and nurses know can help Eli thrive. Julie Ross, M.D., a neonatal specialist at the hospital, said it’s called kangaroo care or skin-to-skin care. Kangaroo, because kangaroo babies rush into their mothers’ pouches after birth, then stay there for months, feeding on their mothers’ milk and growing.

Whatever you call it, human babies need physical contact with a parent’s skin every day if possible. “Our goal is for parents to be able to do skin-to-skin care with their baby as soon as possible after delivery, ideally within the first 72 hours of life if they’re able. And then continuing that up to twice a day for as long as they would like to do that,” Ross said.

“Kangaroo care has significant benefits for preterm babies, including improved neurodevelopment. There are situations where skin-to-skin care can be challenging, based on how sick babies are at times, but we really try everything possible to make sure that it can happen, and when it’s not possible, we encourage parental contact in other ways, such as hand hugs and gentle touch during cares.”

It can be a little scary for the parents of a fragile-looking preemie like Eli. “It’s kind of a big production,” his mother said.

A nurse and a respiratory therapist are on hand to set them up for kangaroo care. Since Eli’s hooked up to machines, they slowly move him toward the bottom of his hospital bed. There, his mother leans over to pick him up carefully. They help her ease into a chair with her baby, where mother and son rest peacefully. She and her husband have seen what a difference it makes.

“We noticed that the days that we did kangaroo, he seemed to have a marked difference in how well he was doing. So we committed to doing it every day. Either I or my husband will be here to kangaroo with him,” Gambon said.

“And I don’t know if the research says if there’s any difference between mom or dad holding them or just human contact. We committed to ensuring he’s going to get skin to skin with one of us every single day, and he’s been doing so much better since we did.”

There’s plenty of science to back up the practice of skin-to-skin care. For example, the World Health Organization said research shows that it “significantly improves a premature or low-birthweight baby’s chances of survival.” It also can save up to 150,000 lives a year, according to the organization.

 Delisa Abson smiles as her son, Braxton Abson grips her hand in the neonatal intensive care unit at the MUSC Shawn Jenkins Children’s Hospital. She regularly bonds with him through skin-to-skin contact.

Families in the MUSC Shawn Jenkins Children’s Hospital see banners in the hallways promoting the importance of kangaroo care. Delisa Abson, another mother whose baby needs a little time in the hospital before he’ll be healthy enough to go home, makes it part of her routine, too.

Ross, the neonatal specialist, described some of kangaroo care’s other benefits. “It helps with the baby’s temperature control; reduces stress, including decreasing pain during procedures; increases weight gain; and improves overall stability in heart rate and oxygen saturations. It benefits mom as well in terms of breast milk production and can decrease parental stress and support bonding. The body responds to the baby’s closeness.”

Gambon said she can feel it happening during and after skin-to-skin time with Eli. “Every time I put him back in bed, my breasts feel like they’re gonna explode.” That may not sound like a great feeling, but she’s thrilled to be able to supply that milk to her son. A nurse noticed he’s getting baby fat rolls – a good sign for a little boy who’s still weeks from his original due date.

And the connection Gambon has been able to solidify with Eli while still in the hospital has been remarkable. “It helped tremendously with bonding early on. He was born at 26 weeks gestation, so, initially, I kind of felt like, ‘Man, what just happened to me? Did I have a baby?’ It felt kind of like a mirage. But getting to have skin to skin with him and smell him and feel him … it’s real. It made it real.”

Source: https://web.musc.edu/about/news-center/2024/05/17/how-kangaroo-care-is-helping-tiny-preemies-grow-and-bond-with-parents

Preparing to welcome a new baby home is a time of joy—and stress!—under the most ideal circumstances. But if your baby arrived early and is being cared for in the NICU, bringing them home comes with all of that joy — and a double helping of the stress.

Bringing a preemie home from the NICU requires some extra preparation so you can give your new baby the care they’ll need to grow and thrive. As you make your plans for your preemie’s homecoming, having the right gear and supplies can help to ease the transition and make it through the early days.

This guide can help you get ready, with a comprehensive checklist of preemie must-haves.

What do you do when baby comes home from NICU?

Hospital NICU’s are fully stocked with all the supplies and gear that are needed to care for premature babies. To make the transition from caring for your baby in the NICU to caring for your baby at home as easy as possible, it helps to make sure you have all the preemie must-haves on hand before your baby comes home. This checklist of preemie essentials can help you get organized and get ready: 

  • Diapers and Wipes: Most preemies require special-sized diapers so be sure to stock up on the sizes you need. 
  • Bottles: Ask the NICU staff about the best nipple types and bottles for your baby. 
  • Clothing: Newborn-sized clothing will likely be too big for your baby. You’ll need some cozy preemie-sized onesies and pajamas that fit your baby. 
  • Swaddle Blankets and Sleep Sacks: Keeping premature babies warm at home is essential, and swaddling can help your baby sleep longer and better. Ask the NICU nurses to help you perfect your swaddling techniques so your baby can get the rest they need.   
  • Sleeping Arrangements: The American Academy of Pediatrics recommends that babies sleep in a crib or bassinet with a firm mattress in their parents’ room for at least the first six months of their life. The MamaRoo Sleep® Bassinet offers a firm, flat sleeping surface and adjustable legs, making it a great preemie bassinet that you can use until your baby is 25 pounds or can push up on their arms and legs. Plus it has over 100 motion, speed, and sound combinations that can be tailored to baby’s needs.  
  • Baby Thermometer: A thermometer is an important part of premature baby care and health monitoring. Choose a thermometer that’s suitable for newborns. 
  • Bathtub: Make bath time easier with a tub designed for infants that can also double as a preemie essential, like the Cleanwater™ Tub—it comes with a newborn insert to cradle your preemie safely and is designed to grow with your baby. 
  • Nasal Aspirator: A basic bulb syringe or a device that helps to suction mucus from your baby’s nose, making it easier for them to breathe, suck, and eat. 
  • Medication Management: If your baby needs medications, consult with your NICU team to make sure you have all the medical supplies and prescriptions you need on hand to continue premature baby care at home.

The extended “bringing preemie home” checklist

Beyond these preemie must-haves, you may want some other items that can make premature baby care a little easier:

  • Baby Monitor: Being able to keep an eye (and an ear) on your baby can give you some added peace of mind when you’re not in the same room. 
  • Baby Swing: A baby swing can be a familiar and safe space for your preemie when your tired arms need a break. More than 600 hospital NICUs across the country trust the MamaRoo® Multi-Motion Baby Swing™ to comfort the tiny babies in their care. Want to learn more about this preemie must-have? A NICU nurse explains why its parent-inspired motions keep preemies content and comfortable. 
  • Skin-to-Skin Gear: A specially made wrap or shirt makes it easy to give your baby the beneficial skin-to-skin contact they need.

Do NICU babies have a hard time adjusting to home?

Bringing a  preemie home from the NICU might feel overwhelming, but there are ways to make it a little easier on you.

Use your time in the NICU to gain the confidence you need to care for your baby; the nurses can teach you how to care for preemies and provide any special care your baby needs, including soothing techniques that will calm your baby and help you all settle more easily into a routine. You can also turn to preemie essentials made to soothe babies.

As you and your baby adjust to life at home, it’s vital to establish a support system to help you cope with the sometimes overwhelming responsibilities and emotions that go along with premature baby care. Your partner, parents, relatives, and friends are probably eager to pitch in and help in whatever ways they can—providing meals, helping with household chores, or coming over to hold the baby so you can shower, eat, or just get a little break.

You may also want to seek out a support group that connects you with other parents whose babies were in the NICU to share stories about preemie parenting, trade tips, and get comfort from other new parents who are having similar experiences. A pediatrician who is experienced with caring for preterm babies can help you find a local or online group and can also direct you to any specialists you might need as your baby grows.

Get ready to bring your baby home

Bringing your preemie home from the NICUE is a time that’s both joyful and challenging for your family—but the right tools can help. Preemie must-haves like the  MamaRoo® Multi-Motion Baby Swing™—which is used and trusted in more than 600 NICUs in the US—can help you re-create the nurturing environment of the NICU so your preemie can flourish.

And when you purchase these products for your baby, you’re helping –https://www.4moms.com/blogs/the-bib/12-preemie-must-haves-for-bringing-your-preemie-baby-home

Surviving Residency: Insider Secrets from a Chief Resident (Don’t Be THAT Intern!) #residency

     Prerak Juthani

2,242 views Jan 20, 2024

I had the pleasure of interviewing one of my chief residents about the tips that he would give himself if he were to do residency again. What he shared with me was beyond inspiring. The individual who I had the pleasure of interviewing was Peter Konyn. He graduated from UC Davis with a B.S. in Pharmaceutical Chemistry, as part of the University Honors Program. He then enrolled at UCLA for medical school, where he graduated at the top of his class, including earning induction into both the AOA Honors Society and the Gold Humanism Honors Society. I think that the tips he shares here are things that I still think about to this day!

Mandatory Reporting in the NICU: Supporting Families with Substance Abuse

Wednesday Jan 08, 2025

In this episode, we explore the intersection of neonatal care, substance use disorders, and mandatory child protective services (CPS) reporting, particularly in the NICU setting. NICU nurses and advanced practice professionals often focus on managing neonatal withdrawal and supporting the baby’s immediate needs, but what happens when mandatory reporting policies impact the delicate relationship between mother and infant? How do these policies affect long-term bonding and family-centered care?

We’re joined by Dr. Kelly McGlothen-Bell, a nursing scientist and expert in reproductive justice and health equity, who brings a wealth of knowledge on the complexities of caring for families affected by substance use during pregnancy. Dr. McGlothen-Bell discusses the stigma surrounding substance use, the emotional and systemic challenges mothers face, and the significant role of CPS interventions, which can create barriers to consistent visitation and strain the mother-infant bond. She also highlights the need for a more integrated, compassionate approach to care, ensuring that families receive necessary services without punitive actions such as child removal when not warranted.

With 31% of births occurring in states with mandatory reporting laws, and nearly half of child removals linked to substance use, understanding the policies at play is critical for healthcare providers. Dr. McGlothen-Bell emphasizes the importance of understanding these policies, advocating for more equitable care, and addressing racial disparities within the child welfare system. The episode also explores how CPS involvement can affect long-term outcomes for families, including stress, relapse, and strained recovery.

Listeners will gain insights into the importance of clear communication, prenatal care, and the role of nurses and social workers in advocating for families both within and outside the NICU. We discuss how healthcare professionals can balance mandatory reporting with compassionate care, ensuring that families navigate the complexities of recovery, legal systems, and childcare with dignity and respect.

This episode is a must-listen for NICU nurses, social workers, and anyone working at the intersection of maternal and neonatal care, as well as those interested in the policy and systemic factors that influence family outcomes in the NICU and beyond.

Source:https://nanncast.podbean.com/e/mandatory-reporting-in-the-nicu-supporting-families-with-substance-abuse/?token=ff2bab9aaa8cb066c48cb2b67b2cc920

The Incubator Channel    Oct 28, 2024

Ben and Daphna speak with Dr. Melissa House, Chavis Patterson, and Kathleen Stanton about creating a “psychologically-minded” NICU, where mental health support is essential for families, staff, and patients alike. They discuss the upcoming CHNC workshop, “Combating Distress, Dissatisfaction, and Discord,” which introduces trauma-informed care, caregiver support, and the impact of chronic stress on NICU staff and families. Listen in as they share insights on fostering empathy, self-awareness, and a supportive NICU culture, helping caregivers bring their best selves to the bedside.

Zsuzsanna Nagy, MDMahmoud Obeidat, MDVanda Máté, MD; et al Rita Nagy, MD, PhDEmese Szántó, MDDániel Sándor Veres, PhDTamás Kói, PhDPéter Hegyi, MD, DSc9Gréta Szilvia Major, MD

JAMA Pediatr. Published online December 30, 2024. doi:10.1001/jamapediatrics.2024.5998

Key Points

Question  What are the occurrence and temporal distribution of intraventricular hemorrhage (IVH) in very preterm neonates during the first week of life?

Findings  This systematic review and meta-analysis including 64 studies and 9633 preterm neonates found that the overall prevalence of IVH in preterm neonates has not changed significantly over the past 20 to 40 years. However, IVH earlier than 6 hours of life has been reduced to less than 10% of all IVH events.

Meaning  These data suggest that although preventive measures have been implemented, IVH has occurred later but its prevalence has not been reduced.

Abstract

Importance  Intraventricular hemorrhage (IVH) has been described to typically occur during the early hours of life (HOL); however, the exact time of onset is still unknown.

Objective  To investigate the temporal distribution of IVH reported in very preterm neonates.

Data Sources  PubMed, Embase, Cochrane Library, and Web of Science were searched on May 9, 2024.

Study Selection  Articles were selected in which at least 2 cranial ultrasonographic examinations were performed in the first week of life to diagnose IVH. Studies with only outborn preterm neonates were excluded.

Data Extraction And Synthesis  Data were extracted independently by 3 reviewers. A random-effects model was applied. This study is reported following the Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) reporting guideline. The Quality in Prognostic Studies 2 tool was used to assess the risk of bias.

Main Outcomes And Measures  The overall occurrence of any grade IVH and severe IVH among preterm infants was calculated along with a 95% CI. The temporal distribution of the onset of IVH was analyzed by pooling the time windows 0 to 6, 0 to 12, 0 to 24, 0 to 48, and 0 to 72 HOL. A subgroup analysis was conducted using studies published before and after 2007 to allow comparison with the results of a previous meta-analysis.

Results  A total of 21 567 records were identified, of which 64 studies and data from 9633 preterm infants were eligible. The overall rate of IVH did not decrease significantly before vs after 2007 (36%; 95% CI, 30%-42% vs 31%; 95% CI, 25%-36%), nor did severe IVH (10%; 95% CI, 7%-13% vs 11%; 95% CI, 8%-14%). The proportion of very early IVH (up to 6 HOL) after 2007 was 9% (95% CI, 3%-23%), which was 4 times lower than before 2007 (35%; 95% CI, 24%-48%). IVH up to 24 HOL before and after 2007 was 44% (95% CI, 31%-58%) and 25% (95% CI, 15%-39%) and up to 48 HOL was 82% (95% CI, 65%-92%) and 50% (95% CI, 34%-66%), respectively.

Conclusion And Relevance  This systematic review and meta-analysis found that the overall prevalence of IVH in preterm infants has not changed significantly since 2007, but studies after 2007 showed a later onset as compared with earlier studies, with only a small proportion of IVHs occurring before 6 HOL.

Source:https://jamanetwork.com/journals/jamapediatrics/fullarticle/2828319

12/18/2024

Carle Foundation Hospital (CFH) is the only Neonatal Intensive Care Unit (NICU) in the region offering Level III perinatal care for newborns with critical conditions. On average, staff care for 35 babies each day in the NICU from an area that stretches west from Bloomington and Decatur, east to Danville and south to Olney. This distance, and potentially long NICU stays, mean some parents may need to leave their healing babies at times in the care of CFH staff.

Now, Carle’s Neonatal Intensive Care Unit is helping parents stay connected with their babies through technology. It is the first unit in the U.S. to offer an innovative and secure application where nurses share photos and video as the baby progresses. It’s called vCreate and is already in use in the U.K.

“Leaving a newborn at the hospital is naturally stressful for parents, some with limited visits for a variety of reasons such as distance from the hospital, work commitments, or caring for siblings of the newborn,” Kara Weigler, RN, manager, Neonatal Intensive Care Unit said. “We receive such positive feedback from parents about having this application available. We can take video of a baby having a bath or photos of the newborns as they progress.”

Not only do parents receive visual updates on their baby’s progress, but nurses also mark special occasions such as visits with Santa Claus.

For Carle Health team members, offering this free tool is just part of the type of care experience they strive for every day. And with such limited options for the level of care the CFH NICU provides, they take that responsibility very seriously.

“If someone cannot deliver, due to a complex pregnancy, at their community hospital, they are transported here,” Weigler said. More than 100 transports arrive at Carle yearly.

Syvanna Keith, who also has a 3-year-old, drives an hour to see her baby who is in the NICU after surgery due to an intestinal blockage. “Having a baby in the NICU is stressful and the nurses in the NICU have been wonderful to work with. Seeing photos of baby Bryan Duane when I am not there really helps a lot.”

A Carle nurse discovered the vCreate application at a conference and introduced the idea to her colleagues. The only equipment the family needs is a smart cell phone to start receiving the photos and videos nurses record in the NICU. Parents may review the message in the language of their choice.

Source:https://carle.org/newsroom/community/2024/12/nicu-nurses-first-in-nation-to-use-new-technology

Burstein, Or Aryeh, Tamara Geva, Ronny Burstein, O., Aryeh, T., & Geva, R. (2024). Neonatal care and developmental outcomes following preterm birth: A systematic review and meta-analysis. Developmental Psychology. Advance online publication. https://doi.org/10.1037/dev0001844

Abstract

Major amendments in neonatal care have been introduced in recent decades. It is important to understand whether these amendments improved the cognitive sequelae of preterm children. Through a large-scale meta-analysis, we explored the association between prematurity-related complications, neonatal care quality, and cognitive development from birth until 7 years. MEDLINE, APA PsycInfo, and EBSCO were searched. Peer-reviewed studies published between 1970 and 2022 using standardized tests were included. We evaluated differences between preterm and full-term children in focal developmental domains using random-effects meta-analyses. We analyzed data from 161 studies involving 39,799 children. Preterm birth was associated with inferior outcomes in global cognitive development (standardized mean difference = −0.57, 95% CI [−0.63, −0.52]), as well as in language/communication, visuospatial, and motor performance, reflecting mean decreases of approximately 7.3 to 9.3 developmental/intelligence quotients. Extreme prematurity, neonatal pulmonary morbidities, and older assessment age in very-to-extreme preterm cohorts were associated with worse outcomes. Contemporary neonatal medical and developmental care were associated with transient improvements in global cognitive development, evident until 2 to 3 years of age but not after. Blinding of examiners to participants’ gestational background was associated with poorer outcomes in preterm cohorts, suggesting the possibility of a “compassion bias.” The results suggest that preterm birth remains associated with poorer cognitive development in early childhood, especially following pulmonary diseases and very-to-extreme preterm delivery. Importantly, deficits become more pervasive with age, but only after births before 32 gestational weeks and not in moderate-to-late preterm cohorts. Care advancements show promising signs of promoting resiliency in the early years but need further refinements throughout childhood.

Impact Statement

Preterm birth is related to persistent neurodevelopmental difficulties, yet it remains unclear whether changes in care improve outcomes. Covering 50 years of research, including 37,999 children (0–7 years), we found considerable cognitive disadvantages that steepen the earlier the preterm birth occurs and following neonatal brain or lung damage. These early-life difficulties intensify with age but only in very and extreme cases of prematurity. Importantly, changes in neonatal intensive care unit care protocols show some positive, though yet transient, signs of promoting resiliency.

Source:https://psycnet.apa.org/search/display?id=e23f63e6-6b37-757e-0c5d-25a37874dfb3&recordId=1&tab=PA&page=1&display=25&sort=PublicationYearMSSort%20desc,AuthorSort%20asc&sr=1

Griffith, Thao PhD, RN; White-Traut, Rosemary PhD, RN, FAAN; Tell, Dina PhD; Green, Stefan J. PhD; Janusek, Linda PhD, RN, FAAN

Advances in Neonatal Care 24(6):p E88-E95, December 2024. | DOI: 10.1097/ANC.0000000000001216

Abstract

Background: 

Preterm infants face challenges to feed orally, which may lead to failure to thrive. Oral feeding skill development requires intact neurobehaviors. Early life stress results in DNA methylation of NR3C1 and HSD11B2, which may disrupt neurobehaviors. Yet, the extent to which early life stress impairs oral feeding skill development and the biomechanism whereby this occurs remains unknown. Our team is conducting an NIH funded study (K23NR019847, 2022-2024) to address this knowledge gap.

Purpose: 

To describe an ongoing study protocol to determine the extent to which early life stress, reflected by DNA methylation of NR3C1 and HSD11B2 promoter regions, compromises oral feeding skill development.

Methods: 

This protocol employs a longitudinal prospective cohort study. Preterm infants born between 26 and 34 weeks gestational age have been enrolled. We evaluate early life stress, DNA methylation, cortisol reactivity, neurobehaviors, and oral feeding skill development during neonatal intensive care unit hospitalization and at 2-week post-discharge.

Results: 

To date, we have enrolled 70 infants. We have completed the data collection. Currently, we are in the data analysis phase of the study, and expect to disseminate the findings in 2025.

Implications for Practice and Research: 

The findings from this study will serve as a foundation for future clinical and scientific inquiries that support oral feeding and nutrition, reduce post-discharge feeding difficulties and lifelong risk of maladaptive feeding behaviors and poor health outcomes. Findings from this study will also provide further support for the implementation of interventions to minimize stress in the vulnerable preterm infant population.

Source:https://journals.lww.com/advancesinneonatalcare/fulltext/2024/12000/epigenetics_embedding_of_oral_feeding_skill.17.aspx

Dear Fellow Warriors,

I want to take a moment to talk to you about love—not just the love we’ve received but the love we carry within ourselves. You’ve come so far, and every step of your journey has been marked by resilience fueled by love.

Love is what surrounded you in those early days. It’s the hands that held you, the whispers of encouragement when things felt uncertain, and the hope that never wavered. That love wasn’t just given to you—it became part of you, a quiet strength you carry forward every single day.

But here’s the beautiful thing about being a preemie: you’ve learned that love isn’t just something you receive; it’s something you radiate. Every time you take a step forward, every milestone you achieve, and every moment you choose to persevere, you remind the world what love in action looks like.

Life may present challenges, but love is your greatest ally. It’s the love you show yourself when you celebrate how far you’ve come. It’s the love you give others when you share your story, offering hope and inspiration. And it’s the love that reminds you that you are more than capable of facing anything that comes your way.

Resilience doesn’t mean you don’t face hardships. It means you face them with courage, with the knowledge that you’ve already overcome so much. Love and resilience go hand in hand—they’ve carried you this far, and they’ll continue to carry you wherever you dream of going.

So, to every preemie reading this: You are enough. You are strong. You are loved. And because of that love, there is nothing you can’t do.

Keep shining, keep thriving, and never forget the power of love within you.

With pride and encouragement, Kathryn Campos

This song aims to carry the premature cause and gather around common values. The video clip represents the struggle of prematurity through our little magician Julia, a former premature baby, who gets to the end of the race despite the obstacles with the help of caregivers.

It’s Valentine’s Day and Biscuit is ready to play. What will he do? Woof! Let’s find out in this wonderful tale, “Biscuit’s Valentine’s Day” by Alyssa Capucilli.

Make Eat Happen

OT, PIONEERS, YOUTH SUPPORT

Colombia, officially the Republic of Colombia, is a country primarily located in South America with insular regions in North America. The Colombian mainland is bordered by the Caribbean Sea to the north, Venezuela to the east and northeast, Brazil to the southeast, Ecuador and Peru to the south and southwest, the Pacific Ocean to the west, and Panama to the northwest. Colombia is divided into 32 departments. The Capital District of Bogotá is also the country’s largest city hosting the main financial and cultural hub. Other major urban areas include MedellínCaliBarranquillaCartagenaSanta MartaCúcutaIbaguéVillavicencio and Bucaramanga. It covers an area of 1,141,748 square kilometers (440,831 sq mi) and has a population of around 52 million. Its rich cultural heritage[15]—including language, religion, cuisine, and art—reflects its history as a colony, fusing cultural elements brought by immigration from Europe and the Middle East, with those brought by the African diaspora, as well as with those of the various Indigenous civilizations that predate colonization.  Spanish is the official language, although Creole, English and 64 other languages are recognized regionally.

Health care in Colombia refers to the prevention, treatment, and management of illness and the preservation of mental and physical well-being through the services offered by the medicalnursing, and allied health professions in the Republic of Colombia.

The Human Rights Measurement Initiative[1] finds that Colombia is fulfilling 94.0% of what it should be fulfilling for the right to health based on its level of income.

The reform of the Colombian healthcare had three main goals:

  • The achievement of an antitrust policy, to avoid the statal health monopoly.
  • The incorporation of private health providers into the healthcare market
  • The creation of a subsidiated healthcare sector covering the poorest population.

The general principles of the law determine that healthcare is a public service that must be granted under conditions of proficiency, universality, social solidarity and participation. Article 153 of the law mandates that health insurance be compulsory, that health providers must have administrative autonomy, and that health users must have free choice of health providers.

Source: https://en.wikipedia.org/wiki/Colombia

How to provide neonatal care in low-resource environments | Thomas M. Berger | TEDxGVAGrad

Drawing on historical milestones in neonatology, Professor Thomas Berger highlights the groundbreaking discoveries that revolutionised the care of infants with respiratory distress, ultimately leading to significant reductions in mortality rates. Through his personal experiences in Namibia and the implementation of low-cost interventions in low to middle income countries, he showcases how he has taken matters into his own hands and emphasises the importance of prioritising the patient’s well-being above all else. In this inspiring speech, Professor Berger shows how grit and simple solutions can make a positive impact in saving neonatal babies. Thomas M. Berger is a Swiss paediatrician and neonatologist. His postgraduate training began in Switzerland and continued in the USA (residency in paediatrics at the Mayo Clinic, Rochester, MN; fellowship in neonatology at the Harvard Joint Program in Neonatology, Boston, MA; fellowship in paediatric critical care at the Children’s National Medical Center in Washington, DC). After returning to Switzerland, he led the Neonatal and Paediatric Intensive Care Unit at the Children’s Hospital in Lucerne for almost 20 years. In 2017, together with his wife Sabine (a paediatric nurse), he founded NEO FOR NAMIBIA – Helping Babies Survive. This Swiss NGO helps to improve neonatal care in Namibia by providing affordable and robust equipment, ensuring thorough training of local health care professionals, and measuring impact with appropriate statistics. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx


By Charlotte Gore
  – Mon 18 Mar 24

In short: A program that aims to lower the national rates of preterm and early births says it’s helped 4,000 Australian babies avoid an early birth each year since 2021.

The Every Week Counts program helps maternity hospitals redesign services to identify and treat women at risk of delivering early.

What’s next? Experts involved in the program said they hoped to challenge the belief that full term was 37 weeks gestation. 

Sheree Walsh’s twins Heidi and Connor weighed a combined 1250 grams when she delivered her babies at just 25 weeks gestation. The mother only realised she was at risk of a premature birth after she had concerns over a lack of movement and went to the hospital for a check-up. In an ultrasound she could see both babies moving and was temporarily relieved, until the doctor told her to immediately pack her bags to be admitted to the hospital for bed rest.

“I could still feel the babies, but my cervix had shortened so much that it was a risk for me to remain off bed rest,” Ms. Walsh said.

It was not long before the twins arrived.

“We had Heidi and Connor christened the day after they were born because we didn’t think Heidi would make it. She was so sick,” Ms Walsh recalled.

Every Week Counts 

A world-first Australian program, led by the Australian Preterm Birth Prevention Alliance (APBPA), has said it has managed to significantly lower the number of preterm and early births across the country. 

A preterm birth is one that occurs before 37 weeks gestation, while an early term birth is one that occurs between 37 and 39 weeks — and the Every Week Counts program has aimed to reduce the rates of both.

According to the APBPA, preterm births are the single greatest cause of death and disability in Australians under five years old, and 8 per cent of Australians are born preterm.

Australian Institute for Health and Welfare data has shown that preterm birth rates have fallen by 6 per cent since the APBPA began its work in 2018.

First Nations women are twice as likely as non-Indigenous mothers to experience a preterm or early birth. 

APBPA deputy chair Professor Jonathan Morris said recent data from the federally-funded program suggested early term birth rates had declined by at least 10 per cent.

“Over the course of the program, that means 4,000 babies that would’ve been born early have been born at an appropriate time,” he said.

“Meaning they’re more likely to be with their mothers, more likely to be healthy in the first year of life, and more likely to perform well in later life.”

‘She’s a total miracle’

Ms. Walsh said before delivering her twins she had not heard of a Neonatal Intensive Care Unit (NICU) and was yet to attend birth classes.

“A premature birth is something that you’re not prepared for,” she said.

“With many parents of preemies, their relationship doesn’t survive, but we were really lucky because we were there for each other and we had strong support from our family.”

Now almost seven years old, Heidi is vibrant and energetic, and to her parents she’s “a total miracle”.

Having a premmie baby

Most parents don’t have to leave their baby behind when they go home from the hospital.

“Heidi has very limited core strength, however it doesn’t stop her. She is the most resilient child I’ve ever come across,” Ms. Walsh said.

The mother has had a subsequent pregnancy and was able to deliver Heidi and Connor’s younger brother at full term. She said she believed that was due to the extra monitoring and treatments she received under the Every Week Counts program.

‘Misconception’ of 37 weeks as full term 

Women’s Healthcare Australasia chief executive Barb Vernon said the Every Week Counts program has helped healthcare workers across multiple hospitals reshape some services with the aim of seeing fewer preterm and early term births. Strategies included prescribing vaginal progesterone to people with a shortened cervix or who have a history of spontaneous preterm birth — a treatment that assisted Ms. Walsh in her subsequent pregnancy.

The program has also promoted the continuity of care model which sees expectant mothers meeting with the same staff. Smoking while pregnant is also strongly discouraged.

“What we’ve been doing in this program is working with the hospitals to help them redesign their own local hospital system, to help them do their best care for every woman every time,” she said. “Whether it’s their electronic medical record, their booking process for an induction, the way they communicate with women during pregnancy and the information they might give women to make informed decisions. “All of those elements of care then have an impact on supporting more women to continue their pregnancy to 39 weeks.”

Dr. Vernon said a common misconception they hoped to address with the program was the idea that a baby had reached full term at 37 weeks gestation.

“That’s an idea that has been around for more than 100 years, but what we now know is that the baby’s brain develops much more powerfully if they’re born two weeks later at 39 weeks of pregnancy,” she said.

Dr Vernon said the program was an important opportunity to help pregnant women understand they would be doing “the best possible thing for their baby” if their pregnancy could safely continue to 39 weeks gestation.

“The advice that is being given to women as part of this work is that they should be seeking to have a cervix length measurement taken when they have their mid-pregnancy scan,” she said.

Dr. Vernon said so far the program’s work had been “really inspiring” in terms of the outcomes for women and their families.

“There are hospitals across Australia, from very large services to very small rural centres, that are seeing a drop in the number of babies being born earlier than they should be born,” she said.

Trust, meaningful conversations key to improving Indigenous outcomes

While the program has seen broad improvements across the country, the positive outcomes have not extended to First Nations women, according to Indigenous obstetrician and gynaecologist Kiarna Brown who lives and works on Larrakia country in the Northern Territory.

“I have the amazing privilege of now working as an obstetrician in the town that I grew up in, and so what that also means is that throughout pregnancies, I’m looking after my cousins and my nieces,” Dr Brown said.

The experience has shown her that First Nations women have better birth outcomes when they feel safe and can trust their maternity care providers. 

Dr. Brown was part of a study that examined ten years of births at the Royal Darwin Hospital, finding the prevalence of many risk factors for preterm and early births were the same among Indigenous women compared to other expectant mothers. Those risk factors included preterm membrane ruptures, diabetes in pregnancy, blood pressure issues and whether a woman was carrying more than one baby.

But it did find Indigenous women were more likely to have shorter cervical lengths — an area Dr. Brown said needed more study. She said given preterm birth risk factors were not too dissimilar in Indigenous women, it was likely social determinants of health were responsible for First Nations women being twice as likely to experience preterm births.

“I think it boils down to people’s access to healthcare services … levels of education and employment,” Dr Brown said.

“We also need to find ways to engage and educate women — and I’m not saying we should tell women what to do — but actually getting their perspectives on how [health services] can do better.” “So, that’s what we’ve started in the Top End. We’re doing lots of yarning groups in remote communities, asking:

‘Hey, how can we do better? What do you know about this issue preterm birth? What experience have you had with maternity care?'”

She said the predominantly non-Indigenous workforce urgently needed culturally-informed training, as Western medicine has long ignored how First Nations mothers have traditionally experienced pregnancy.

Dr Brown said one example was that many mothers did not track their pregnancies in weeks or trimesters.

She said instead they might say, “‘My baby’s due in the wet season … or my baby’s as big as a mango'”.

“When they feel safe and trusted, they’re going to come [to maternity services] more often and they’re going to have more meaningful relationships with their healthcare professionals,” Dr Brown said. 

Source:https://www.abc.net.au/news/2024-03-19/australian-program-prevents-preterm-early-births/103601038

May 2, 2024 By Andis Robeznieks, Senior News Writer

Not all telehealth programs began during the COVID-19 pandemic. Ochsner Health started connecting pregnant patients with its digital medicine obstetric program in 2016 and has since achieved success across six key performance metrics including improved clinical outcomes, access to care and health equity.

Ochsner Health’s Connected MOM (Maternity Online Monitoring) initiative uses digital health tools to offer expectant mothers a convenient way to safely manage their pregnancy in collaboration with their physicians at some 20 clinical sites in Louisiana and Mississippi.

In 2022, Ochsner Health enrolled about 205 pregnant patients per month in the program, with nearly 1,600 enrolled at any given time that year and more than 2,250 patients in total for the year, according to an AMA Future of Health case study (PDF).

Ochsner Health is a member of the AMA Health System Program, which provides enterprise solutions to equip leadership, physicians and care teams with resources to help drive the future of medicine.

Patients are given a blood-pressure cuff to enable them to submit BP readings remotely via their personal smartphone.

This enables ob-gyns and patients to track key health readings and receive alerts when a reading is outside normal thresholds. Once alerted, physicians work with patients on a care plan.

Ochsner Health’s program caught the attention of Sen. Bill Cassidy, MD (R-La.), who then used it as the foundation of his Connected MOM Act, a bipartisan bill supported by the AMA (PDF). The bill would provide state Medicaid programs with remote physiologic monitoring devices and related services through Medicaid.

The Connect MOM program is especially helpful in detecting the hypertensive disorders of pregnancy, like preeclampsia, which is responsible for up to 7% of pregnancy-related deaths in the U.S.

Measures indicate success

The case study notes that the program has achieved significant success across these six dimensions.

Clinical outcomes. 

Connected MOM participants overall had 20% lower odds of pre-term. The program also helped identify patients with “masked hypertension,” which includes those who had hypertension at home but a normal BP measurement in the clinic and are nonetheless at an increased risk for adverse outcomes. Those patients were given early intervention and closer monitoring. 

Access to care. Ochsner Health’s team of more than 120 ob-gyns and certified nurse midwives delivered more than 10,860 babies—of which, about 20% were enrolled in Connected MOM. The option of substituting some in-office visits with virtual visits also was a benefit to patients with transportation challenges, and was helpful to those who otherwise would have had to take time off from work and secure child care to see their physician.

Patient, family and caregiver experience. Ochsner Health data indicates that 10.7% of patients in Connected MOM are re-enrollees, “highlighting a high level of satisfaction with the program,” says the case study.

Clinician experience. Because it is so easy to use the program’s digital tools, staff can better manage their time and offer support to more new patients. For every 1,000 patients enrolled in Connected MOM, the capacity of an ob-gyn’s clinic increases by the equivalent of 0.6 of full-time employee.

Financial operational experience. Connected MOM is offered at no additional cost to patients.

Health equity. Connected MOM supports the recruitment of a diverse demographic of patients, with more than 60% of enrollees being between 26–35 from various racial backgrounds, including 29% Black and 5% Asian, with about 30% of enrollees covered by in-state Medicaid programs.

Grant funding has helped pay for much of the program, so the passage of Dr. Cassidy’s bill would go a long way toward making the program sustainable.

“We’re asking for CMS [the Centers for Medicare & Medicaid Services] to make sure that not just the moms who go to Ochsner, but all moms across the United States are able to benefit from the Bluetooth-enabled blood-pressure devices and remote patient-monitoring devices such as those used in Connected MOM,” Veronica Gillispie-Bell, MD, MAS, head of women’s services at Ochsner Medical Center-Kenner, said in a recent episode of “AMA Update.” 

“If we’re really looking to bring resources to those individuals, to those patients who need it the most, we have to have federal support,” Dr. Gillispie-Bell added.

Support for patients and physicians

The case study also highlights how Ochsner Health leverages the foundational pillars for “addressing the digital health disconnect” described in the AMA-Manatt Health report Closing the Digital Health Disconnect: A Blueprint for Optimizing Digitally Enabled Care (PDF).

The blueprint’s foundational pillars to achieve digitally enabled care are:

  • Build for patients, physicians and clinicians.
  • Design with an equity lens.
  • Recenter care around the patient-physician relationship.
  • Improve and adopt payment models that incentivize high-value care.
  • Create technologies and policies that reduce fragmentation.
  • Scale evidence-based models quickly.

In describing how the program is built for patients, physicians and other health professionals, the case study notes that patients are sent reminders to take their BP reading. Patients also receive a weekly planner and checklist for tracking their vital signs.

“The program has been thoughtfully designed to support both patient and clinician needs,” the case study says.

Regarding the pillar on creating technology that reduces fragmentation, the case study notes that sharing data via the patient’s smartphone app means that patients don’t need to copy or transcribe the data to message their physician. “Connected MOM allows for a centralized location for both the care team and the patient to access information, track progress, [and] identify trends,” the case study says.

Source:https://www.ama-assn.org/practice-management/digital/digital-health-program-cuts-pre-term-births-20

Juanes           3.07M subscribers  

 1.9M views 1 year ago

#JuanLuisGuerra #Juanes #VidaCotidiana

Mitchell Goldstein, MD, MBA, CML

Neonatology, a field dedicated to the care of newborns, is characterized by its rapid pace of evolution. New research findings, advanced technologies, and updated guidelines continuously reshape our understanding and practices. What was considered best practice a decade ago may be outdated as the field progresses. This constant flux can lead to disagreements among professionals, which, though potentially disruptive, play a critical role in advancing care standards and improving patient outcomes.

Navigating these disagreements with finesse ensures they contribute rather than hinder progress. Constructive disagreement is not just about airing differing opinions; it involves engaging in a thoughtful and respectful dialogue that fosters professional growth and enhances patient care. Here are several fundamental principles for managing disagreements effectively in neonatology.

1. Prioritize Respectful Dialogue

The foundation of productive disagreement is respectful.  communication. Interrupting others disrupts the flow of conversation and can escalate tensions. It is crucial to allow each participant to complete their thoughts before responding. This practice ensures that every viewpoint is fully understood and considered. Active listening is a cornerstone of respectful dialogue; it demonstrates that you value the other person’s perspective and are open to their ideas.

2. Let Everyone Speak

Equally important is ensuring that every participant has the opportunity to voice their opinions. Dominating the conversation or dismissing others’ viewpoints can stifle valuable insights and create a skewed discussion. Encourage a balanced exchange where all voices are heard. This inclusive approach not only fosters a more democratic dialogue but also enriches the decision making process by incorporating diverse perspectives.

3. Silence is Golden

In the heat of a debate, silence can be a powerful tool. It provides a moment for reflection and allows participants to process the information being discussed. Rather than rushing to fill every

pause with words, embrace moments of silence as an opportunity to gather your thoughts and consider the points raised by others. Silence can also help de-escalate tensions and allow everyone to cool down before responding.

5. Choose the Appropriate Setting for Discussions

 The context in which disagreements occur can significantly impact their resolution. Sensitive or contentious issues are often better addressed in a private rather than a public forum. A private discussion allows for more candid exchanges without the added pressure of an audience, which can lead to more effective problem-solving and reduce the risk of escalating the conflict.

6. Focus on the Issue, Not the Person

Effective disagreement involves focusing on the issue rather than allowing personal animosities to cloud the discussion. Avoid competitive “pissing contests” where the goal is to outshine or undermine the other person. Instead, concentrate on clearly articulating the opposing viewpoint and contrasting it with evidence based data. This approach ensures that the debate remains centered on the merits of the arguments rather than personal conflicts.

7. Use the Praise Sandwich Approach

One effective method for presenting a differing opinion is the “praise sandwich” approach. This technique involves beginning with a positive remark or acknowledgment of the other person’s perspective, presenting your disagreement, and concluding with another positive note. This approach helps soften the impact of dissent and maintains a positive and constructive tone throughout the discussion. It demonstrates respect for the other person’s contributions while making your point.

8. Know When to Step Back

Sometimes, despite our best efforts, discussions can become too heated to be productive. In such cases, stepping back and taking a break is wise. A pause lets participants cool down and reflect on the discussion with a clearer perspective. Revisiting the conversation later can lead to more thoughtful and constructive dialogue, fostering a better resolution.

9. Cultivate an Open Mind

Approaching disagreements with an open mind is essential for constructive dialogue. Suspend disbelief and be willing to consider new ideas, even if they challenge your current beliefs. This willingness to explore different viewpoints can lead to innovative solutions and improvements in practice. Agreeing to disagree is a natural part of professional discourse and can enhance collaboration and problem-solving.

10. Remember the Shared Goal

Regardless of the intensity of the disagreement, it is essential to remember that all participants share a common goal: improving patient care. Maintaining a sense of camaraderie and mutual respect helps to keep the bigger picture in focus. (4) Disagreements should be viewed as opportunities to refine and enhance practices rather than as personal battles.

 By adhering to these principles, disagreements can be transformed from potential conflicts into valuable opportunities for professional development and innovation. Constructive disagreement enriches the practice environment and contributes to improved physician retention and a more dynamic approach to patient care. Fostering a respectful dialogue ensures that every voice is heard and that the field of neonatology continues to advance in its pursuit of excellence.

Source: https://neonatologytoday.net/newsletters/nt-sep24.pdf

High-quality neonatal intensive care requires diverse specializations and interprofessional teamwork to include the unique contributions of neonatal therapists. Neonatal therapists include occupational therapists (OT), physical therapists (PT), and speech-language pathologists (SLP), who specialize in delivering age-specific evaluations and therapeutic interventions for premature and medically complex infants in the neonatal intensive care unit (NICU)  A neonatal therapist begins with the end in mind to mitigate adverse sequelae, optimize neurodevelopment, and strengthen infant mental health by scaffolding the infant-parent dyad Although therapists are traditionally known for their rehabilitative roots, neonatal therapists utilize a preventative, habilitative approach, emphasizing neuroprotection and neuropromotion .

 What is Neonatal Therapy? 

 Neonatal therapy is an advanced practice area for OTs, PTs, and SLPs as described by the Neonatal Therapy Core Scope of Practice©. All three professional groups share core fundamental knowledge yet recognize that each discipline adds unique and valuable contributions to the field. In part, neonatal therapy is “the art and science of integrating typical development of the infant and family into the environment of the NICU.”.  As interdisciplinary care team members, neonatal OTs, PTs, and SLPs help drive the delivery of Family Centered, developmental care and are often instrumental in the discharge planning process. In level III and IV NICU settings, neonatal therapists are integral to neonatal follow-up clinics, providing neurodevelopmental testing and triage for early intervention services.

Why is neonatal therapy considered an advanced practice area?

 Professional training programs for OT, PT, or SLP entail graduate-level or doctoral degrees. Despite this rigorous education, advanced training in the neonatal therapy subspecialty is required. An entry-level neonatal therapist requires NICU-specific continuing education and mentorship to ensure safe, well-timed, risk-adjusted neonatal care. Neonatal therapists must be familiar with the complexities of the NICU environment, recognize neonatal risk factors, precautions, and medical comorbidities, navigate NICU equipment, safely handle preterm and critically ill infants, apply trauma-informed principles when working with families, and have a solid understanding of typical preterm and newborn neurobehavior and developmental progression (1-3). This extensive education and training instills confidence in neonatal therapists’ expertise and their ability to provide evidence-based services in this highly vulnerable patient population.

What are the requirements to become a certified neonatal therapist (CNT)?

The CNT designation is internationally recognized and obtained throughthe Neonatal Therapy Certification Board (NTCB). The CNT certification requirements include: (a) credentialling as an OT, PT, or SLP for three or more years, (b) 3500 hours of experience in the NICU, (c) Forty hours of NICU-specific education in less than three years, (d) forty hours of NICU mentorship, and (e) successful completion of the Neonatal Therapy National Certification Exam.

What are the neonatal therapy practice domains?

Neonatal OT, PT, and SLP have a shared foundational knowledge, including six practice domains: (1) environment, (2) family/ psychosocial support, (3) sensory system, (4) neurobehavioral system, (5) neuromotor and musculoskeletal systems, and (6) oral feeding and swallowing, which are not fundamentally exclusive to any one discipline (1,2). Neonatal therapists use an integrative collaborative-care model when administering continual assessment and intervention cycles grounded in evidence-based decision-making (9). Ideally, therapeutic interventions begin at the earliest point of the lifespan when therapists collaborate with other disciplines and use their unique lenses to help advance infant competencies, promote parental confidence, and expedite the journey home.

What interventions do neonatal therapists provide?

From the first day of life, neonatal therapists promote healthy postures and movement patterns, reduce pain and stress, and nurture age-appropriate sensory experiences. In tandem with the bedside nurse, neonatal therapists partner with families to engage them in their baby’s activities of daily living, such as diapering, eating, dressing, bathing, etc.. Neonatal therapists can be instrumental in coaching parents with direct hand-overhand support and anticipatory guidance to help develop proficiency and confidence in their co-occupation as parents. The neonatal therapy team helps to advance individualized care plans to include environmental modifications, positive touch, therapeutic handling for posture and regulation, protection of the aerodigestive system, infant-driven feeding strategies, and parent education related to discharge needs (1, 3, 11). In many settings, neonatal therapists are considered feeding specialists with advanced training in pre-feeding strategies, breastfeeding support, and clinical feeding assessments (10, 13). Highly skilled neonatal therapy professionals will often have extensive training in any of the following areas: (a) evaluating an infant’s neurologic integrity using skilled observations and standardized testing, (b) therapeutic management of orthopedic conditions, (c) instrumental swallowing evaluations such as video fluoroscopic swallow studies (VFSS) or fiberoptic endoscopic evaluation of swallowing (FEES), and (d) lactation support as a Certified Lactation Counselor (CLC) or International Board Certified Lactation Consultant (IBCLC).

What is the best approach to successful neonatal therapy staffing?

With the rising complexity and volume of premature and medically fragile infants, there is a growing need for highly trained, multidisciplinary NICU teams . Finding and staffing NICUs with all three disciplines who also have NICU-specific expertise can be highly challenging, particularly in units with high fluctuations in their census and for smaller, more rural NICUs. Larger level III and IV NICUs have additional staffing challenges of higher acuity, heavy caseloads, and shortage of qualified therapists. The staffing models of neonatal therapy teams often vary in size and the way they delineate roles between neonatal therapists based on therapist availability, cross-discipline knowledge, therapy service requirements, budget constraints, and the individual therapist’s competence and confidence within the neonatal subspecialty. The American Academy of Pediatrics (AAP) NICU Verification Program includes neonatal therapy services for Level II, III, and IV NICUs, with certified neonatal therapists (CNTs) preferred.

Help celebrate neonatal therapists from around the world!

Every September, the National Association of Neonatal Therapists (NANT) hosts International Neonatal Therapy Week (INTW) to highlight this advanced practice area and unite neonatal OT, PT, and SLP clinicians around the globe. NANT is a professional organization that delivers NICU-specific continuing education, resources, standards, mentorship, and supportive connections to advance this specialty. During the week of September 15th-21st, 2024, NANT will celebrate the impact of this vibrant neonatal therapy community with its members, who span over thirty countries and five continents.

Want To Learn More?

• Celebrate International Neonatal Therapy Week between September 15th and 21st, 2024 and join  

   our vibrant neonatal community.

 • Attend NANT 15, the annual neonatal therapy conference, in Indianapolis, IN, from March 27th to   

   29th, 2025. Attendees typically represent all fifty states and eight or more countries.

• Join NANT’s annual Virtual Summit in December — A FREE educational event— info coming soon! • Stay informed by subscribing to NANT NEWS and visiting www.neonataltherapists.com

• Therapists interested in becoming a CNT can apply online at https://www.ntncb.com/

Cistone, Nicole MSN, RN, RNC-NIC; Pickler, Rita H. PhD, RN, FAAN; Fortney, Christine A. PhD, RN, FPCN; Nist, Marliese D. PhD, RNC Editor(s): Gephart, Sheila PhD, RN, Section Editor; Newnam, Katherine PhD, RN, NNP-BC, CPNP, IBCLE, Advances in Neonatal Care 24(5):p 442-452, October 2024. | DOI: 10.1097/ANC.0000000000001177

Abstract

Background: 

Although routine nurse caregiving is vital for the overall health of preterm infants, variations in approaches may exert distinct effects on preterm infants’ stress responses and behavior state.

Purpose: 

The purpose of this systematic review was to examine routine nurse caregiving in the neonatal intensive care unit and its effect on stress responses and behavior state in preterm infants.

Data Sources: 

A systematic search was conducted using PubMed, Embase, and CINAHL for studies published between 2013 and 2023.

Study Selection: 

Included studies enrolled preterm infants born <37 weeks gestational age and investigated nurse caregiving practices and effects on stress responses and/or behavior state.

Data Extraction: 

Following Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines, data about study design, methods, findings, and limitations were extracted and summarized. Included studies were evaluated for bias using the National Health, Lung, and Blood Institute quality assessment tools.

Results: 

All 13 studies included in the review received a fair quality rating. Nurse caregiving activities, including suctioning, diaper changes, bathing, and weighing, were associated with increases in heart and respiratory rates, blood pressure, energy expenditure, and motor responses, lower oxygen saturations, and fewer sleep states.

Implications for Practice and Research: 

Adapting nurse caregiving frequency and duration, aligning caregiving with infant state, and integrating developmental care strategies may reduce infant stress responses and support behavioral rest. Further research is needed to understand how caregiving activities affect stress responses and behavior state in preterm infants, aiding in identifying modifiable caregiving stressors to promote optimal development.

Spotsylvania Regional Medical Center    Jul 19, 2021

Meet Occupational Therapist Hayley Chrzastowski and learn how a baby in the Level III NICU at Spotsylvania Regional Medical Center would receive care from an occupational therapist. Dr. C Chrzastowski will also discuss how she works to both include and support baby’s care team to best prepare them to care for baby once transitioned home.

Key Points

Your baby may have tests in the NICU to find out about health conditions and treatments she needs to grow and be healthy.

Some tests, like blood tests, are really common, and lots of babies get them. Others are just for babies with certain health conditions.

Before providers can do certain tests on your baby, you have to give permission. This is called informed consent.

Talk to your baby’s provider about tests your baby needs. Make sure you understand the test and why your baby needs it before you give permission.

Why do babies have tests in the NICU?

Your baby’s health care providers in the newborn intensive care unit (also called NICU) staff give your baby medical tests to find out about your baby’s health conditions. Test results help providers know what treatment your baby needs. For example, providers may do a blood test to check your baby for anemia. Anemia is when your baby doesn’t have enough healthy red blood cells to carry oxygen to the rest of her body. Or providers may take an X-ray to check your baby for a lung infection. Your baby’s provider tells you what tests your baby needs and tells you the test results.

Before providers can do certain tests, they need your consent. This means they’ll ask you to read and sign a consent form. When you sign the form, you give them permission to do the test. Sign the form only when you understand what the test is and why your baby needs it. Ask your baby’s providers any questions you have about the test before you sign the form.  

What tests may your baby have in the NICU?

blood test — Tests your baby’s blood for certain health conditions. Blood tests are the most common tests done in the NICU. Test results give providers important information about your baby’s health.  They also help providers find possible problems before they become serious.

CAT scan or CT scan — Also called computed tomography scan. A test that takes pictures of the inside of the body. It’s like an X-ray, but it gives a clearer, three dimensional (also called 3D) view. Your baby goes to the radiology department for the test. She may need medicine to help keep her still during the test.

echocardiogram — A special kind of ultrasound that takes pictures of the heart. Ultrasound uses sound waves and a computer screen to make the pictures. Providers use this test to help find heart problems, including heart defects. A heart defect is a problem with the heart that’s present at birth.

EKG or ECG— Also called electrocardiogram.  A test that records the heart’s electrical activity. An EKG can show how fast your baby’s heart is beating and if the rhythm of the heartbeat is regular.

hearing test — Also called brainstem auditory evoked response test or BAER. This test checks your baby’s hearing. A provider places a tiny earphone in your baby’s ear and puts small sensors on his head. The provider plays sounds through the earphones, and the sensors send information to a machine that measures your baby’s response to the sounds. All babies get this test as part of newborn screening.

MRI— Also called magnetic resonance imaging. This test uses strong magnets and radio waves to take detailed pictures of the inside of your baby’s body. An MRI gives a more detailed view than a CT scan, X-ray or ultrasound. Your baby may need medicine to help keep her still during the test.

newborn screening test — Checks for serious but rare and mostly treatable conditions at birth. It includes bloodhearing and heart screening.

ROP exam— Also called retinopathy of prematurity exam or eye exam. Providers use this test most often for babies born before 30 weeks of pregnancy or babies who weigh less than 3 1/3 pounds. An eye doctor (also called an ophthalmologist) checks to see if the blood vessels in your baby’s eyes are developing the right way. If the doctor sees signs of problems, he checks your baby’s eyes over time to see if the condition gets better or if it needs treatment.

ultrasound — A test that uses sound waves to make pictures of the inside of the body. A provider puts a special jelly on your baby’s skin over the area of the body she wants to check. Then she rolls a small device shaped like a microphone over the area. Providers often use ultrasound to check for bleeding in your baby’s brain.

urine test — Tests a baby’s urine for certain health conditions. Urine test results can tell providers a lot about your baby’s overall condition. For example, test results can tell provider if your baby’s getting enough fluid, how your baby’s kidneys are working and if your baby has an infection. Your baby’s provider inserts a thin tube called a urinary catheter in the opening where urine passes out of your baby’s body to collect the urine.

weight — Weighing your baby at birth and as he grows and develops. Providers weigh your baby soon after birth and at least once a day in the NICU. It’s a good sign when babies start to gain weight at a steady rate.

x-ray — A test that uses small amounts of radiation to take pictures of the inside of your baby’s body. X-rays show pictures of your baby’s lungs and other organs. If your baby has breathing problems, she may need several lung X-rays each day. X-rays expose your baby to radiation, but the amount is so low that it doesn’t affect her health now or in the future. Radiation is strong energy that can be harmful to your baby’s health if she’s exposed to too much.

See also: shareyourstory.org https://www.marchofdimes.org/find-support/topics/neonatal-intensive-care-unit-nicu/common-tests-nicu

Recognize the warning signs of social anxiety and get help for your teen.

Posted December 20, 2022 |  Reviewed by Gary Drevitch

THE BASICS

Key points

  • Post-pandemic life is harder for teens with social anxiety, as restrictions that curtailed their social activities are no longer present.
  • Parents can watch for a variety of signals that indicate whether their teen is struggling with social anxiety.
  • Cognitive behavioral therapy is the gold standard of effective treatment and management for social anxiety.

Parents continue to grapple with the impact of pandemic restrictions on the mental health of their children. For teens, reentry into “normal” life brings a new set of challenges, especially for those prone to social anxiety. Most teens with social anxiety experienced profound relief during the pandemic because restrictions curtailed their social and performance situations. They didn’t have to face the many situations that commonly trigger their social anxiety, such as raising a hand in class, making idle chitchat with peers, attending a social event, and playing sports. However, their prolonged lack of exposure to these situations also set them back because they didn’t have the opportunity to learn and grow and discover that they can in fact handle being in uncomfortable social situations.

Teens’ anxiety about social and performance situations came roaring back with a vengeance when those situations returned to their daily lives. A national survey of U.S. teens aged 15 to 19 found that nearly half (48%) were concerned about experiencing social anxiety while transitioning back to “normal” life (Steinberg, 2021). Compared with pre-pandemic statistics, which indicated that approximately 10% of teens suffered from social anxiety (NIH, n.d.), this is a remarkable increase that deserves our attention.

In simple terms, social anxiety involves feeling extreme worry and fear related to social and performance situations. Individuals suffering from social anxiety can also fear being observed doing basic everyday activities, such as using a phone, texting, writing, using a computer, eating, or using a public restroom. Their worry and fear focus on concerns about feeling judged, negatively evaluated, and ultimately being rejected by others. Social anxiety doesn’t present the same way in all individuals, but it always exacts a big toll on the well-being of the sufferer.

How do I know if my teenager is struggling with social anxiety?

Observe your teen’s behaviors and listen to what they are saying. If you notice any of the following, your teen is likely experiencing social anxiety:

  • Inordinate focus on and preoccupation with concerns about how others perceive them.
  • Avoidance of social or performance situations that most peers tolerate.
  • Extreme physiological reactions (e.g., sweating, shaking, nausea, hyperventilation) in performance or social situations.
  • Excessive reassurance seeking and/or declarations that others perceive them as weird, odd, etc.
  • Requests for special accommodations from teachers, counselors, etc. to reduce or avoid being in situations that trigger worry and fear (e.g., requests to be excused from oral presentations, public speaking, competitions, or classes or activities that others tolerate easily).
  • Recess and break times spent in the library or other locations less likely to result in social interactions
  • Refusal to attend parties or other events you expect your teen would enjoy, or insistence that they simply dislike these events.
  • Spending time only with kids they know well.

If you observe any of the above, your teen is missing out and may need your help.

Why it’s important to get help for your teen

Untreated social anxiety is associated with depressionsubstance abuse, and other serious psychological problems. It can make your teen’s life miserable and limited.

Studies show that untreated social anxiety has a strong negative impact on various measures of quality of life, including academic achievement, and can interfere with people’s career paths (Vilaplana-Pérez et al., 2021). Without effective intervention, teens often come to define themselves as lacking in basic self-confidence, insecure, self-doubting, and inadequate.

These unfortunate outcomes and suffering are avoidable and repairable if the right steps are taken. Social anxiety or any other type of anxiety disorder should never define a person. These are common, highly treatable problems, just like asthma, diabetes, or allergies.

Finding treatment for social anxiety

Cognitive behavioral therapy (CBT) is the gold standard of effective treatment and management for most anxiety and related problems, including social anxiety. The basic process of CBT for anxiety disorders involves identifying distorted thinking, correcting those thinking errors, and adjusting specific behaviors. Exposures are the single most important element of successful CBT. The basic technique of exposure is to gradually face a situation that triggers anxiety, while at the same time not engaging in any safety, avoidance, or accommodation behaviors or rituals (Walker, 2021).

Finding a qualified CBT clinician, however, can be a huge challenge, and locating one who is truly experienced in CBT is not easy. You may have tried traditional talk therapy for your teen but found it ineffective. Unfortunately, after ineffective treatment, many people feel worse about themselves; like they can’t be helped. This is especially damaging to a young person developing their sense of self.

To find a therapist, visit the Psychology Today Therapy Directory.https://www.psychologytoday.com/us/blog/anxiety-relief-for-kids-and-teens/202212/post-pandemic-reentry-for-teens-with-social-anxiety

Dr Niels Rochow is a researcher and neonatologist at Klinikum Nürnberg, in Nürnberg, Germany, one of the largest municipal hospitals in Europe. 

His work, looking after newborns born early or with medical problems, keeps him very close to the topic of his research. He recalls a tense battle over the weekend to save a premature baby’s life. 

‘She was born early and was in a bad state. We fought for two and a half days to keep her alive.’ The baby’s survival depended on invasive artificial ventilation technology and external lung and kidney support. 

Although sometimes lifesaving, these devices were originally developed for adults and scaled down for neonatal care. They are not well adapted to a baby’s tiny body, are highly invasive and can damage immature lung tissue.

Currently, premature babies frequently need to be heavily medicated and connected to a mechanical ventilator pumping air into their lungs. 

‘These babies are full of tubes and essentially paralysed,’ said Rochow. This treatment often leads to side effects and can cause chronic lung disease, impacting the child’s whole life.’

Short- and long-term impact

Every year, about 15 million babies are born preterm – classified as before the 37th week of pregnancy. A full-term pregnancy is 40 weeks, but a lot happens in those last three weeks. Currently, around 7% of births in the EU are classified as preterm. 

Despite advancements in neonatal intensive care, progress in improving long-term health outcomes for these infants has been slow. Two million preterm babies lose their lives – before they even start – every year. 

In fact, the Global Burden of Disease study in 2010 estimated that preterm births were the leading cause of death and disability in children under the age of five – greater than either malaria or pneumonia.

Having missed the crucial developmental milestones that normally occur in the last part of the pregnancy, survivors also have increased risks of long-term health consequences. They are more likely to suffer respiratory issues like bronchitis and asthma, and be affected by a range of neurodevelopmental disorders due to brain injury.

Like mother’s womb

Dr Rochow is one of a team of European and international researchers that received a grant through the European Innovation Council (EIC) Pathfinder programme to work on a better alternative – a system they call an artificial placenta, or ArtPlac. 

The goal is to simulate the conditions of the mother’s womb, potentially reducing complications and improving outcomes for the most vulnerable newborns.

‘In the womb, the baby is connected to the natural placenta which serves as a lung, a kidney and a feeder,’ said Professor Jutta Arens, one of the lead engineering scientists working on the four-year ArtPlac project, which kicked off in 2023. 

‘This placenta cannot be reconnected after birth, which is why we are developing a device that replaces its functions in the most natural way possible.’ By connecting to the baby’s belly button, the artificial placenta allows the infant to develop and heal naturally, offering a less invasive alternative to current methods. 

ArtPlac will also make it easier for parents to have physical contact with their child from the start. Artificial ventilators are not only very invasive, they are also awful for parents, according to Rochow.

‘If you hear your baby cry, you want to hold it. Yet, you can’t. With ArtPlac, parents could be close to the baby and interact with it more easily.’ 

ArtPlac will undergo initial in-vitro testing in the last quarter of 2024. This will be followed by proof of principle in-vivo testing which will be carried out on a premature lamb. The aim is to be able to perform initial clinical trials on babies within the next few years. 

Early injury, lifetime consequences

Although advances in healthcare mean that more than half of all babies born before 28 weeks survive, a large proportion of these will have a lifelong disability. Even babies born late preterm – between 32 and 37 weeks – are at increased risk.

The brain damage caused by premature birth, known as encephalopathy of prematurity (EOP), can result in long-term disorders like cerebral palsy, severely impaired cognitive functions, attention deficit and hyperactivity disorder (ADHD) and autism spectrum disorder (ASD). Brain injury can also be caused by a lack of oxygen during birth (asphyxia) or a stroke around the time of birth. 

For example, it is estimated that a quarter of all cerebral palsy cases are associated with preterm birth. Diagnosing a brain injury in a preterm baby, however, is complicated and can take days to weeks. Even then, there are few options for treatment. 

Dr Bobbi Fleiss is a researcher and senior lecturer at the Royal Melbourne Institute of Technology (RMIT) in Melbourne, Australia. She leads the RMIT Perinatal Brain Injury lab and is passionate about understanding injury to the brain in newborn babies and how to make outcomes for these infants better. 

‘The standard procedure is applying cooling therapy, which has to happen within six hours after birth,’ explains Fleiss. ‘It is very stressful.’ 

Fleiss is part of a global team of researchers that received funding from the EU to develop an effective alternative treatment for preterm brain injury. Led by the French National Institute of Health and Medical Research (INSERM), the PREMSTEM project runs from 2020 to the end of 2024.

It brings together world-leading clinicians, researchers, stakeholder advocacy groups and an industrial partner specialising in neonatology and drug development from eight countries: Australia, France, Germany, Italy, the Netherlands, Spain, Sweden and Switzerland.

Brain-healing stem cells

Like ArtPlac, PREMSTEM takes its inspiration from nature’s own design. Blood that remains in the umbilical cord after birth contains a special kind of cell called a stem cell. 

These cells have the ability to grow into many different kinds of cells, such as bone marrow cells, blood cells or brain cells. This makes them very valuable for treating a wide range of diseases.

PREMSTEM is using stem cells from donated umbilical cords to create a groundbreaking and easy-to-administer new treatment that could help heal neonatal brain injuries. 

‘Think of stem cells as little factories that produce helpful chemicals and support the brain in helping itself,’ said Fleiss. ‘Our goal is to provide an intranasal treatment using a fine mist containing the stem cells.’

Specifically, a simple nasal spray containing stem cells is sprayed into the baby’s nose. From there, the stem cells travel to the brain, find the damaged areas and assist the brain in repairing itself.

PREMSTEM researchers have successfully tested different delivery systems, several of which have proven to be effective in reducing brain injury in animals. They expect that clinical trials testing the new treatment in human babies should begin in 2026. 

The success of these projects could be life-changing for millions of babies and their families. ‘Even if we help one percent of them, it’d be wonderful,’ said Fleiss.

‘My dream is to see every baby leaving the hospital with smiling families. I hope every parent’s biggest stress will be how to strap their baby into a car seat. Nothing more.’ 

Research in this article was funded by the EU’s Horizon Programme including, in the case of ArtPlac, via the European Innovation Council (EIC). The views of the interviewees don’t necessarily reflect those of the European Commission.

Source:https://projects.research-and-innovation.ec.europa.eu/en/horizon-magazine/pioneering-care-preemies-artificial-placentas-brain-healing-stem-cells

Last updated: August 21, 2024

High-risk pregnancies can be treated and managed through telehealth as long as the patient and provider have an emergency plan in place. US Dept. Health and Human Services

What are considerations for using telehealth for high-risk pregnancies?

Telehealth can provide life-saving health care for pregnant patients. Some rural patients live far from high-risk specialists. Others can’t afford to take time off work or find childcare to go to their provider’s office. There are several ways to ensure access to high quality care for high-risk patients through telehealth.

Use remote patient monitoring

There are several devices that can monitor a patient’s health without the patient having to come into the office for multiple check ups. Remote patient monitoring can also be used to gauge whether a patient has breached the high-risk threshold, meaning it’s time to seek immediate medical care.

Pregnancy-related remote monitoring devices may include:

  • Blood pressure monitors
  • Blood glucose testing
  • At home fetal monitors

Patients should be sent to in-person care when:

  • There is decreased fetal movement
  • There are known fetal abnormalities that require multiple check ups
  • The patient is experiencing pre-eclampsia symptoms
  • The patient is experiencing signs of early labor

Know when to seek in-person care

Part of your telehealth workflow should include a protocol for when to send a high-risk patient to the office or hospital. Some high-risk conditions, including pregnancies with multiple babies and certain chronic conditions, need more in-person oversight than telehealth can provide.

Partner with local resources for rural and underserved patients

Telehealth can be a life-saving resource and also the first line of defense for potential pregnancy complications. This is especially true for rural and underserved patients who may delay, or entirely forgo, prenatal care.

High-risk care tends to be more hands on than complication-free maternal health care. But there are many ways telehealth providers can make sure rural and underserved patients get the care they need, when they need it. Some examples include:

  • Identify and partner with the patient’s local clinic or hospital. Local facilities can often provide routine testing that will help you determine the best course of care, and keep an eye on potentially serious complications. This could include baseline 24 urine collection and labs for pre-eclampsia, STI panels, blood sugar monitoring, and ultrasound.
  • Work with local OB-GYNs for in-person appointments. Underserved patients may often feel more comfortable with providers that are not local to their area.
  • Research local resources and online help post-childbirth. Rural and underserved parents don’t stop needing maternal telehealth care once the baby is born. Telehealth providers can help in those first few days and weeks with telehealth lactation consulting and mental health counseling. Other potential resources following high-risk pregnancies could include maternal or pediatric specialists, local and online behavioral health support, substance use counseling, smoking cessation, and parenting classes.

More information

Telehealth for chronic conditions — Health Resources and Services Administration

Statewide Telehealth Program Enhances Access to Care, Improves Outcomes for High-Risk Pregnancies in Rural Area — Agency for Health Care Research and Quality

Spotlight

Maternal Hypertension Remote Patient Monitoring Project

Using remote patient monitoring (RPM) technology, the University of Mississippi Medical Center, a HRSA-funded Telehealth Center of Excellence, is monitoring women who are at high risk for hypertension during their pregnancy. A nurse coordinator will assist the mothers in coordinating care including connecting them to community and health resources to support a healthy pregnancy. The program also provides maternal child and chronic disease management support and virtual consultations with an obstetrician in the home.

Learn more about the University of Mississippi Medical Center’s Maternal Hypertension RPM project .

YouTube  Child Mind Institute  Apr 27, 2023

Building Resilience: Taking Charge of Your Well-Being

Navigating life as a young person today can feel like an obstacle course of challenges, from school pressures to social expectations and the quest for personal goals. But each of these experiences is also a chance to build something powerful: resilience. Resilience is the ability to bounce back from setbacks and keep going even when the going gets tough. And the good news? It’s a skill anyone can develop with a little practice.

Set Your Own Pace
Life is not a race, despite how it sometimes feels. Take a moment to step back, breathe, and check in with yourself. How do you feel? Are you pushing too hard or not hard enough? Finding your balance is key. Try setting small, achievable goals each week that help you get closer to your bigger dreams. Remember, it’s the consistent, small steps that lead to big changes.

The Power of Positive Self-Talk
Your mind can be a powerful cheerleader—or a tough critic. What you say to yourself impacts how you feel and act, so practice kindness in your self-talk. When a mistake happens, instead of thinking, “I can’t believe I messed up,” try, “I learned something valuable here. I’ll do better next time.” Resilience isn’t about never feeling down; it’s about how you lift yourself back up.

Find Your Outlet
Everyone needs an outlet to decompress and recharge. For some, that’s going for a jog or hitting the gym. For others, it’s creating art, cooking, or simply enjoying a quiet walk. Whatever brings you joy, make time for it. Life can be demanding, but even a few minutes a day spent doing what you love will help you keep your energy up and your stress down.

Celebrate Your Wins
Often, we’re so focused on what we haven’t done that we forget to celebrate what we have achieved. Did you ace that exam, complete a project, or make a new friend? Each accomplishment is worth recognizing. Celebrating even the small victories gives you the confidence to tackle the next big thing with resilience and courage.

Building resilience takes time, patience, and practice. But with each step forward, you’re creating a stronger foundation to support you through whatever life brings your way. Keep going, believe in yourself, and know that every challenge you overcome makes you that much stronger.

Mylemarks

Stress Management Tips for Kids and Teens!

Sep 3, 2020

Today, we will be learning all about stress! You’ll learn the definition of stress, how it affects you, and FIVE helpful ways of coping!

Mental Health Center Kids

Coping Skills For Kids – Managing Feelings & Emotions For Elementary-Middle School | Self-Regulation

Nov 6, 2022

Help children and teens learn how to manage big emotions. Emotional regulation for anger management, stress management, anxiety, depression, and coping strategies for many more mental health struggles. Provide a good foundation of coping skills for elementary and middle school students, and the same concepts can be applied to teenagers or high school students. Three Steps To Manage Emotions: 1) Notice And Identify Your Feelings 2) Think About Coping Skills You Can Use To Feel Better 3) Take Action By Practicing One Or More Coping Skill

        Gravedad Zero

De Colombia para el mundo. Los mejores exponentes del surf local se unieron a tres surfistas explosivos: la campeona mundial de stand up paddle Izzi Gómez, su hermano Giorgio y el panameño Oli Camarena. Dirección y Producción: Germán Bertasio. Edición: Fede Maicas. Comercial: Martín Méndez Pasquali. Productora: Mundo Zero Producciones.

EXCEPTIONAL ACTS, PERSPECTIVES, TRANSFORMING HEALTHCARE

Honduras, officially the Republic of Honduras, is a country in Central America. It is bordered to the west by Guatemala, to the southwest by El Salvador, to the southeast by Nicaragua, to the south by the Pacific Ocean at the Gulf of Fonseca, and to the north by the Gulf of Honduras, a large inlet of the Caribbean Sea. Its capital and largest city is Tegucigalpa.

The nation’s economy is primarily agricultural, making it especially vulnerable to natural disasters such as Hurricane Mitch in 1998. The lower class is primarily agriculturally based while wealth is concentrated in the country’s urban centers. Honduras has a Human Development Index of 0.625, classifying it as a nation with medium development. When adjusted for income inequality, its Inequality-adjusted Human Development Index is 0.443.

The health system consists of a public and a private sector. The former includes the Ministry of Health and the Honduras Social Security Institute . The Ministry serves the entire population in its own facilities staffed by its own physicians and nurses, but it is estimated that only 50%-60% of Hondurans regularly use these services. The Institute covers 40% of employed economically active individuals and their dependents, using its own and contracted facilities. The private sector serves some 10%-15% of the population: those who can afford to pay or are covered by private insurance. An estimated 17% of Hondurans do not have regular access to health services. 

Source:https://en.wikipedia.org/wiki/Honduras

Evelyn Lee, PhD1,2Deborah Schofield, PhD2Mithilesh Dronavalli, MPhil3Kate Lawler, BSc(Med)Hons4Hannah Uebel, MD4,5Lucinda Burns, PhD7Barbara Bajuk, MPH8Andrew Page, PhD3Yuanyuan Gu, PhD6John Eastwood, MBChB, PhD9,10,11,12,13,14Michelle Dickson, PhD15Charles Green, PhD16Lauren Dicair, MSW17Ju Lee Oei, MD4,18,19

JAMA Pediatr. Published online July 22, 2024. doi:10.1001/jamapediatrics.2024.2281

Key Points

Question  Does the increase in health care needs among children exposed to substance use during pregnancy vary by engagement in out-of-home care?

Findings  In this cohort study, children exposed to substance use during pregnancy with or without neonatal abstinence syndrome were at higher risk of adverse birth outcomes and long-term costs than children who were not exposed but a reduction in cost was associated with any out-of-home care contact.

Meaning  Increased support and timely access to services could mitigate the higher readmission risk and cost associated with substance use during pregnancy.

Abstract

Importance  

Children exposed to substance use during pregnancy have increased health needs but whether these are influenced by engagement in out-of-home care is uncertain.

Objective  

To evaluate the association between substance use during pregnancy, out-of-home care and hospitalization utilization, and costs from birth up to age 20 years.

Design, Setting, and Participants  

This was a retrospective cohort study using individual-linked population birth, hospital, and out-of-home care information of all liveborn infants from New South Wales, Australia, between 2001 and 2020 using longitudinal population-based linkage records from administrative databases. Substance use during pregnancy included newborns with neonatal abstinence syndrome (n = 5946) and intrauterine exposure to drugs of addiction (n = 1260) and other substances (eg, tobacco, alcohol, and illicit drugs or misused prescription drugs; n = 202 098). Children not exposed to substance use during pregnancy were those without known exposure to substance use during pregnancy (n = 1 611 351). Data were analyzed from July 2001 to December 2021.

Main Outcomes  

Main outcomes were hospital readmission, length of stay, and cost burden associated with substance use during pregnancy from birth up to age 20 years. Outcomes were investigated using 2-part and Poisson regression models adjusted for sociodemographic characteristics. Mediation analysis was used to evaluate whether the association of substance use during pregnancy with risk of readmission was mediated through engagement with out-of-home care.

Results  

Of the 1 820 655 live births, 935 807 (51.4%) were male. The mean (SD) age of mothers was 30.8 (5.5) years. Compared with children who were not exposed to substance use during pregnancy, those who were exposed incurred significantly higher birth hospital costs (adjusted mean difference, A$1585 per child [US$1 = A$1.51]; 95% CI, 1585-1586). If discharged alive, more children with exposure to substance use during pregnancy had at least 1 readmission (90 433/209 304 [43.4%] vs 616 425/1 611 351[38.3%]; adjusted relative risk [RR], 1.06; 95% CI, 1.06-1.07), most commonly for respiratory conditions (RR, 1.11; 95% CI, 1.09-1.12) and mental health/behavioral disorders (RR, 1.36; 95% CI, 1.33-1.41). Excess hospital costs associated with substance use during pregnancy were A$129.0 million in 2019 to 2020. Mediation analyses showed that any out-of-home care contact mediated the association between substance use during pregnancy and risk of inpatient readmission and lower health care cost (decreased by A$25.4 million). For children with neonatal abstinence syndrome, any out-of-home care contact mediated readmission risk by approximately 30%, from adjusted RR, 1.28; 95% CI, 1.19-1.35, to RR, 1.01; 95% CI, 0.98-1.02.

Conclusion and Relevance

Children who were exposed to substance use during pregnancy incurred more hospital costs than children who were not exposed up to 20 years of age, but this was reduced in association with any contact with out-of-home care. This provides insights into possible strategies for reducing health and financial burdens associated with exposure to substance use during pregnancy for children.

Source:https://jamanetwork.com/journals/jamapediatrics/fullarticle/2821473

Ashley D. Osborne, MD; Diana Worsley, MPH; Catherine Cullen, MD; Ashley Martin, MPH; Lori Christ, MD

May 08 2024

BACKGROUND

Moderately preterm infants (MPTI) comprise a large proportion of NICU admissions and are an understudied population. The unique experience of families with MPTIs has yet to be examined in the literature. Describing MPTI parent needs and preferences may inform interventions to improve care and outcomes for this population.

METHODS

Semi-structured qualitative interviews were performed with English-speaking birth parents of infants born between 32 and 34 weeks gestation to describe their NICU experience and identify areas for improvement specifically surrounding care team inclusion, education, discharge, and communication. Interviews were recorded, transcribed, and analyzed using directed content analysis. Enrollment ceased when the data reached thematic saturation.

RESULTS

Sixteen birth parents participated. Four themes emerged around parent-medical team connectedness, parental confusion, discharge readiness, and the desire for a use of a mix of in-person and electronic communication methods (e-mail, texting, apps, etc.) for communication. MPTI parents valued a strong connection with the medical team; however, they described a lack of knowledge regarding the reasons for admission and ongoing management. Near discharge, parents desired more information regarding feeding, reflux, and breathing patterns. Parents preferred in-person discussions but described a role for electronic methods to improve their understanding of their infant and discharge readiness.

CONCLUSIONS

From the MPTI parent perspective, clinicians can focus improvement efforts on communication, specifically around reasons for admission, discharge planning, and anticipatory guidance. These results may serve as a foundation for initiatives to improve the MPTI parent experience and potentially parent and MPTI outcomes.

Source: https://publications.aap.org/pediatrics/article-abstract/153/6/e2023064419/197249/Enhancing-NICU-Care-and-Communication-Perspectives?redirectedFrom=fulltext

Apr 28, 2023 #NFL #AmericanFootball #Football

Auburn’s Derick Hall survives the near-death experience of being born four months premature, rising to become one of the best defensive ends in the nation – and making a transformational impact on his Gulf Coast community.

Nicolle Fernández Dyess, MD, MEd; Perspectives| September 01 2024

Shetal Shah, MD  Neoreviews (2024) 25 (9): e531–e536.https://doi.org/10.1542/neo.25-9-e531

The modern neonate differs greatly from newborns cared for a half-century ago, when the neonatal-perinatal medicine certification examination was first offered by the American Board of Pediatrics. Delivery room resuscitation and neonatal care are constantly evolving, as is the neonatal workforce. Similarly, the Accreditation Council for Graduate Medical Education review committees revise the requirements for graduate medical education programs every 10 years, and the modern pediatric medical trainee is also constantly evolving. Delivery room resuscitation, neonatal care, and pediatric residency training are codependent; changes in one affect the other and subsequently influence neonatal outcomes. In this educational perspective, we explore this relationship and outline strategies to mitigate the impact of decreased residency training in neonatal-perinatal medicine.

Source:https://publications.aap.org/neoreviews/article-abstract/25/9/e531/199058/The-Relationship-between-Pediatric-Medical?redirectedFrom=fulltext

Dudding, Katherine M. PhD, RN, RNC-NIC, CNE; Assistant Professor

Advances in Neonatal Care 24(5):p 389-390, October 2024.

A couple of months ago, I had a conversation with a Director of Nursing Professional Development from a potential hospital site which to conduct my research. I was asked if I would consider having a couple of nurses help with my study. Without hesitation, I replied “yes, I would be happy to mentor a couple of nurses to assist me with my study.” Initially, I thought this was an odd request because I feel like that is one of my professional responsibilities as a nurse. Upon further thinking, I realized maybe others do not share the same opinion and how unfortunate this would be for our future neonatal nurses, practitioners, educators, and researchers.

According to the American Nurses Association (ANA), 18% of nurses are leaving the profession after 1 year though other sources reported even higher rates of attrition. The nursing workforce dilemma continues to be problematic with nurse turnovers and an alarming rate of nurses leaving the profession after 1 year. While other sourcesreported rates as high as 30%, education and the healthcare systems are establishing strategic interventions to retain nurses. One of these interventions is mentoring. Specifically, peer nurse to nurse mentoring is beneficial when matched into a positive mentored relationship.

MENTORING

Nurses experiencing positive mentorships are associated with intent to remain at their current positions. There is nothing like the support of a mentor when you begin your nursing career. It was the kindness of mentors that taught us and encouraged us to become the best possible nurses and achieve our dreams. The knowledge we gained from our mentors are incorporated into our everyday professional lives. There is not one of us who was not impacted by a mentor and their influence (see Supplemental Figure 1, available at https://links.lww.com/ANC/A292). Many of us will have several distinct types of mentors throughout our nursing careers.

Each mentor serves a purpose and may be time limited. There may be mentors that are experts in clinical practice, education, research, or leadership. You might even have a mentor, whose sole purpose, is your sounding board for difficult decisions. However, there will be a handful of phenomenal nurses who will become lifetime mentors. Those are the special ones that we strive to emulate.

NURSING

When nurses feel supported by administration and mentors, they remain in their jobs. Being mentored gives us the opportunity to grow our skill sets or learn new processes under the guidance of our mentor. The mentor provides the safety net when learning and a resource to ask our never-ending questions without judgment.

We all can remember the hesitation we felt the first time we attempted our first IV. Moreover, we remember the happiness we felt when we successfully started our first IV. This was, in part, due to our mentor’s willingness to mentor us and invest their time and talent into our success. Our mentors believed in us.

It does not take long before these skills in essence become second nature. Our confidence level begins to increase with more successes than failures. We are becoming competent and independent nurses. These achievements cannot help but to spill over into our own interactions with patients, our students with teaching, and our participants in research. Good mentorship also benefits those we serve whether it be our patients, our students we teach or participants in research. Why would we not pay this forward when mentoring results in the best possible outcomes for all?

As our skills are honed, this cultivates our confidence, not only as a competent nurse, but as a valuable team member. Lyu et al states that competence and being integrated into a team is correlated with retention. As a supported team member, we are unstoppable to what we can accomplish in nursing. Eventually, this often leads the nurse mentee to now becoming the mentor.

GROWING THROUGH MENTORSHIP

Being a mentor is frequently the catalyst for endless opportunities for growth and the development of a leader. This may be a leadership opportunity within your respective work environment such as a charge nurse, manager, and director. Your sphere of influence, as a leader, has the ability change practice within the nursing. Moreover, this may motivate a broader impact by earning an advanced degree to become nurse practitioners, educators, and researchers.

What a privilege it is to mentor nurses and leave a lasting impact on the nursing profession. Today’s nursing graduates are tomorrow’s nursing leaders. We have a responsibility to present and future nurses to mentor them. I, personally, will forever be grateful to all my mentors. I am truly standing on the shoulders of giants by kindness that has and continues to be given to me. This act of kindness and giving of oneself through mentoring is invaluable.

In conclusion, there is only one question that remains, “will you step up to mentor the next generation of nurses?”

—Katherine M. Dudding, PhD, RN, RNC-NIC, CNE Assistant Professor The University of Alabama kmdudding@ua.edu

Source:https://journals.lww.com/advancesinneonatalcare/fulltext/2024/10000/peer_nurse_to_nurse_mentoring__an_exceptional_act.1.aspx

July 19, 2023     Sathvik Namburar

In a May 6, 2016 photo, medical residents Dr. Wes Penn, right, and Dr. Cameron Collier, center, walk with medical students down a hallway during their daily rounding at Our Lady of the Lake Regional Medical Center in Baton Rouge, Louisiana. (Gerald Herbert/AP)This article is more than 1 year old.

July marks a time of change in hospitals across the country. It marks the beginning of the academic year for medical residents and fellows, with new physicians starting their training. As I begin the second year of my medical residency this month, I have been thinking about Libby Zion and Nakita Mortimer.

The former was briefly a household name in the 1980s. Libby Zion was a college student who sought care at New York Hospital (now New York-Presbyterian) with a fever in March 1984, only to pass away after her doctors missed a crucial medication interaction. Her distraught parents believed that overworked resident physicians were to blame and drove efforts to institute work-hour caps for residents.

The latter is tragically less known. Dr. Nakita Mortimer was a resident physician at Montefiore Medical Center, and she died by suicide in May 2023. My colleagues and I became aware of her untimely passing almost immediately, as this news spread rapidly through the medical world. (As with all suicides, it will remain unclear specifically why Dr. Mortimer took her own life.)

My colleagues and I reacted to Dr. Mortimer’s death with shock but not surprise. As one of the senior resident physicians in my program put it, “Residency can unmoor even the best of us.”

All of us in the medical profession know classmates or colleagues who were unable to complete their training, overburdened by the demands of the profession. Studies show that upwards of 50% of physicians report feeling burnout.

Residency is a key contributor to these issues. Usually lasting between three and seven years depending on subspecialty, resident physicians have completed medical school but are still undergoing training and cannot independently practice medicine.

Being a resident means working long hours for little pay (the average first-year resident makes about $60,000 a year). Many residency programs continue to require residents to work 28-hour shifts out of a belief that these long hours enhance continuity of care and resident learning.

But by the end of 28-hour shifts, residents are so sleep-deprived that they have the equivalent of blood alcohol contents of 0.1%, above the threshold for being legally drunk. The resident physicians who were taking care of Libby Zion were in the midst of a 28-hour-plus shift and were also responsible for 40 other patients on the night she died.

Often forgotten in the Libby Zion case is that her death led her parents to push not only for reforms in the medical residency system, but also the consideration of legal charges against the resident physicians and the threat of revocation of their licenses to practice medicine. Therefore, to my co-residents and me, her passing is both a clarion call and a warning, that even if we are tired, we must be perfect or else lose our livelihoods. Of course, with the desire for perfection comes incredible mental stress.

With the desire for perfection comes incredible mental stress.

We resident physicians recognize that our profession has societal responsibilities. It is our duty to learn and take care of patients, and we do not and should not expect to work regular 9 a.m. to 5 p.m. hours during our training. My goal is to maximize my learning opportunities so that when I complete residency, I can practice medicine independently and competently.

Physicians take an oath to “Do no harm” and try to live up to this credo. But no one can always be perfect.

Some residency programs have been implementing further reforms to protect resident physicians and patients. Over the past year, I have only had to complete one 28-hour shift, compared to my friends in other residency programs who have had to do dozens of such shifts. My residency also has a dedicated wellness curriculum, peer listening programs and access to mental health professionals.

Still, there is more to do. Residents in programs around the country are forming unions and demanding better working conditions and more pay. After 26 years of stagnation, in 2022, Congress finally approved an increase in the number of residency spots, which would decrease the work burden on residents. Our patients should support these efforts and push for further changes because well-rested, better-paid residents are more likely to provide adequate health care.

Few other jobs place physical and mental demands on employees like residency does, and few other jobs come with the awesome responsibility that being a physician has. Continuing reforms will help prevent deaths like those of Libby Zion and Dr. Mortimer. We owe it to all resident physicians and our patients to ensure that such reforms are enacted.

Editor’s note: You can reach the National Suicide Prevention Lifeline at 1-800-273-TALK (8255) and the Samaritans Statewide Hotline (call or text) at 1-877-870-HOPE (4673). Call2Talk can be accessed by calling Massachusetts 211 or 508-532-2255 (or text c2t to 741741).

Source:https://www.wbur.org/cognoscenti/2023/07/19/medical-residency-long-shifts-libby-zion-nakita-mortimer-sathvik-namburar

A Million Little Miracles       Premiered May 22, 2024

Feeling lost on how to advocate for your preemie in the hospital? NICU grad mom Alexis shares practical tips to help you become your baby’s champion!

Shalece was 30 weeks pregnant when she went to UPMC Magee-Womens Hospital for a follow-up sonogram. At a routine prenatal appointment the week before, doctors felt the baby was smaller than he should be, so they asked her to come back for a second look.

She told her husband, Dion, not to bother calling off work; convinced that there was no danger, she brought her aunt instead, and the two women made plans to go for lunch after the appointment.

“When I got down there, they did the first sonogram. I could tell by their reaction that something was wrong, but they didn’t want to alarm me,” she recalled. “They said, ‘We’re going to send you upstairs for a uterine sonogram and a monitor.’”

Her older son, Dion 2nd, was born at full term 11 years earlier with no complications. So while her aunt panicked, Shalece — a former nursing assistant — remained calm: “I’m not a person who panics a whole lot,” she said, adding that throughout the process, she was thinking, “It’s only 30 weeks. I’m not having this baby today.”

And then the doctor on duty came in and said that, in fact, she was. The blood in the umbilical cord was flowing backward, preventing the baby from getting vital nutrients. She would have to undergo an emergency Cesarian section.

According to Dr. Yoel Sadovsky, MD, executive director of Magee-Womens Research Institute, the reversal of blood flow in the umbilical cord is usually caused by a dysfunction in the placenta — a complication Dr. Sadovsky and other researchers at the institute study.

In such cases, delivery is induced in an effort to save the baby’s life, he noted: “If you don’t deliver someone who has these kinds of findings, some babies don’t even make it.”

But at that moment, Shalece was in denial, even though the staff advised her to call her husband and get him to the hospital.

“I was absolutely not going for it,” she recalled. “In my mind, it wasn’t happening to me; it was happening around me.”

Finally, her aunt called her husband, who arrived in time for the emergency delivery. Their son was born at 1:33 p.m., but Shalece’s blood pressure skyrocketed, so she only glimpsed him before he went to the neonatal intensive care unit (NICU).

Once she stabilized, the staff wheeled her, still in her hospital bed, to meet her tiny son.

“There were more cords and plugs than baby,” she said. “I was able to see him, really see him. From there, it was me and him.”

Little Shea spent two months and three days in the NICU. After seeing her older son on the school bus in the morning, Shalece traveled back to the hospital, where she would sing to Shea, read to him from the Game of Thrones series, and talk.

“I told him, ‘You’re a squatter in this NICU. You’re coming home,’” she said. “I willed this baby into coming home.”

Of the 380,000 babies born prematurely in the United States each year, rates are up to 50 percent higher among women of color, according to the March of Dimes. Black children face an infant mortality rate that is more than twice as high as other infants, according to the U.S. Centers for Disease Control, making prematurity the largest contributor to infant mortality disparities.

Shea spent the first few hours of his life on oxygen and was treated with bilirubin lights for jaundice. He went through several blood transfusions and experienced a brain bleed, but no surgery was required. He also had retinopathy of prematurity, an eye disorder caused by abnormal blood vessel growth in the retina of premature infants, and wears glasses now. He also undergoes physical therapy for mild cerebral palsy.

About a quarter to a third of preterm births are medically induced, Dr. Sadovsky said. Less than 5 percent of all babies need to have a medically-induced preterm delivery for growth restriction, and in the majority of these cases, the placenta is the cause.

“This is a typical case of what we’re studying in our lab,” Dr. Sadovsky said. “One of the major goals of our research is better diagnosis, and importantly, prevention of these kinds of stories.”

Despite the long odds, Shea is now in preschool, and most people don’t realize he has had difficulty walking or climbing steps in the past. He adores sports and superheroes, and he looks up to his big brother.

“He’s your average 4-year-old boy. He is loud. He is fast,” said Shalece.

She knows his premature birth will always influence other parts of his life; she’ll have to be careful about his participation in sports because of his early brain bleeds, and she pays attention to how he learns things, or even how he holds a pencil.

“Once a preemie, always a preemie. You are always on high alert,” she said. She belongs to a support group for mothers of premature infants, where she both draws and offers encouragement.

Asked what advice she would offer to a new mother of a preemie, Shalece said: “Take it one day at a time. Don’t hesitate to cry; crying is good. Don’t feel bad, and reach out for help.”

She remembers how worried she was, and looks at her 4-year-old son riding a bike and realizes how far he has come.

“You have to try a little harder as a parent,” she said, but added, “Being born premature doesn’t mean they aren’t going to be the kid you thought they were going to be.”

Jul 9, 2024 #swaddling #babytips #preemiebaby

Was your baby born more than 3 weeks early? Premature development differs from full-term, but there’s no need to worry! Let’s explore effective ways to understand and support your baby’s growth and milestones. Premature babies are often born with more extended (straight) positions, while full-term babies get a curled up (flexed) feeling from being in the womb longer. Babies need both flexion and extension to help their motor skill development. Try these activities to aid your preemie’s physical growth and work on their flexion. Always consult your healthcare provider for personalized advice.

Medically Reviewed by Amita Shroff, MD on July 30, 2023 Written by R. Morgan Griffin

By the time they’re 2, your preemie has come a long way. It may be hard to believe that your child — maybe a noisy, strong-willed toddler already — is the same person as that tiny, fragile baby you anxiously watched over in the hospital.

What comes next? As they grow, most preemies become healthy children. But some continue to have health issues. And even kids that do well generally may have lasting health effects years and even decades later.

There’s no way to know exactly how your child will grow and develop. In general, the earlier your child was born, the more likely they are to have lasting health issues. Watch out for signs of problems so you can get your child the care and treatment they need.

Your Preemie’s Long-Term Health

If your child was born prematurely, they have a higher chance of some of these health concerns:

Growth problem: Kids who were born at less than 32 weeks of pregnancy — what doctors call “very premature” — are likely to be shorter and weigh less than other kids.

Learning disabilities.Some preemies have lasting problems with how they think and learn. About 1 in 3 kids born prematurely need special school services at some point.

Behavior problems: As they grow up, preemies may be more likely to have attention deficit hyperactivity disorder (ADHD) than full-term babies. They’re also more likely to be shy or anxious.

Breathing problems and asthma:.Lots of preemies need help breathing when they’re born, since their lungs aren’t ready yet. While these issues often go away, some babies born prematurely have lasting asthma or similar problems.

Other health conditions:Some preemies have more serious long-term complications. One example is cerebral palsy, which causes problems with movement and balance. There’s no cure, but it can be managed with treatment. Other kids may have lasting problems with their vision, hearing, and digestive system.

Remember, your child may not develop any of these problems or may outgrow them. But being aware that they have a higher chance of having them is important. If you notice signs, you can get help from your child’s doctor. The faster your child gets treatment for any problems, the better.

Your Preemie in Early Childhood

While your child might have been treated for lots of health problems in the hospital when they were born — like apnea, reflux, and jaundice — most if not all of those should be gone by now. Experts say that in terms of growth, most preemies are more or less caught up to full-term babies by age 3.

When your child is still young you can:

Keep track of your baby’s developmental milestones. Milestones are skills your child will learn, like riding a tricycle or walking up the stairs on their own. They’re often linked with the average age kids are able to do them. When preemies are young, doctors use their “corrected age” — based on their original due date — instead of their birthdate when checking milestones. But by age 2, most preemies have caught up enough that you can start using their actual age.

Remember that milestones are just rough averages. All kids develop differently, whether they’re full-term or premature. It’s not a big deal if your child doesn’t meet a milestone exactly on schedule.

Get help if you need it. If you do notice your child seems to be lagging behind, talk to their doctor. Make sure to ask about a state program called Early Intervention. It offers special services to help babies up to age 3 who have higher odds of developmental delays or disabilities. Some of these services are free. Other options include referral to private therapies such as physical therapy, occupational therapy, feeding therapy, and speech therapy.

Getting Your Child Ready for School

Watching your child go off to school is exciting — and stressful, too. To help make the transition smoother and give your child support, you can:

Get in touch with the school early. Before your child starts school, talk to the staff — like their teacher or the principal — about their health issues and concerns you have. Ask questions about the school’s special education programs. If your child’s teachers understand their needs, they’ll be better able to help them succeed.

Be alert for any new problems. Sometimes, learning disabilities or behavior problems only show up once a child starts school. If your child seems to be struggling, work with their teacher — and make sure your youngster gets special services if they need them.

Gradually give your child more independence. After you spend so much time caring for your child, it can be hard to let them go off on their own. But you have to find a balance between protecting them when they need it and giving them the freedom they need to grow.

As Your Preemie Grows Up

Will the effects of being born premature last into your child’s adulthood? It’s possible. Some studies have linked being a preemie with a higher chance of getting conditions like diabeteshigh blood pressure, and lung and vision problems in adults.

But again, remember that your child only has a higher risk of these problems. They may not develop any of them. You can look at being born premature as another factor that may raise your risk of developing health issues, like a person’s genes, habits, home life and environment. After all, plenty of adults who weren’t born prematurely develop the same health conditions.

The most important need for a child who was born prematurely is to get good, consistent care — both as a child and an adult. Being a preemie can create barriers to your child’s development. But with the help of the right experts — doctors, specialists, therapists, and others — you can often find ways to work around them.

Source: https://www.webmd.com/children/preemies-growth-development-age-two-up

University of Colorado Anschutz Medical Campus    Apr 9, 2024

While a recent explosion in AI technology has exposed its possibilities to the public with online systems such as ChatGPT and Dall·E, researchers at the University of Colorado Anschutz Medical Campus have been exploring the rapidly evolving technology for years and are beginning to harness its problem-solving powers to change healthcare.

Interprofessional Education (IPE) is more than sitting passively in a classroom together. It is integrative, experiential, and about learning and practicing the skills needed to function effectively as a highly collaborative team. Interprofessional collaborative practice makes care safer, more patient-centered, and it leads to lower burnout and higher job satisfaction amongst health professionals. Explore below to learn more about the opportunities to grow your skills in collaboration.

Interprofessional Education (IPE) is an approach to teaching and learning that brings together students from two or more professions to learn about, from, and with each other in service of enabling effective collaboration. The goal of IPE is to improve health outcomes through the education of a practice-ready health care team that is prepared to respond to local health needs (WHO, 2010).

Interprofessional Collaborative Practice (IPCP), or “Practice Transformation,” in health care occurs when multiple health workers from different professional backgrounds provide comprehensive services by working with patients, their families, carers and communities to deliver the highest quality of care across setting (WHO, 2010). The Interprofessional Education Collaborative (IPEC) states that, “interprofessional collaborative practice drives safe, high-quality, accessible, person-centered care and improved health outcomes” (2019).

Source:https://collaborate.uw.edu/about-us/defining-ipe-and-ipcp/

Anna Baranowska-Rataj, Kieron Barclay, Joan Costa-Font,Mikko Myrskylä, Berkay Özcan

Population Studies/ Research Article

A Journal of Demography – Volume 77, 2023 – Issue 3

Abstract

Although preterm birth is the leading cause of perinatal morbidity and mortality in advanced economies, evidence about the consequences of prematurity in later life is limited. Using Swedish registers for cohorts born 1982–94 (N  =  1,087,750), we examine the effects of preterm birth on school grades at age 16 using sibling fixed effects models. We further examine how school grades are affected by degree of prematurity and the compensating roles of family socio-economic resources and characteristics of school districts. Our results show that the negative effects of preterm birth are observed mostly among children born extremely preterm (<28 weeks); children born moderately preterm (32–<37 weeks) suffer no ill effects. We do not find any evidence for a moderating effect of parental socio-economic resources. Children born extremely preterm and in the top decile of school districts achieve as good grades as children born at full term in an average school district.                                   

Supplementary material for this article is available at: http://dx.doi.org/10.1080/00324728.2022.2080247.

As a micro-preemie, my early days were filled with challenges, but the encouragement from my mother to engage in sports became a pivotal part of my development. Growing up, I was introduced to various physical activities, from swimming to basketball, which not only helped me build strength but also instilled a sense of confidence that was essential for my growth. Research has shown that early engagement in sports can significantly benefit the physical and emotional development of children, particularly those with a history of premature birth. According to a study published in the Journal of Pediatrics, participation in physical activities helps improve motor skills and overall health, which are critical areas of development for preemies.

The benefits of sports extend beyond physical health; they also foster social skills and emotional resilience. Engaging in team sports allowed me to develop friendships and learn the value of teamwork. These experiences helped me navigate social dynamics and build a support network that would prove invaluable throughout my life. A report by the American Academy of Pediatrics emphasizes that participation in sports can promote social interactions and enhance communication skills, which are crucial for preemie survivors as they transition into adulthood. My mother’s encouragement to embrace sports created opportunities for me to thrive socially, fostering connections with peers who understood my unique journey.

Moreover, sports provided an essential outlet for stress relief and emotional expression. As I faced the lingering effects of my premature birth, participating in physical activities became a healthy way to cope with anxiety and build self-esteem. Studies have indicated that regular physical activity can reduce symptoms of anxiety and depression, particularly in children who may feel different or face health-related challenges. This therapeutic aspect of sports not only aided in my emotional well-being but also reinforced my belief in the importance of maintaining a healthy lifestyle, which I carry into adulthood.

Reflecting on my journey, I am grateful for my mother’s unwavering support and encouragement to engage in sports. The lessons I learned and the resilience I built through these experiences have shaped who I am today. For other preemie families, I encourage you to explore the world of sports and other physical activities you and they may prefer. The benefits are profound and can lead to a brighter, healthier future for your little ones.

Mid-Atlantic ADA Center 453 views May 30, 2023

Dr. Anjali Forber-Pratt, Director of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) and two-time Paralympian, talks about the importance of adaptive and inclusive sports and recreation for people with disabilities.

5,773 views Nov 14, 2017

David Kyle explains in his talk about his journey from discovering his disabilities and being depressed to a life full of challenges, mobility and opportunity for success as an athlete. David is the director of the UAH Ability Sport Network, which is a program that encourages participation among people with physical disabilities in adapted physical activity. In addition, he is a lecturer in the Department of Kinesiology of UAH’s College of Education. David holds a master’s degree in Health and Physical Education and will complete his doctoral degree in Kinesiology in 2019. He is also a Certified Exercise Physiologist and Disability Sport Specialist. David is a member of the USA Triathlon National Paratriathlon Committee, and competed internationally for 10 years with the USA Elite Paratriathlon Team in triathlon, duathlon, and XTERRA off-road events winning multiple world and national titles in each discipline.

Miss Rosie’s Storytime   Jun 15, 2019

Froggy Plays Soccer By: Jonathan London & Frank Remkiewicz It’s the day of the big game, and Froggy is ready. His soccer team is playing the Wild Things for the City Cup. All Froggy has to do is remember the rule: “Head it! Boot it! Knee it! Shoot it! BUT DON’T USE YOUR HANDS!” But Froggy’s busy doing cartwheels and picking daisies. Uh oh, Froggy! Here comes the ball! Budding soccer players and Froggy’s many fans will welcome Froggy’s latest hilarious adventure.

2020 started off as a big kiting year. About a week after I got back from the Grenadines as buddy called saying he’d organized a trip to a little known kite spot in Honduras called Roatan. Everyone scrambled to move things around, and at the last minute it all came together.

Guides, Patterns, Stewardship

Scotland is a country that is part of the United Kingdom. It contains nearly one-third of the United Kingdom’s land area, consisting of the northern part of the island of Great Britain and more than 790 adjacent islands, principally in the archipelagos of the Hebrides and the Northern Isles. To the south-east, Scotland has its only land border, which is 96 miles (154 km) long and shared with England; the country is surrounded by the Atlantic Ocean to the north and west, the North Sea to the north-east and east, and the Irish Sea to the south. The population in 2022 was 5,439,842 and accounts for 8% of the population of the UK. Edinburgh is the capital and Glasgow is the largest of the cities of Scotland.

NHS Scotland sometimes styled NHSScotland, is the publicly–funded healthcare system in Scotland and one of the four systems that make up the National Health Service in the United Kingdom. It operates 14 territorial NHS boards across Scotland, supported by seven special non-geographic health boards, and Public Health Scotland.

At the founding of the National Health Service in the United Kingdom, three separate institutions were created in Scotland, England and Wales and Northern Ireland.

https://en.wikipedia.org/wiki/Scotland#

  • There are an estimated 29 million nurses worldwide and 2.2 million midwives. WHO estimates a shortage of 4.5 million nurses and 0.31 million midwives by the year 2030.
  • That will bring the a global shortage of health workers estimated for 2030 to 4.8 million nurses and midwives, with the greatest gaps found in countries in Africa, South-East Asia and the WHO Eastern Mediterranean Region, as well as some parts of Latin America. 
  • Nurses and midwives play a pivotal role in improving health and contributing to the wider economy. Investing in them is imperative to achieve efficient, effective, resilient and sustainable health systems. They not only provide essential care but also play a critical role in shaping health policies and driving primary health care. Nurses and midwives deliver care in emergency settings and safeguard the sustainability of health systems globally.
  • Globally, 67% of the health and social workforce are women compared to 41% in all employment sectors. Nursing and midwifery occupations represent a significant share of the female workforce.
  • More than 80% of the world’s nurses work in countries that are home to half of the world’s population. And one in every eight nurses practices in a country other than the one where they were born or trained.
  • Higher levels of female nurses are positively correlated with health service coverage, and life expectancy and negatively correlated with infant mortality.

Overview

Nurses and midwives are central to Primary Health Care and are often the first and sometimes the only health professional that people see and the quality of their initial assessment, care and treatment is vital. They are also part of their local community – sharing its culture, strengths and vulnerabilities – and can shape and deliver effective interventions to meet the needs of patients, families and communities.


WHO response

WHO’s work relating to nursing and midwifery is currently directed by World Health Assembly resolution WHA74.15 (2021) which calls on WHO Member States and WHO to strengthen nursing and midwifery through the Global Strategic Directions for Nursing and Midwifery (SDNM) 2021–2025. The SDNM is an interrelated set of policy priorities  that can help countries to ensure that midwives and nurses optimally contribute to achieving universal health coverage (UHC) and other population health goals .

The SDNM comprises four policy focus areas: education, jobs, leadership, and service delivery Each area has a “strategic direction” articulating a goal for the five-year period, and includes between two and four policy priorities If enacted and sustained, these policy priorities can support advancement along the four strategic directions: 1) educating enough midwives and nurses with competencies to meet population health needs; 2) creating jobs, managing migration, and recruiting and retaining midwives and nurses where they are most needed; 3) strengthening nursing and midwifery leadership throughout health and academic systems; and 4) ensuring midwives and nurses are supported, respected, protected, motivated and equipped to safely and optimally contribute in their service delivery settings.

WHO engages ministries of health, the Government Chief Nurses and Midwives (GCNMOs) and other relevant stakeholders to enable effective planning, coordination and management of nursing and midwifery programmes in countries. The Global Forum for the Government Chief Nurses and Midwives, established in 2004, is organized by WHO and meets every two years. It is a Forum for senior nursing and midwifery officials to develop and inform areas of shared interest. WHO also engages with academic institutions specialised in nursing and midwifery. Forty-seven academic centres are designated as Collaborating Centres for Nursing and Midwifery with WHO. The academic centres are affiliated to the Global Network of WHO Collaborating Centres for Nursing and Midwifery.

WHO has established a Nursing and Midwifery Global Community of Practice (NMGCoP). This is  a virtual network created to provide a forum for nurses and midwives around the world to collaborate and network with each other, with WHO and with other key stakeholders (e.g WHO collaborating centres for nursing and midwifery, WHO Academy, Nursing and Midwifery Associations and Institutions.) The network will provide discussion forums, a live lecture programme, opportunities to develop and share policies, WHO documents and tools, and facilitated innovation workshops, masterclasses and webinars.

The Nursing and Midwifery Global Community of Practice is free to join and available to nurses and midwives everywhere.

From May 2022 it will be possible to access the virtual community via a smartphone, by downloading the Nursing and Midwifery Global Community of Practice App Nurses Beyond the Bedside_WHO_CSW66 Side Event available for Android and IOS system via the APP store.

A 2017 Report on the history of nursing and midwifery in the World Health Organization 1948 –2017, demonstrates how WHO, since its inception, has given this workforce a voice, and highlights the critical role nurses and midwives play in improving health outcomes across the world.

Feb 8, 2024

Watch this amazing Scottish artist sing Yellow by Coldplay with me! @AndrewDuncan

Mary A. Short MSN, RN – Volumn19/Issue 5 May 24

Critical Path Institute (C-Path) announces the launch of Bridging the GAP: Empowering Neonatal Nurses in Drug Development for Neonates, a comprehensive series covering the history of neonatal drug development, approaches to promote drug development for neonates, pharmaceutical industry decision-making processes, and strategies for advocating neonatal needs. Developed in collaboration between its International Neonatal Consortium (INC) and the National Association of Neonatal Nurses (NANN), this series aims to empower neonatal nurses and interested neonatal health care professionals with the knowledge needed to actively participate in research and ensure better outcomes for our tiniest patients.

“As an organization committed to advancing neonatal research and care, we recognize the vital role nurses and clinicians play in the hospital setting,” said INC Executive Director Kanwaljit Singh, MD, MPH. “This collaboration with NANN represents a pivotal step forward in our mission to support and empower neonatal nurses and clinicians. By engaging them in developing these educational modules, we aim to enhance their understanding and involvement in neonatal clinical trials and drug development.”

The modules aim to provide foundational knowledge on innovative, regulated medicines development for neonates, including pipeline decision-making factors and addressing neonatal needs within the current environment. Upon completion of the presentations and activity evaluations, participants can earn up to 4.5 FREE CE credits and 2.56 FREE pharmacology credits. NANN is an accredited provider of nursing continuing professional development recognized by the American Nurses Credentialing Center’s Commission on Accreditation. The content is appropriate for AMA PRA Category 2 Credit. The presenters reflect the diversity of neonatal stakeholders, as illustrated in Figure 1, which outlines the module titles and the presenters involved.

Background:

Neonates are therapeutic orphans, underserved by the drug development community, and lag in the development of new, safe, and effective therapies. Most NICU drugs are off-label, impacting their safety and efficacy evaluation.  Nurses play a vital role in administering medications and monitoring their effects but often lack a comprehensive understanding of clinical trials and drug development processes in the NICU. Critical Path Institute (C-Path) is an independent nonprofit established in 2005 as a public-private partnership in response to the FDA’s Critical Path Initiative. C-Path’s mission is to lead collaborations that advance better treatments for people worldwide. Globally recognized as a pioneer in accelerating drug development, C-Path has established numerous international consortia, programs, and initiatives that currently include more than 1,600 scientists and representatives from government and regulatory agencies, academia, patient organizations, including parent/family advocates, nursing organizations, disease foundations, and pharmaceutical and biotech companies. INC, established in 2015 as a public-private partnership within the construct of C-Path, advances the unmet drug development needs in the neonatal population.

INC conducted a multistakeholder (neonatologists, neonatal nurses, parents) survey to explore communication practices and stakeholders’ perceptions and knowledge regarding the conduct of clinical trials in the NICU. Survey results indicated that most neonatologists (82%) responded that medications are insufficient to meet the needs of critically ill neonates and identified a knowledge gap for nurses regarding drug development. Degl et al. conclude that the engagement of nurses at all stages of neonatal research is suboptimal and indicates a need for nurses to be educated about research. Beauman et al. report additional findings specific to nurse respondents from the multistakeholder survey. Nurses expressed a learning need because they historically lacked effective education to prepare them for competent participation in neonatal research, especially in informing study design. The authors recommend leveraging neonatal nurses’ unique and essential role as key stakeholders from the onset of the study design to enhance the conduct of neonatal clinical research and improve care for premature and sick neonates.

To address the survey findings, industry representatives held an education workshop on Pharmaceutical Drug Development for Neonates at the 2019 INC Annual meeting intended for all neonatal stakeholders, including academics, clinicians, and regulators. The INC Communication Workgroup updated the content for the recently launched education modules, emphasizing the significance of the information for nurses, but the content remains relevant to other neonatal healthcare professionals.

Product Description:

“Consistent with our mission to elevate and transform neonatal care, NANN is grateful to bring forth this important collaboration with INC and give all neonatal nurses access to these outcome improving modules,” said NANN Executive Director Molly Anderson. “We know neonatal nurses have the expertise and knowledge to play an essential role in drug development that benefits their patients. NANN seeks out partnerships with organizations like INC that allow us to empower deepened nurse involvement with all aspects of care throughout their careers.”

The series includes access to seven on-demand video modules related to nurse-informed neonatal study design for drug development to provide context for the importance and implications for neonatal nurses. The NANN iLEARN site provides a platform for open access. Share the product flyer with colleagues to provide the QR code for access.

Jan 31, 2021       Kay Lloyd

Free patterns. Great for a beginner or just someone who wants to make for local maternity/neo natal hospital.

A Call to Action

Zukowsky, Ksenia PhD, CRNP, NNP-BC; Editorial Board Member; Savin, Michele Kacmarcik DNP, APRN, NNP-BC, CNE, FAWHONN; Assistant Professor Director; Manning, Mary Lou PhD, CRNP, CIC, FAPIC, FSHEA, FAAN; Professor Director

Advances in Neonatal Care 24(3):p 209-211, June 2024. | DOI: 10.1097/ANC.0000000000001168

Metrics

Antibiotics are life-saving drugs and essential for the treatment of many serious infections, but widespread inappropriate use is now common and has become a major contributor to the development of antibiotic resistance (ABR). ABR is an urgent global public health and socio-economic threat, generating calls for actions from the World Health Organization and the US Centers for Disease Control and Prevention (CDC). Left unchecked, ABR is poised to reverse a century of medical progress, rendering antibiotics ineffective in treating even the most common infectious diseases. Infants admitted to neonatal intensive care units (NICUs) are at high risk for the development and transmission of multidrug-resistant pathogens, particularly where hospital stays are prolonged because of prematurity or congenital anomalies.3 Worldwide, sepsis is the third leading cause of neonatal mortality, with antibiotic resistant pathogens responsible for approximately 30% of deaths.

Antibiotics are the most common medication prescribed in NICUs, with wide variability in use, regardless of the level of care or complexity of patients.5 On any given day, 40% of infants admitted to a NICU are prescribed antibiotics, with an estimated 90% exposed to antibiotics over the duration of their NICU stay. A recent study published in The Lancet Regional Health-Southeast Asia found that the most commonly prescribed antibiotics in Southeast Asia are now only 50% effective at treating sepsis and meningitis in newborns. Furthermore, there is increasing evidence that preterm infant antibiotic exposure is associated adverse outcomes including alteration in the intestinal microbiome, necrotizing enterocolitis, invasive fungal infections, retinopathy, and late-onset sepsis.5 Early life antibiotic exposure is also associated with future health problems including childhood obesity, asthma, allergic disorders, and inflammatory bowel disease. Therefore, it is important to find strategies to reduce antibiotic use in the NICU patient population.

ANTIBIOTIC STEWARDSHIP

According to the Society for Healthcare Epidemiology of America, the Infectious Diseases Society of America, and the Pediatric Infectious Diseases Society, the major objective of antibiotic stewardship (AS) is to achieve the best clinical outcomes related to antibiotic use while minimizing toxicity and other adverse events, thereby limiting the emergence of ABR bacterial strains. AS – a core strategy to combat ABR – is intended to ensure patient safety through the implementation of combined, coordinated interprofessional interventions to optimize how antibiotics are used. Studies indicate that the implementation of AS initiatives in NICUs is associated with a significant decrease in the overall days of therapy and reduction in use of broad-spectrum antibiotics, such as cephalosporins, without adverse issues. However, significant gaps exist between CDC recommendations to improve antibiotic use and antibiotic practices during the neonatal and newborn period. Until recently, AS interventions focused primarily on improving clinician antibiotic prescribing practices through formulary restriction and prospective audit with feedback. However, with more nurses in the frontline of healthcare than any other healthcare profession, the CDC, the American Nurses Association (ANA), the International Council of Nurses and The Joint Commission, have endorsed nurses’ active participation in AS activities to expand the reach and impact of stewardship programs. A recent survey of NICU nurses found that most were familiar with the term AS, yet over half reported administering an antibiotic to a patient who they thought was an inappropriate choice and most reported not questioning the treating provider about antibiotic choice, dose or route of administration.

THE ROLE OF NEONATAL NURSES AND NEONATAL NURSE PRACTITIONER IN ANTIBIOTIC STEWARDSHIP

As trusted professionals, expert clinicians, and advocates for their patient’s health, neonatal nurses and neonatal NPs are well qualified to make significant contributions to the reduction of ABR through active engagement in AS. There are multiple AS activities to consider now.

  • Advance your knowledge. Read the articles cited in this editorial. Participate in educational opportunities (eg, grand rounds, seminars, webinars) to advance your antibiotic, ABR and AS knowledge. Learn with and from others by starting an interprofessional AS journal club or lunch-and-learn at your practice setting. Contact the National Association of Neonatal Nurses and encourage them to provide state-of-the-science ABR and AS educational sessions specific to neonatal care and evidence-based antibiotic prescribing.
  • Advocate for the adoption and evaluation of at least one nurse driven AS recommended action in your practice setting. Many preterm infants who do not have infections receive antibiotic treatment in the setting of negative cultures. Consider implementing daily antibiotic timeouts.
  •  Antibiotic time-outs involve a daily formal antibiotic review, often conducted during clinical rounds, to determine if a modification or discontinuation of a patient’s antibiotic therapy is warranted. The time-out approach is in keeping with nurse engagement in prevention of central line-associated bloodstream infections, which includes a daily formal review of central line necessity. Bedside neonatal nurses are well positioned to lead reassessment of antibiotic treatment for they know how long a patient has been receiving antibiotic(s) and when diagnostic test results become available. For additional examples of nursing interventions that may have an important impact on promoting nurse engagement, read the recommendations from the ANA/CDC Workgroup and an article providing a framework to guide AS nursing practice.
  • Become an antibiotic stewardship champion. Neonates are entitled to receive antibiotic therapy that is based on evidence and best practice, but might be overlooked in hospital AS programs. Build and strengthen partnerships and facilitate communication between the NICU clinical staff and your organization’s AS team (physicians, clinical pharmacists, clinical laboratory personnel). Reach out to the AS team to learn about the overall AS program and specific AS NICU strategies. Engage and educate NICU staff about AS to increase their buy-in and awareness of nursing-related AS practices. Consider AS within the tenets of patient safety, and promote local-level “stewarding” behaviors that tap into the interprofessional NICU team’s collective knowledge, expertise, relationships and wisdom.15 NICU AS nursing practices should be intentionally selected, and strategically align with the organization’s AS program, giving ample consideration to the local context and tailored to the needs and resources of the NICU patients and clinical setting.
  • Monitor your antibiotic prescribing practices. A core AS strategy is tracking and reporting of provider antibiotic prescribing. Audit and feedback, includes analyzing antibiotic prescribing data and providing feedback to clinicians aimed at helping them understand their antibiotic prescribing habits. These data are most effective when individual results are compared to other clinicians in the clinician’s area and/or specialty (e.g., NNP peer comparisons). If you are a prescriber and are not receiving peer comparison audit and feedback data, work closely with your practice colleagues to develop a process to audit patterns of antibiotic prescribing to gauge appropriateness.
  • Use evidence-based clinical decision support systems. Clinical decision support systems are electronic tools or software that provide guidance to providers in making both diagnostic and therapeutic choices for patients.16 Applications range from pop-up reminders during a patient encounter, to automated order entry, to electronic guides, including dynamic interactive programs that tailor guidelines to specific patients. Such systems can be particularly useful when applied to antibiotic prescribing. Engage and partner with the NICU clinical team to identify the most useful systems to enhance clinical guideline adherence, decrease antibiotic consumption, or narrow the spectrum of antibiotic usage.

ABR has been aptly described as a subtle, slow moving catastrophe. AS programs aim to optimize antibiotic use to prevent the emergence of resistant pathogens and protect patients from the adverse effects of unnecessary antibiotics. We posit that all NICU nurses have a central role to play in the safe and responsible use of antibiotics and suggest several strategies for NICU nurses to engage in preventing unnecessary antibiotic exposure in this highly vulnerable population. We encourage you to seize the moment and become active, engaged stewards!

https://journals.lww.com/advancesinneonatalcare/fulltext/2024/06000/neonatal_nurse_and_nurse_practitioner_engagement.1.aspx

First Day of Neonatology

Dr. Glaucomflecken

Jennifer Degl, MS, Deb Discenza, MA, Mitchell Goldstein, MD, MBA, CML

In contemporary healthcare settings, the role of a Neonatal Intensive Care Unit (NICU) Volunteer Coordinator is indispensable, as it embodies the essence of compassionate care and community support for families navigating the challenges of premature births and neonatal health complications. While volunteer coordinators are often relied upon to fulfill this critical role, it is imperative to recognize the value they bring to the table and advocate for establishing a paid position dedicated to this noble cause.

Parents experience trauma regardless of what level NICU their baby is in and no matter the length of their NICU stay, and so it is vital that we push for a national campaign to address the inequity in order to help families bond and start the healing process before discharge. Not doing so can lead to trauma-related family issues at home. Currently, we largely focus on preparing parents for discharge across all things involving care of the infant. Why would we leave out the important topic of mental health Not addressing this important issue is tantamount to failure for that infant’s long term outcome, not to mention the outcome of the family unit as well. A NICU Volunteer Services Coordinator can alter that trajectory.

The NICU Volunteer Services Coordinator serves as a beacon of hope and support for families enduring the emotional rollercoaster of having their newborn hospitalized. This position encompasses a myriad of responsibilities aimed at fostering a nurturing environment within the NICU, where families feel empowered and supported throughout their journey. From recruiting additional NICU graduate parents to serve as volunteers to organizing crucial training sessions on mental health first aid and active listening, the coordinator plays a pivotal role in equipping volunteers with the necessary skills to provide invaluable support to NICU families.

 Furthermore, the coordinator is a liaison between volunteers, nursing staff, and physicians, ensuring seamless communication and collaboration for improving patient care. Facilitating regular meetings and educational events creates opportunities for peer to-peer support among parents and disseminates vital information on neonatal care practices, empowering families to make informed decisions regarding their child’s healthcare journey.

The significance of celebrating milestones and raising awareness cannot be overstated in the NICU setting. The coordinator spearheads initiatives such as NICU Awareness Month/Day and World Prematurity Month/Day, fostering community and solidarity among NICU families and staff. Moreover, their involvement n fundraising activities and grant writing endeavors ensures continued access to resources and services that benefit NICU babies and their families, underscoring their dedication to enhancing the quality of care provided.

Regarding qualifications and working conditions, the NICU Volunteer Services Coordinator must possess a unique blend of empathy, organizational acumen, and leadership skills. While a post-secondary education degree serves as a foundation, firsthand experience as a parent of a NICU graduate and previous involvement in peer mentoring or emotional support roles are invaluable assets. The flexible nature of the position, with a combination of on-site and remote work, accommodates the dynamic needs of NICU families while ensuring that the coordinator remains accessible and responsive to their concerns.

Crucially, advocating for a paid position for the NICU Volunteer Services Coordinator acknowledges the intrinsic value of their role and underscores the commitment of healthcare institutions to prioritize patient-centered care and community engagement. By investing in this position, hospitals enhance the support provided to NICU families and cultivate a culture of compassion and collaboration that is essential for fostering positive health outcomes.

In conclusion, establishing a paid position for the NICU Volunteer Services Coordinator is not merely a bureaucratic formality but a testament to the unwavering commitment of healthcare institutions to uphold the highest standards of patient care and support. By recognizing the invaluable contributions of these dedicated individuals, we affirm our collective responsibility to ensure that every NICU family receives the compassion, guidance, and support they deserve during their journey toward healing and hope. And in the end, the hospital, as a whole, wins substantially through quality improvement scores and community appreciation. It is worth the investment because the benefits are tenfold.

August 15, 2023 – by Robert Forman

Midwife care can improve pregnancy outcomes for mothers and babies, says new “Expert Review” from Yale faculty

The practice of midwifery is less common in the United States than in other countries and other cultures, which is a shame because adding care by midwives generally improves childbirth outcomes, according to two Yale faculty members who have published an “Expert Review” in the American Journal of Obstetrics & Gynecology. Holly Powell Kennedy PhD, MSN,CNM, the Helen Varney Professor of Midwifery, and  Joan Combellick, PhD, MPH,CNM, assistant professor of nursing, along with their colleagues, examined the scientific literature related to midwifery and childbirth, and conclude that many measures of successful pregnancy are elevated when midwives play a central role.

They cite the approach to midwifery that is standard in other countries, especially in wealthy European nations, where women have as much as seven times the access to midwives that they do in the United States. They report that midwifery care has improved outcomes by 56 different measures—including lower morbidity and mortality among mothers and newborns, fewer preterm births and low birthweight infants, and reduced interventions in labor.

The authors acknowledge that differences in those countries’ overall health systems make a substantial contribution to good outcomes, but say it’s the integral role of midwives that matters most. “In other countries, midwives make up the basic maternity care provider workforce, and then, obstetricians are used as the specialists that they are, surgeons who are there to handle complications,” says Combellick. “[Midwives] are the experts in normal childbirth, which happens the majority of the time.” Combellick adds that midwives also extend their care beyond pregnancy. “We also do well-person preventive care, across the lifespan from teenagers through postmenopausal people, so it isn’t only pregnancy-related.”

The Value of Midwives at the Baby’s Arrival

But the continuum of pregnancy, birth, and postnatal care is what midwives are best known for, and where the contribution of midwives can differ sharply from what is often considered standard care. Kennedy says a very basic way that outcomes can improve is because prenatal care by midwives is not squeezed into appointments of a set duration, where the provider may not have the time to fully answer the patient’s questions. Kennedy notes that in some settings, midwives caring for a woman throughout the pregnancy bring continuity and can structure longer appointments. Having more time permits building better rapport with a mother-to-be and helps her feel more respected, which often translates into a smoother pregnancy.

“In our paper, we discuss some of the research done about respect. It’s true for any kind of health care, but particularly in prenatal care,” says Kennedy. “It can amount to being highly disrespected and simply having to wait two hours for a very short prenatal visit. If people aren’t feeling respected or safe, they’re less likely to keep coming in for prenatal care.” Combellick adds that this can be especially true for women of color, for whom the cumulative race-based disrespect they endure in their daily lives can make the pressures of pregnancy more intense.

When the time for delivery arrives, a few statistics are especially striking. First-time mothers giving birth at medical centers where midwives were on their care team were 74% less likely to have their labor induced, 75% less likely to receive oxytocin augmentation, and 12% less likely to deliver by cesarean than their counterparts at medical centers without midwives in attendance.

Midwives and Ob/gyns Collaborate During Childbirth

Combellick says that on a collaborative team, the pregnant person is at the center of care, with everyone contributing their particular expertise. Whether to wait and allow labor to continue at its own pace, to induce, or to perform a cesarean can generally be a shared decision that involves patient understanding and consent. “We are collaborators,” says Combellick. “We work in conjunction with physicians. To have two viewpoints thinking about one person is a really strong style of care.”

At Yale, Kennedy and Combellick contribute to the midwifery faculty practice supporting student midwives as they learn. Faculty practice midwives are also active with obstetricians-in-training. “We contribute to the resident training program,” Combellick says. “So the residents, when they first come, are assigned to follow a midwife. Around the country, midwives often play a role in demonstrating ‘here’s what normal physiologic birth looks like,’ and that occurs at Yale.”

Hugh S. Taylor, MD, chair and Anita O’Keeffe Young Professor of Obstetrics, Gynecology & Reproductive Sciences at Yale School of Medicine, says this collaboration has been good for all involved. “It’s important that all of our practitioners get exposure and training on the collaborative practice model. The trainees participate in these teams and get a living example of how collaboration results in outstanding care. It was very important to establish that program—not only for patient care but for our residents and students.”

Taylor says that both for prenatal care and during deliveries, the presence of midwives on the care team can be invaluable. “Most of the prenatal care in our collaborative practice is delivered by midwives, with appropriate escalation and/or referral when things get complicated. If somebody develops diabetes or high blood pressure in pregnancy, we get the physician involved. However, for routine prenatal care or uncomplicated deliveries, we try to keep the physician in the background.”

Kennedy and Combellick both hope that the profile of midwifery in this country will rise, both through growing what Combellick now calls a “relatively small midwifery workforce” that attends only 10 to 12% of births in the United States, and by reforming practices related to health care delivery at large. “It’s not a simple, magical thing about the midwife,” Kennedy concludes, “but really about the model of care: that it’s accessible, it’s available, it’s respectful.” Those changes for the better, they say, would be nothing short of radical, and they are doing their part to gather the available evidence and advocate for change to happen.

https://medicine.yale.edu/news-article/the-value-of-midwives-during-prenatal-care-and-birth/

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Notes: To use the mobile app you must first create an UpToDate account. Use this link on the WCMC-Q network to create an account.

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Do you need evidence-based answers to clinical questions at the point of care? The First Consult iPhone/iPad app is your solution. The app allows First Consult’s trusted answers to be stored on your iPhone, iPad, or iPod touch. A data connection is required for the initial content download and content updates, but is not required to use the app itself.

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DynaMed Plus™ is the clinical reference tool that physicians go to for answers to clinical questions. Content is written by a world-class team of physicians and researchers who synthesize the evidence and provide objective analysis. DynaMed Plus topics are always based on clinical evidence and the content is updated multiple times each day to ensure physicians have the information they need to make decisions at the point of care.


Note: To use this app begin by clicking on the “Get the DynaMed Plus Mobile App” link on the DynaMed Plus homepage. See this link for more information.

Touch Surgery, Surgical Simulator – Free

Touch Surgery is an interactive mobile surgical simulator that guides you step-by-step through every part of an operation, and every decision that’s made along the way. It’s the OR in your pocket.

Preop Eval – Free

Preop Eval organizes and presents much of the guidance that one needs in order to evaluate and prepare adult patients for non-cardiac surgery. It is based upon the guidelines on this topic from the American College of Cardiology of 2014, the European Society of Anaesthesiology of 2011, , and more. The app contains 1 algorithm and 3 resources: the cardiac evaluation algorithm, guidance on starting and stopping key medications in the perioperative period, guidance on timing of surgery after cardiac events, and guidance on preoperative testing. It also contains a review of preoperative evaluation mainly for students and residents.

AO Surgery Reference – Free

AO Surgery Reference is an online repository for surgical knowledge. It describes the complete surgical management process from diagnosis to aftercare for all fractures of a given anatomical region, and also assembles relevant material that the AO has published before.

drawMD General Surgery – Free

drawMD General Surgery’s content was developed by physicians and clinical practitioners to facilitate discussion of the most common conditions and procedures. The drawMD platform allows you to easily annotate any condition on our pertinent medical illustration or you can easily upload your own images.

*** This site also has All-Purpose Clinical APPs:

https://hslib-guides.qatar-weill.cornell.edu/c.php?g=364087&p=4181702

In Scotland, we believe that parenting is one of the most important jobs in the world. The work we do preparing our children for the future will ultimately shape our world in the years to come. With that in mind, we want to make sure that Scotland was the best place in the world to grow up in. That’s why, in 2017, we launched the Baby Box initiative, which is designed to give every single baby in Scotland an equal start in life.

Scottish Government   Jun 29, 2022

New babies need a surprising amount of stuff! Scotland’s Baby Box is packed full of clothes, bedding and lots of other useful things to help give your baby the best possible start in life

https://www.scotland.org/live-in-scotland/progressive-scotland/baby-box

by Eduardo Gonzalez-Moreira, Thalía Harmony, Manuel Hinojosa-Rodríguez, Cristina Carrillo-Prado,María Elena Juárez-Colín,Claudia Calipso Gutiérrez-Hernández, María Elizabeth Mónica Carlier, Lourdes Cubero-Rego, Susana A. Castro-Chavira, and Thalía Fernández / Published: 2 May 2023

Abstract

Background: Preterm birth is one of the world’s critical health problems, with an incidence of 5% to 18% of living newborns according to various countries. White matter injuries due to preoligodendrocytes deficits cause hypomyelination in children born preterm. Preterm infants also have multiple neurodevelopmental sequelae due to prenatal and perinatal risk factors for brain damage. The purpose of this work was to explore the effects of the brain risk factors and MRI volumes and abnormalities on the posterior motor and cognitive development at 3 years of age. Methods: A total of 166 preterm infants were examined before 4 months and clinical and MRI evaluations were performed. MRI showed abnormal findings in 89% of the infants. Parents of all infants were invited to receive the Katona neurohabilitation treatment. The parents of 128 infants accepted and received Katona’s neurohabilitation treatment. The remaining 38 infants did not receive treatment for a variety of reasons. At the three-year follow-up, Bayley’s II Mental Developmental Index (MDI) and the Psychomotor Developmental Index (PDI) were compared between treated and untreated subjects. Results: The treated children had higher values of both indices than the untreated. Linear regression showed that the antecedents of placenta disorders and sepsis as well as volumes of the corpus callosum and of the left lateral ventricle significantly predicted both MDI and PDI, while Apgar < 7 and volume of the right lateral ventricle predicted the PDI. Conclusions:  The results indicate that preterm infants who received Katona’s neurohabilitation procedure exhibited significantly better outcomes at 3 years of age compared to those who did not receive the treatment.  The presence of sepsis and the volumes of the corpus callosum and lateral ventricles at 3–4 months were significant predictors of the outcome at 3 years of age.

OPEN ACCESS ARTICLE HERE: Brain Sci. 2023, 13(5), 753; https://doi.org/10.3390/brainsci13050753 ; https://www.mdpi.com/2076-3425/13/5/753

Ryan Jaslow – Program Director, External Communications – Research, Mass General Brigham- rjaslow@mgb.org

06/05/24

Key Takeaways

  • A new clinical trial in Shanghai, China, in partnership with Mass Eye and Ear researchers, demonstrated the restoration of hearing in both ears in five children born with autosomal deafness caused by mutations in the OTOF gene.
  • All children gained ability to determine locations that sounds came from and improved speech perception in noisy environments.
  • The trial is the first to provide gene therapy for this form of inherited deafness to children in both ears, and the researchers hope to expand this work internationally.

Boston, Mass. — A novel gene therapy designed to target a form of inherited deafness restored hearing function in five children who were treated in both ears. The children also experienced better speech perception and gained the ability to localize and determine the position of sound. The study, the world’s first clinical trial to administer a gene therapy to both ears (bilaterally), demonstrates additional benefits than what were observed in the first phase of this trial, published earlier this year, when children were treated in one ear. The research was led by investigators from Mass Eye and Ear (a member of the Mass General Brigham healthcare system) and Eye & ENT Hospital of Fudan University in Shanghai, and findings were published June 5th in Nature Medicine.

“The results from these studies are astounding,” said study co-senior author Zheng-Yi Chen, DPhil, an associate scientist in the Eaton-Peabody Laboratories at Mass Eye and Ear. “We continue to see the hearing ability of treated children dramatically progress and the new study shows added benefits of the gene therapy when administrated to both ears, including the ability for sound source localization and improvements in speech recognition in noisy environments.”

The researchers noted their team’s goal was always to treat children in both ears to achieve the ability to hear sound in three dimensions, a capability important for communication and common daily tasks such as driving.

“Restoring hearing in both ears of children who are born deaf can maximize the benefits of hearing recovery,” said lead study author Yilai Shu MD, PhD, professor, director of Diagnosis and Treatment Center of Genetic Hearing Loss affiliated with the Eye & ENT Hospital of Fudan University in Shanghai, “These new results show this approach holds great promise and warrant larger international trials.

Over 430 million people around the world are affected by disabling hearing loss, of which congenital deafness constitutes about 26 million of them. Up to 60 percent of childhood deafness is caused by genetic factors. Children with DFNB9 are born with mutations in the OTOF gene that prevent the production of functioning otoferlin protein, which is necessary for the auditory and neural mechanisms underlying hearing.

This new study is the first clinical trial to use bilateral ear gene therapy for treating DFNB9. The new research presents an interim analysis of a single-arm trial of five children with DFNB9 who were observed over either a 13-week or 26-week period at the Eye & ENT Hospital of Fudan University in Shanghai, China. Shu injected functioning copies of the human OTOF transgene carried by adeno-associated virus (AAV) into the inner ears of patients through a specialized, minimally invasive surgery. The first case of bilateral treatment was conducted in July 2023. During follow-up, 36 adverse events were observed, but no dose-limiting toxicity or serious events occurred. All five children showed hearing recovery in both ears, with dramatic improvements in speech perception and sound localization. Two of the children gained an ability to appreciate music, a more complex auditory signal, and were observed dancing to music in videos captured for the study. The trial remains ongoing with participants continuing to be monitored.

In 2022, this research team delivered the first gene therapy in the world for DFNB9 as part of a trial of six patients in China treated in one ear. That trial, which had results published in The Lancet in January 2024, showed five of six children gained improvements in hearing and speech. Shu initially presented the data at the 30th annual congress of European Society of Gene and Cell Therapy (ESGCT) in Brussels, Belgium in October 2023, becoming the first in the world to report clinical data on using gene therapy to restore hearing.

“These results confirm the efficacy of the treatment that we previously reported on and represent a major step in gene therapy for genetic hearing loss,” said Shu. Shu trained under Chen for four years as a postdoctoral fellow at Mass Eye and Ear, with their collaboration continuing for more than a decade since he returned to Shanghai.

“Our study strongly supports treating children with DFNB9 in both ears, and our hope is this trial can expand and this approach can also be looked at for deafness caused by other genes or non-genetic causes,” added Chen, who is also an associate professor of Otolaryngology–Head and Neck Surgery at Harvard Medical School. “Our ultimate goal is to help people regain hearing no matter how their hearing loss was caused.”

Currently, there are no drugs available to treat hereditary deafness, which has made room for novel interventions like gene therapies.

Mass General Brigham’s Gene and Cell Therapy Institute is helping to translate scientific discoveries made by researchers into first-in-human clinical trials. Chen and his colleagues are working with the Institute to develop platforms and vectors with good manufacturing practice standards that would enable his team to more easily test this therapeutic approach with other genes in the future.

The authors note that more work is needed to further study and refine the therapy. The bilateral study requires more consideration compared to the unilateral (one-ear) study as operations in both ears, in the course of one surgery, doubles the surgical time. Furthermore, by injecting double doses of AAVs into the body, the immune response is likely to be stronger and the potential for adverse effects could be greater. Looking ahead, more patients as well as a longer follow-up duration are necessary, and continued analysis of gene therapies and cochlear implants in larger randomized trials will be valuable.

Paper cited: Wang, H et al. “Bilateral gene therapy in children with autosomal recessive

HEALTHMEDICAL SCIENCES 11 MAR 2024

The Neuroimaging Group, at the Department of Paediatrics, in collaboration with Bliss, the charity for babies born premature or sick, has launched a new suite of information resources for parents of neonates, designed to make them feel more confident about being involved in the care of their babies.

While evidence demonstrates that parents can play a positive role in comforting their baby during painful procedures, practice in the UK lags far behind. However new research by the Neuroimaging Group, published in the Lancet Child & Adolescent Health and Pain has brought further proof of the positive impact that being involved in their baby’s care has on parents.

The Parental touch trial (Petal) aimed to assess whether parental touch at a speed of approximately 3 cm/s to optimally activate C-tactile nerve fibres, provides effective pain relief during a heel-prick procedure. While there was no difference in the babies’ brain, behavioural or heart rate response to pain regardless of whether the parent touched their baby before or after the painful procedure, the findings did demonstrate that the majority of parents had positive emotions when involved in their child’s care – such as feeling useful and reassured – and an overall decrease in parental anxiety after their participation.

These new resources, a combination of beautifully curated and informative videos, FAQs and online information content, have been developed in light of the collaboration with parents and healthcare professionals. They are free to access online and set out in detail the many ways that parents can touch and comfort babies of all gestations during painful procedures on the neonatal unit, including skin-to-skin care.

Commenting on the research in an accompanying Lancet Child and Adolescent Health editorial, Ruth Guinsburg, said: ‘This study is an example of excellence in research. The trial was carefully designed with a clear question, strict inclusion and exclusion criteria, a well-designed and reproducible intervention based on biological plausibility, and defined outcomes, with the strength of using an objective rather than a subjective measure of pain. Only with trials like this might we transform faith in scienceand test the efficacy of traditional aspects of parental care in order to incorporate them, or not, in bundles to alleviate the pain in neonates.’

Dr. Rebeccah Slater, Professor of Paediatric Neuroscience and Senior Wellcome Fellow at the Neuroimaging Group, said: ‘Working with parents, babies and healthcare professionals to better understand how we can support premature and sick babies during painful procedures has been a highlight of my career. Developing these resources with Bliss has placed families at the heart of all the research we do, and has directly improved our engagement with families and the quality of our research. We will continue to find new ways to support parents and their babies when painful procedures form an essential component of neonatal care.’

Dr. Roshni Mansfield, a Paediatrics trainee and NIHR Academic Clinical Fellow in the Paediatric Neuroimaging Group said: ‘The Petal trial has highlighted the importance of involving parents in the provision of care and comfort for relieving their child’s pain. Future studies can build upon the insights gained from this trial including the positive parental experiences observed in this study. Prospective research might, for example, exercise a more spontaneous approach to delivering the gentle touch, such as allowing parents to stroke their child at their own pace, for as long as they need to calm and comfort their child, rather than a more mechanical and precise application.’

Dr. Maria Cobo, a postdoctoral researcher who managed the trial, added: ‘Another positive aspect of the study was the high degree of involvement by both fathers (35%) and mothers (65%) in delivering the parental touch to their babies. This contrasts with many studies, where only mothers’ opinions and involvement have been sought.’

 Caroline Lee-Davey, Chief Executive of Bliss, said: ‘We are thrilled to have worked alongside the amazing team of researchers at the University of Oxford to further our understanding on the importance of parental involvement in their babies’ neonatal care. We know that babies have the best chance of survival and quality of life when their parents are empowered to be partners in their care but, sadly, we hear all too often that parents are not informed about their babies’ procedures or the role that they can have in comforting their baby. The outcomes of this research have directly shaped a new suite of Bliss information for parents and healthcare professionals which will help to validate what families often instinctively know to be true – that no matter how unexpected or strange the neonatal environment can feel, they are still their baby’s parent and they have a vital role to play in their comfort and care.’ 

Additional funding from the Wellcome Trust enabled Bliss to develop these valuable resources for families, including new information, video content filmed at John Radcliffe Hospital’s neonatal unit giving precious insight into neonatal care, as well as translated flyers for neonatal units and a webinar for healthcare professionals on how to support parents to be involved in their babies’ procedures. These resources were created in collaboration with parents and healthcare professionals, and included a listening event with the Raham Project, a CIC supporting ethnic minority families, where four mothers shared their neonatal stories.

  https://www.ox.ac.uk/news/2024-03-11-research-shows-comforting-babies-eases-parental-stress-painful-procedures

Empowering the Unsung Heroes: Siblings of NICU Warriors

When a baby is born prematurely or with critical health needs, the entire family is thrust into a world of uncertainty and emotional upheaval. While much attention is rightfully focused on the newborn and parents, siblings often navigate this journey with a unique blend of resilience and vulnerability. These brave siblings of preemie babies deserve recognition and support for the vital role they play in the family’s NICU journey.

Siblings of NICU babies often experience a whirlwind of emotions, from fear and confusion to jealousy and isolation. It’s essential to create an environment where their feelings are acknowledged, and their contributions celebrated. Simple actions, like involving them in care routines or creating special sibling-only times, can foster a sense of inclusion and importance. Encouraging open conversations about their fears and questions can also help them feel more connected and less isolated.

Educational resources tailored to siblings can also be beneficial. Books, videos, and activities that explain the NICU environment in age-appropriate terms can demystify the experience and reduce anxiety. These resources help siblings understand the medical aspects of their baby brother or sister’s care, making the hospital environment less intimidating. Providing clear and accessible information empowers siblings by giving them a sense of control and understanding in an otherwise overwhelming situation. Resources such as Hand to Hold, Bliss, Miracle Babies Foundation, and Canadian Premature Babies Foundation, offer valuable insights and practical tips for supporting siblings during this challenging time.

Recognizing the importance of supporting siblings of NICU babies is essential for fostering a positive family dynamic and ensuring the emotional health of all children involved. By acknowledging their unique experiences and providing targeted support, parents and caregivers can help these strong siblings navigate the complex emotions and challenges they face, contributing to the overall resilience and well-being of the entire family navigating the NICU journey.

These resources provide valuable insights and practical tips to help siblings navigate the complex emotions and experiences associated with having a brother or sister in the NICU:

Hand to Hold: Sibling Support

Hand to Hold provides comprehensive resources to support siblings of NICU babies, including tips for preparing siblings for NICU visits and strategies for making them feel included in their baby brother or sister’s care.

https://handtohold.org/resources/siblings

Bliss (UK): Support for Siblings

Bliss is a UK-based charity that provides comprehensive support for families of premature and sick babies. They offer resources and guidance specifically designed for siblings, including advice on how to involve them in the care process and ways to help them understand and cope with the NICU environment.

https://www.bliss.org.uk/parents/support/siblings

Miracle Babies Foundation (Australia): Sibling Support

Miracle Babies Foundation is an Australian organization dedicated to supporting premature and sick newborns, their families, and the hospitals that care for them. They provide resources tailored for siblings, helping them navigate the emotional and practical challenges of having a brother or sister in the NICU.

https://www.miraclebabies.org.au/parents-and-families/sibling-support/

Canadian Premature Babies Foundation Sibling Support

The Canadian Premature Babies Foundation (CPBF) offers a range of resources to support families of premature babies across Canada. They provide specific guidance and materials for siblings, including educational resources and support groups to help them cope with their sibling’s NICU stay.

https://www.cpbf-fbpc.org/sibling-support

Boy’s Heart Melts As He Meets Baby Sister After NICU Stay

Sep 11, 2023

 A three-year-old boy who could not meet “his” baby sister while she spent her first days in the NICU lit up when he was finally able to hold her for the first time. Dominic “Dommy” Voso, from Rome, Georgia, told his parents the newborn would be “his” baby, having asked mom and dad for a sibling for a long time, proudly telling others when his mom was pregnant. But unfortunately for Dommy, mom Chrissy, 30, had preeclampsia during her pregnancy, which meant that Mia had be delivered at 35 weeks and four days. Mia then had trouble breathing, which caused her to spend her first 12 days in the NICU. This period was extremely tough for Dommy, as he had been desperate to meet his newborn sister, but only adults and siblings over 13 years of age could enter the NICU. Added to this difficulty, Chrissy had to spend an extra eight days in hospital, too, so Dommy couldn’t understand why he could see his mom but not his little sister. But that all changed on July 4 when Dommy sat in his family’s home and Chrissy came in holding Mia. When Dommy was then presented with his little sister, he immediately beamed with joy, holding her before bringing toys and books to share with her.

This inspiring video  highlights the experiences and resilience of siblings of Preemie Warriors:

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